I'm fully ambulatory but I live with debilitating, treatment resistant and mysterious chronic foot pain that makes leaving my home difficult and holds me back so much.

In an ideal world I'd get myself a Zeen but they are only available in the USA and I highly doubt I'd be able to get coverage through ODSP even if they did sell to Canada. So I'm strongly considering a wheelchair for shopping and traveling on public transportation and getting out of the house.

But my family is extremely against it because they are afraid that my legs will stop working and I'll become dependent on the chair if I started to use one despite me telling them over and over that I won't even be using it all the time...only in scenarios where I'm normally on my feet a lot.

I need to convince them because they will likely be helping to pay for it.

HOW DO YOU DO IT?

Right now we live with MIL but can’t stay here forever. We (hubby and kiddos) will need to move eventually but I need to start planning out how I’m going to realistically manage this alone one day, because he’ll need to be at work. So…tips? Tricks? Suggestions?

(Side note, school/daycare is not an option)

I have been disabled my entire life, but my disabilities unexpectedly became exponentially worse upon moving out at age 18. My parents are insistent on me retaining my independence, so not much help from there. It just really sucks having to grapple with such awful problems when I haven't even established myself in life yet. If I were older and already finished with college, I could find a sit-down job with my degree. If I were younger and still in high-school, my parents would help me start finding diagnoses and treatment before I move out. But instead I am right in the middle, and I am forced to work an excruciating food service job at minimum wage that hurts me, on top of going to college full time.

It just really sucks. I'm so tired and symptomatic all the time, and there's not much I can do to fix it. My doctors don't even know what's wrong with me yet, I only just got a referral to rheumatology this week after half a decade of trying to get answers. I wish I could get a job that worked for me, or I wish I could live with my parents again while I figure this all out.

That's something I sometimes do. I don't have a daily routine for the most days, because all days have different energy levels available and different adult-things need to be done.

I thought I wanted to share this because I'm sure someone can relate and maybe won't feel bad if they know:

you are not alone.

Taking a shower can be a task that needs the energy of a whole day, or more. Maybe you were able to unload the dishwasher or open your post instead of using this same energy to change your clothes.

You are doing your best

You are love worthy

(And yes, it's not only my t-shirt I've been wearing since 61 Hours)

I am a 36M, who is married to a 34F. She is my "primary" caretaker. I have an incredibly aggressive form of MS. I was diagnosed in 2020, my mobility dropped rapidly. My reduced mobility caused me to have to PE, one of which actually killed me (I was dead for 96 second.) Now, i have extreme weakness in all of my limbs making me functionally paraplegic.

Both my wife and I still work full time jobs (i work from home.) Because of how much effort it is to get me out of the house, it only happens when i have a doctors appointment. This means, it is often weeks or months in between when i leave the house.

Except for the people i work with, i have no communication with anyone else. I have no friends and no Family to speak of, so she is all i have. My wife comes home from work and takes a 3-4 hour nap because she is so mentally exhausted.

Does anyone else just feel trapped in life? I mean i am very lucky, because i lived a very full life before the age of 30, but now it has just come to a screeching halt.

I already am in counselling, i'm just curious if i am the only one who feels like this?

I have a few, but was just thinking about one that inspired this question.

I am a cis woman and my girlfriend is trans. She prefers very feminine women. Because of various health issues, I can only be comfortable these days wearing comfortable, loose tops and shorts. The only ones I can find and afford give me a decidedly butch air. My girlfriend is struggling with her attraction to me partly because I can't wear cute clothes anymore. It doesn't help that I can't shower as often as I need to, so my hair gets greasy and I smell. (I finally buckled and bought a bunch of those bathing wipes to use in between showers, but I hope to gods she never walks in on me using them. I can only imagine how *that* image will affect her attraction.)

Compared to the disability itself, it's a small thing. But it just feels like... Why? You took away my ability to shower standing up, why do you have to take this too?

I've been his patient for several years with increasing levels of care and higher doses of meds needed for my depression. I finally broke down last session and asked if he would refer me to an Intensive Outpatient program because I woke up every day not wanting to be here anymore. I pay for short term disability insurance through my job and asked him if he would sign my SD paperwork and he made some excuse and said that the "intake for the outpatient program would handle that".

Now I'm being told there is a several week waiting list for the outpatient program and he is refusing to sign my paperwork himself because "we don't sign people out of work just for being depressed. They have to be in some kind of program".

I feel completely betrayed by him and really hopeless about trying to fight through this process when I don't even have the energy to eat and get dressed every day.

I have an acquired incomplete SCI. I have realised I can't go back to my career the way I want to and need to find a new way to fulfil myself.

If you had an intense or fast paced job which you had to give up what do you do now to fill the gap outside work? Lawyers, nurses, finance bros, sales people, military, I need your help.

I don't have kids, am not interested in academia, but need to find something mentally challenging and VERY competitive to fill the gap.

curious about this. has anyone done emdr for their medical trauma? how did that go, did if affect your health in any way?

With Jimothy, the racoon with a congenital spine condition, in the news, I am really fascinated (yet again) with the outpouring of compassion for animals with disabilities. People are falling over themselves to immortalise him in crafts, particularly in the sewing and painting subs I am a member of.

I don't want to be immortalised in thread or paint, but I am really struck by the endless support and compassion people seem to have for animals with disabilities. So often you see pet owners going to the ends of the earth to ensure their pets have the medical care and equipment that they need. Society doesn't have that same compassion for people with disabilities, and the contrast is so jarring. Do you really need that equipment? You must be faking? You're a drain on society, etc, etc. I want people to have compassion for animals, I'm not saying that is wrong, I would just like a little bit of that compassion to extend to people with disabilities.

Going on vacation with my family and my sister's family. Sister suggested I rent a mobility scooter so I can join The other three adults and the five kids when they do bike rides etc. went to a store today and was introduced to the ultralight foldable power chairs. Overall more convenient than mobility scooters. Easier to transport and much more agile.

Not loving the 3K price tag. Some Amazon knockoff options are under 1K.

Alternatively I could buy a cheap $500 mobility scooter or rent one for $300 at the destination area.

This is the one I checked out at the store that was definitely very convenient - and a bit less expensive at the store then here on Amazon. https://a.co/d/0bgPX2kV.

I am about 5'9 and 160 lb.

Any suggestions or words of wisdom?