AGHAHGSHFJFJFN OK SO I DIDNT GET ANY ANSWERS FROM MY RHEUMATOLOGY APPT!!! HE JUST SAID "yeah u have fibromyalgia lets run a few more tests to see if u have a specific autoimmune condition" WELL THE ENA PANEL WAS FUCKIN NORMAL AND MY SHIT WAS STILL FUCKED UP!! SO I GOT GIVEN FLEXERIL & DICLOFENAC. WORKED FINE FOR ONLY TWO FUCKING DAYS. NOW IM BACK TO FEELING LIKE SHIT AND FEELING LIKE I HAVENT GOTTEN ENOUGH SLEEP. MY NEXT APPOINTMENT IS IN TWO MONTHS FUCK MY LIFE

In terms of inmunity. Like I have been working from home. I was already avoiding social contact before covid, but after covid it just got worse. I have hashimoto's and I saw all the problems that people were having with covid infections, as well as some people overreacting to the vax. There is something about the virus that causes long term side effects.

The thing is, I think I finally caugh it last april, 2 days after a kid relative visited I had the usual symptoms, and had an over reaction. It was 10 days of hell. Im worried I have long lasting side effects, like lung damage, or some sort of reflux, as I have been having cough with green mucus daily for like 2 months. Im waiting for appointments.

I was reassessing the situation. Okay so what if avoiding social contact for a long time has made my inmune system worse? I have been able to recover mostly from the viral onslaught, it was pretty brutal, but I have now this side effect of mucus and some cough daily. I wonder, if I was not avoiding it, would i have not been attacked as much? I don't know anyone that has had a vaccine since 5 years ago (basically got the first one to not be bothered by QR code thing back then). So in theory I am now more protected as I have natural inmunity from the latest version of the virus, assuming it was covid, but it probably was as I had a distortion of smell sense from hell that luckily is mostly recovered. Yet most people seem to not have long lasting side effects, at least from the people that go out and I see once in a blue moon.

I have been avoiding social contact for a long time. How do I reintroduce myself back to society to have a better inmune system? Or do I just risk reinfections and getting worse? How do you find a balance were you are not getting wrecked by the latest covid variants with a decent social life? It just comes down to luck and being genetically bulletproof? How much should you avoid exposure to viruses vs "getting trained"? We don't "get trained" by getting Evola for instance. Of course covid and so on aren't evola, but for some people every reinfection adds up and then they finally snap and end up in the covidlonghauler subreddits, and you never know you are one of these until it's too late, so I don't know what to do here. I feel like if I continue to live in a bubble, it will just get worse. I would like to go to the pool, get some sun and exercise. I am 36, male, skinny-fit, but now I have this mucus cough thing for 2 months and im worried I have lung damage and I may get infected again easier, and if I start going out which involves going in a train to get anywhere interesting, I will risk reinfections and potentially end up worse.

TL;DR: How do you reintroduce yourself back to society if you have been avoiding social contact for years, and want to go the pool and get some sun, and this involves going into a train? Is my inmune system compromised after this? I had a potential covid infection in last april, it was pretty terrible but survived, I had distorted smell sense and all the usual symptons with some cough attacks, mostly recovered after 2-3 weeks, but for the last 2 months or so I have cough with mucus and scared I have broncquiestascies or some sort of permanent damage that will make me reinfect easier, add the fact that my inmune system is probably not trained from avoiding people and if I start going out im scared I end up reinfected with stuff and end up worse but at the same time I think if I stay in a bubble it will be worse long term so I don't know what to do. I have hashimotos in terms of autoinmunity btw. I have 88mcg eutirox.

I guess in a different country I'd qualify for disability and its claims, but in India, not so much. I have 'allergies' (as per the allergy test) for at least 57 different foods, and other substances such as cotton, dust, and cockroaches. Because of that sheer number of triggers + overlap, I am just constantly tired and sometimes sick for 4 days a week. I cannot keep going on like this if I wish to have a career and survive. None of the OTC allergy meds work, and only painkillers work at times. I just stay groggy and low energy and unenthusiastic and irritable ALL DAY. idk if this is because of cPTSD or some other disorder like MCAS or just allergies.

IgE is 411 IU/ml.

