r/diabetes_t1 3h ago

My A1c is DOWN!!!!!!!!!!!!!!!!!!!!!!!!!!!

71 Upvotes

I was diagnosed in April with an A1c of 14.3. Today I met with my Endo; now my A1C is 7.2!!!! Rough ride with great results! Diet, exercise, hydration, and sleep are the secret to my success! Thank you all for posting and helping each other with this devilish disease. It has helped me with knowledge, humor, and great advice, and I hope you all have a similar experience!


r/diabetes_t1 5h ago

Strava on the left. What the same run actually looked like for me on the right.

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64 Upvotes

I'm Tom, type one for 27 years... still feels insane to type ^^

I still remember life before CGM. Finger sticks. Waiting those 30s staring at the meter like an idiot. Felt like forever every single time :/

Dexcom changed a lot for me. Finally seeing the whole curve instead of one random number and then guessing what happened around it.

But idk I still always felt like my diabetes lived in one place and the rest of my life lived somewhere else.

Like this run. Left side is what I posted on IG. Distance, pace, time. Cool. Done.

Right side is what was actually going on at the same time. 50% TIR, not that pretty? But who cares... that's the real version of that morning.

Workout, sleep, food... all that stuff never really sat next to my glucose. Always separate apps, separate headspaces.

Got annoyed enough by that that I started building something for myself just so it could be in one place for once.

Anyway. Anyone else feel that or am I just overthinking it?


r/diabetes_t1 4h ago

Discussion Senate panel advances legislation capping private insurance insulin at $35

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thehill.com
34 Upvotes

r/diabetes_t1 21h ago

Discussion Rufus the bear

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226 Upvotes

currently missing this little guy everyone got when they were diagnosed after I got kicked out of my abusive mothers house ironically for her T1 medical neglect

does anyone know where to find another one for relatively cheap? It was a nice token to have that reminded me of my diagnosis but at last due to bad home life I do not have it šŸ’”


r/diabetes_t1 11h ago

Next level

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22 Upvotes

r/diabetes_t1 49m ago

Seeking Support/Advice My diagnosis is ruining my life.

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• Upvotes

I'm not really sure how to word this, so bear with me. I, (17F) was diagnosed with Type 1 Diabetes midway through grade 10. It was quite a shock, as I had experienced no prior symptoms, so this whole situation came seemingly out of the blue. For context, I am a very anxious person, and I tend to hyperfixate on specific fears (such as rabies, germs, death, and in the past, diabetes) which made my diagnosis all the more terrifying. I distinctly remember crying in the hospital bathroom, afraid of just how much my life was about to change. One of my worst fears was becoming real. I remember constantly asking my mom as a kid (when my fear of diabetes started) if I would one day get diabetes, and if I would be okay, to which she always replied with, "No, you'll be fine", or "You won't get it, stop worrying", which eventually calmed me down. I understand now she was just brushing me off, but to now know that she was wrong really scares me to this day. My dad, (50M) was with me at the time of my diagnosis, and tried his best to mitigate my emotions. He was very calm and collected, but the main problem is: he is VERY skeptical of doctors and medication. Due to this, his way of helping me was through nutrition and exercise, which isn't a bad thing on its own, but he tends to prioritize physical health rather than mental health, which became a problem later on.

Fast forward a year. I had started grade 11, and diabetes was at the back of my mind. Since the doctors caught it in its early stages, I didn't have to take any insulin, or drastically change my diet at that moment, which was great. I was still being monitored, and I had to wear glucose monitors on occasion, but it wasn't too bad. I could still eat whatever I wanted, and go on with my life mainly stress free. However after a few months, my condition started to get worse, and my blood sugar levels would raise higher than they usually did. This was when my dad started to put me on a low carb, low sugar diet. Not quite keto, but just barely above it. At first, I'll admit it was really hard. I had to completely cut out most of the foods in my diet, and I was eating basically the same foods every single day (such as eggs, high fat yogurt, berries, dark chocolate, nuts, and various meats and vegetables) which really got to my head after a while. I would see my friends and other kids eating snacks, meals, and desserts that I couldn't, which made me very sad, and no matter how much I wanted a dessert or a meal other than what I was bound to, I couldn't give in. If I did, my health could get worse, and I would have to go on insulin everyday, which absolutely terrified me. I remember having this conversation with my dad, where he explained that if I did go on insulin, I would have to worry about low blood sugar, which in severe cases could put a person in a coma. I wanted to avoid that at all costs, so I continued to eat my restrictive diet without question. After a while, my dad noticed how I was feeling, and suggested we go shopping for low carb/sugar snacks, desserts, meals, etc to give me more of a variety. I was very relieved, and I ended up going a bit overboard on the snacks, but who cares, I could finally eat something new for once! I still had to limit how much of it I ate, but with enough exercise, water, and balanced meals, things were finally starting to look better. My doctors held off on giving me insulin due to how well my blood sugar levels were, and I wasn't depressed about food anymore. That is until, everything stopped working...