IDK if they are allergies per se because, different foods give me different reactions, or rather, some have drastic reactions and some do not. e.g., Cow milk and its products give me muscle cramps and intense muscular pain at times, and joint pain. Clarified cow butter can make me instantly dizzy and sleepy and fully feverish. Peanuts and some other nuts give me almost-asphyxiation (my throat tightens), my head spins, and I feel sleepy and dizzy. Other foods that I am allergic to do not give me muscle pain but fatigue me that I'd rather sleep. Note that this is not as drastic as feeling instant-sleep by cow butter. I rarely get any skin reactions.

tldr for backstory: grew up under extreme abuse, have anxiety, slept in dusty, moldy sheets, ate rotting food, drank dirty water; deficient in few vitamins now, and idk to what I pinpoint my conditions to, and how to heal from these.

I'll edit this if I remember some important detail. please ask me anything that might help identifying the issues.

Below is some backstory in case it helps with the hypotheses:

I am 28M, 174cm and 95kgs. I grew up in an extremely abusive household (getting beaten and shouted at for hours) and faced extreme abuse in school as well (the word 'bullying' does not cut it; I'd be groped all over and shoved and twisted again for hours back to back between class breaks).

My maternal grandparents were with me until I was 13 who gave me nutritious food. They left, and my mom would just cook the most random stuff that would qualify for prison food, and sometimes even cook veggies that has kind of been rotting. No proper nutrition since then.

I had high energy (probably due to high adrenaline due to abuse) until I was 18. I would walk for miles and miles without tiring, and work/study for 13-15 hours a day. Two weeks or prior to my 20th b'day, we stopped getting purified water since we did not have enough money, and started drinking a little bit dirty water without any boiling and processing. A week after my 18th b'day, I felt extremely dizzy and rushed walking home, and could not get up for hours. My mom did not attend to me, and my friend came home after many hours to give me meds. This same sudden dizziness happened another time as well. This same month once my entire leg was too numb that I was not able to walk for 5 minutes. From this point onward, my tiredness and fatigue has just been increasing year by year.

To note, my mom has already been feeding me improperly since I was 13. Please do not ask why I did not cook for myself; I was not allowed, and I was constantly abused.

Since it was just me and my mom, I tried to keep the house as clean as I could. But even then, rooms were extremely dusty, and since I was tired all the time, sometimes I'd not change sheets for months, and I guess I was sleeping on dusty, moldy sheets for a few years.

At this point, we were eating both improperly and very less as well due to no money. I started looking for a job, and tried OTC supplements with no avail. Then I thought that maybe I am iron deficient, and started Iron syrup, and that seemed to give me a little bit energy. This is also when I tried eating more peanuts to get iron and other nutrients from some street vendors.

From age 20-23, my energy would ebb and flow. If I ate something I was extremely allergic to like peanuts, I would just be so drowsy as if I were on some drugs, and even two cups of coffee would sometimes not be enough to keep me awake. I could not sleep in office, and how many sick days could I even take. Because of this, just battling drowsiness the whole day, I'd be backlogged, and then I'd panic-work to meet deadlines on weekends. My anxiety which was already high increased even more.

age 20-21 my feet would go numb if i wore something too tight, and i continued iron syrup intermittently.

age 21-23 was also when it was lockdown, and I was with my mom who by then had gone fully schizophrenic, and if she weren't shouting at me, she would be shouting at her voices. Still no proper food. I am somehow trying to keep up by eating protein and fruits from outside.

age 23 marked the peak of my fitness wherein i was clocking close to 17 miles of walking every day. This was happening, and also me feeling fatigued while working. Actually, the only time I'd not feel fatigued was when I'd walk. Mainly I had a lot of anxiety and anger and that was enough to make me walk, but I also wanted to burn fat and I kept pushing myself. But it did not feel like anything since my feet would not hurt.

This went further downhill when one fine day I had an intense, out-of-the-body panic attack at age 23. After that panic attack, I felt even more tired than usual. My psych suggested that I move out, and I did. In the midst of figuring out moving, I stopped walking for miles, and now it has been 4 years since I have walked for miles. I can barely walk one mile without heaving these days.

Ever since the panic attack, I have become super-sensitive to caffeine (or maybe I have connected with my body and can identify when I am jittery and anxious and I do not suppress my emotions lesser now, idk?)

Now, age 23-28: I am low contact with my mom. I cook for myself and I am trying to keep my house as clean as possible. But unlike age 20-23 wherein I felt fatigue for only 4-7 hours a day and could make up for lost time by working during the rest of the day, now, I feel drained for almost 8-10 hours a day. My main deficiency as per recent reports is Vitamin D. I am yet to do a thorough mineral panel. I have lost a bit of muscle, I have gained fat, I cannot walk for even a mile, and as I said, I am just constantly groggy and low energy and unenthusiastic and irritable ALL DAY.

Please help me out.

I'll edit this if I remember some important detail. please ask me anything that might help identifying the issues.

Well, I’m hoping my new treatment will help my oral erosive Lichen Planus. I researched it and it said it would.
I went through to my allergist when I was having health problems. She saw that I’ve been sick too many times in a short timeframe. So she sent me to have my auto immune system checked. Came back deficient. So she sent me to have the pneumovax 23 vaccine. I went and did more blood work and I am still deficient. I have been diagnosed with Primary Immunodeficiency. PI
So, I am having infusions of immunoglobulin antibodies. IGg Once a week for the rest of my life. That is the extreme part, plus the fact I have to learn how to do it. I’m not a nurse.
Yes, I’m hoping this helps me from getting sick frequently. But I really hope it calms down my mouth. I’ve been in constant pain for years. I look like those horror pics you can see online.
So, I don’t know if y’all have checked into this for yourselves, but you might. It’s expensive, but for some reason the company pays for it after I meet my deductible. So it’s not that bad.
I just wanted to share it here since I feel for everyone. Blessings from Texas.

I feel like I’ve been chasing for a diagnosis since March and the only consistent answer is fibromyalgia which is now potentially debunked due to a lumbar radiculopathy diagnosis. I’ve been told Hashimoto’s to now it’s dormant Hashimoto’s and not causing symptoms. Had various elevated antibody labs one month and went nonexistent within a few weeks. In my third rheumatologist and he seems like he truly cares and wants to figure things out like my PCP.

I feel so medically burnt out but I want to feel better, have an actual game plan, and enjoy life again, especially since this start a few months into being engaged. Any tips, tricks, advice, etc. for staying afloat until all the stars align?

i have life changing symptoms to the point where i am bed bound and i have been to primary care , cardiology , rhumetology , endocrinologist , and probably some others and all my blood work comes back fine , they never find literally anything wrong with me and 90% of the time it ends in telling me i might have depression when i have shown them literal pictures of my flare ups. it is insane and i need my life back im willing to go anywhere or go to any doctor to solve this but i have no idea what to do. any advice please?

I just have to say this. Dealing with chronic illness, people that can't handle negative things bug me so much. It is one of the reasons we mask our symptoms because people can't handle it. ugh

Last fall I was diagnosed with EOE, and thankfully after a second endoscopy my insurance approved dupixent for treatment and it's been going okay.

Overlapping symptoms also included experiencing blistering, painful, swollen gums. The doctors thought the symptoms could be related to the EOE, but after gum biopsies it was determined to be unrelated and a totally separate AI condition.

I've just been diagnosed with a second, fairly rare autoimmune condition Cicatricial Pemphigoid Oral (also called Mucous Membrane Pemphigoid MMP). I'm thankful to have a diagnosis, but quite overwhelmed with having to manage two AI conditions.

So treatment is a daily dose of doxycycline...basically forever. I don't know how I feel about being on a daily antibiotic for all time - this, my "venting". Of course I also will be taking a probiotic to help offset the gut damage of the antibiotic.

The treatment makes me a little wary - apparently in the "cycline" family of antibiotics there's something that helps to rebuild the collagen that the immune system breaks down (mine is just Oral, thankfully. It can also occur in the eyes and genitals). The oral pathologist said that the treatment seems strange because it's not treating any kind of bacterial infection, but it can completely heal my tissues/gums and stay that way.

Just wondering if anyone else out there has this AI condition and how you are managing your symptoms.

If you have been diagnosed with Lupus, what bloodwork came back abnormal? Just curious what combination or how many abnormal results can result as a diagnosis. I’m having a follow up with my rheumatologist in a couple weeks but I’m thinking there isn’t enough in my bloodwork for a diagnosis yet.
ANA positive 1:160, positive lupus anticoagulant, and low c3. I had my c3 tested twice and one time it was low and the next time it was in the normal range but just barely. The rest of my bloodwork was normal.

This is starting to feel ridiculous. Every few weeks I get another diagnosis, and I still have more tests coming up. I'm beginning to feel like every worst-case scenario is actually happening to me.

So far I've been diagnosed with **Hashimoto's**, **autonomic** **dysfunction**, and **Sjögren's**.

Today I tested positive for **RA**, and of course Google says that this particular RA antibody is associated with a more severe, progressive form of the RA.

I'm also being tested in the next few weeks for narcolepsy and small fiber neuropathy.

I'm 33 years old, not 100!!

If anyone has a few kind or encouraging words, I'd really appreciate them right now. I honestly don't know what to think anymore.

Most of the people in my life don't even know what to say to me anymore, so I'm all alone in this.

BTW I Also feel so sick, how am I supposed to deal with all this if I can't even sleep at night from all the pain?