A few months later, everything got worse. I was eating the same foods that had no effect on me before, yet my blood sugar was still going high. This happened occasionally, so my dad suggested I take a break from certain foods to regulate my blood sugar again. However a few days later of skipping meals, drinking excessive amounts of water, constantly exercising after every meal, and eating practically nothing but eggs, chicken, ground beef, cheese, and vegetables (with no snacks throughout the day), my blood sugar just wouldn't go down. At this point I was starting to get nervous, and my fear of eating certain foods was starting to come back. My dad suggested we take a very small amount of insulin to give me peace of mind, which I was very surprised to hear him say. Maybe he saw I was getting worse and was coming to terms with the situaition, I'm not sure. I ended up taking some insulin, and a few hours later I went to bed. I was terrified to sleep that night after what my dad had told me about low blood sugar, but thankfully I woke up perfectly fine, and my blood sugar was significantly better than the day before. After a few more days however, my blood sugar just wouldn't go down much at all, even if I ate absolutely no carbs or sugar. I remember eating leftover green beans one night, and my levels raised pretty high. After that experience, I can't even eat certain vegetables. Another one to add to the list... My dad was still hesitant on me using insulin every day, and I can understand why, but to be real, I don't think I can go on with this much longer. I am afraid of eating so many different foods, and many days I am absolutely starving because I am not able to eat anything other than my extremely restrictive three meals a day. I know my dad has good intentions, and I know he cares about me deeply, which hurts me even more due to how depressed I've been lately. Like I said, my dad tends to forget about the severity of mental health, which becomes a problem when I try to express my feelings to him. When I tell him how I've been feeling depressed and scared that nothing is working anymore, and how I wish I could just eat normally, he counters with. "But you're glucose was pretty good today", or "You're eating way better than so many other kids, you should be thinking about that". I don't know how to explain to him that I'm not just upset that I can't eat sugar, I'm upset that I can never live a "normal" life with my condition. I can't enjoy myself when eating, I constantly have to worry about the risks of medication, and I have no one else to really talk to about how I'm actually feeling. One of my friends, who is recovering from an eating disorder, expressed how they were concerned for me and my own feelings towards food, and honestly, I am too. I absolutely love food, which hurts me even more knowing that I can't properly eat when I'm hungry, or enjoy food with other people without being afraid of something bad happening. I am also underweight, around 103-105 pounds, and I am afraid that I might lose weight based on how little I'm eating, and how much I'm exercising now. I feel like I can't escape this. I feel like crying everyday. I know I'll be an adult next year, but I feel like such a fucking child right now. If anyone has any advice, or similar experiences they would like to share, I would greatly appreciate this. Maybe Smosh will even read this story, that would make my day (Hi Shayne!). But for real, I don't know how much longer I can handle this. I'm really scared, and I don't know what to do.


r/diabetes_t1 3h ago

Healthcare Help baqsimi

3 Upvotes

I am over this lol.

My current emergency glucose is baqsimi. The prescription i have currently expires 10/26.

I picked up a new prescription to replace those and they expire the same 10/26

The pharmacist told me they only have 10/26 in stock. They cannot replace them at the moment.

I cant return them and ive tried two other pharmacies and they also expire 10/26...

Did i just waste 30 dollars and have to wait until otcober anyways? ... im trying to be proactive because watch me go to 30 when i have expired glucagon

Can i can anyone to get a refund? Or try another location?

If not does anyone need baqsimi that expires in two months LOL (seriously tho)


r/diabetes_t1 14h ago

Those with an A1C under 6.0 and minimal hypos…. Do you all have to micro dose sugar all day when you leave the house/do mild activity?

20 Upvotes

I’m considering pregnancy next year, so I’m trying to keep my A1C low- last month was 5.8, and the month before that was 6.3. My G4/780g keeps me good if I’m home all day and eating predictable food- I average about 89% in target. I do have 4% hypos, but I usually am able to correct them before they’re below 65.

However, my good sugars change as soon as I leave the house. I walk and ride train/buses to go places, and even just a 5 minute walk to the station or supermarket (especially in this hot weather) can quickly send me 80↓ and I have to eat few jelly beans to prevent a hypo.

I’d rather not increase my A1C…. Is my only option really eating food before/during exercise? I’m trying to maintain my current body, and I’m already forced to eat before exercising, which is frustrating.

The only other option I can see would be a temporary target (I do that with working out in combo with food), but that seems OCD for a walk to the supermarket, especially since I think I’d have to temp target like an hour before leaving. Do all the ā€œwell-managedā€ diabetics with A1Cs under 6.0 just dose sugar constantly whenever they have increased activity?

Finally, I am sick of FEELING LOW ALL THE TIME.
My A1C in May was 6.3, in June was 5.8. I think it’s about 5.8 now as well. I dropped rapidly from 7.5 in the end of March though, so I figured my body needed time to adjust to my new average blood sugar levels…….. however I still feel like I’m hypo any time I’m 90 or less, and the last few months have been exhausting! I hear people usually adjust after a few weeks…. But has anyone else experienced finally adjusting even if it took a few months?

Currently 96 and feeling like I am slightly hypo 😢. I’m feeling like I’m constantly having to exercise def control so I don’t over treat.


r/diabetes_t1 12h ago

Discussion Not a bad day

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12 Upvotes

No work stress and numbers were good


r/diabetes_t1 9m ago

Seeking Support/Advice Baqsimi question

• Upvotes

Do i absolutely HAVE to go to the ER after use? I’m still in my lada honeymoon and had a pretty severe hypo, but i’ve been low for the past couple days. Yes i have a headache and am fairly nauseous but can’t I just monitor my glucose and check out for ketones?


r/diabetes_t1 11h ago

Is this OK? Or should I do better?

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6 Upvotes

r/diabetes_t1 2h ago

Best insurance for Diabetics

1 Upvotes

I’m not going to be able to change coverage until next year anyway but I’m currently with Fidelis. I was on their silver plan last year and my dexcoms and omnipods were covered, no problem. This year I went down to the bronze plan because Silver was gonna cost me close to $700/month. With the silver plan, they won’t cover the pumps so I had to go back to pens to inject my insulin and now after covering my dexcoms through May, they want to charge me almost $400/month for them ā€œbecause it has to go towards my deductibleā€. Looking for my best options when I switch my insurance next year because I’m tired of stabbing myself 🫠


r/diabetes_t1 9h ago

Discussion Tips to increase weight

4 Upvotes

I want to gain weight and build muscles

So what other things i could do along with controlling my blood glucose to gain weight fastest


r/diabetes_t1 21h ago

Graphs & Data How’s everyone’s last 24 hours?

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25 Upvotes

I promise everyone that I’m doing okay now.

This happened because my pump site failed and I didn’t realize along with a nasty heatwave.


r/diabetes_t1 13h ago

Sleep

6 Upvotes

On average how long do you sleep at night ? I'm recently diagnosed LADA. And I used to sleep around 7 hours a night and wake up once or twice.

Now since taking insulin I'm sleeping 10 hours.

And anything less then 10 hours I'm tired.

I think it's due to the extra stress, and I'm an introvert, and having to explain to friends and family takes a lot out of me as well.

Did anyone else sleep a lot at the start ?


r/diabetes_t1 6h ago

Research into Type 1 diabetes and health information for UK residents

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1 Upvotes

r/diabetes_t1 6h ago

Exercise & Sport tips to lose weight?

0 Upvotes

hey yall! so honestly im not happy with my weight and I don’t know how to approach weight loss with diabetes, I’ve tried fasting but it doesn’t work cause I always go low and have to break it. I also play ice hockey where I always go low or super high which is annoying but yeah idk any tips?


r/diabetes_t1 6h ago

Help! Starting Dexcom G7 Today

1 Upvotes

Hello! I’m starting the G7 today and was looking into how to set it up. I have an Omnipod 5 and still use the controller.

I went to ā€œchange sensorā€ on the controller and it said I have to wait until my next pod change.

My question is - am I able to access the ā€œchange sensorā€ screen after I disconnect my current pod? I feel like the only option I usually see on that screen is ā€œstart new pod.ā€

Any help is appreciated! I just don’t want to accidentally waste a pod.


r/diabetes_t1 6h ago

Is it normal for Carb/Insulin ratios to fluctuate drastically?

1 Upvotes

Hi there,

I've been T1D for 11 years now and have recently noticed that my control has gone all over the place!! I feel like im normally pretty controlled HBA1C is normally high 50s/low 60s - Not perfect but im ok with this.

I normal operate on 15g/1Unit in mornings and 10g/1Unit for the rest of the day. Recently though ive noticed this creep up to over 20g/1Unit. Its funny though because some days 10g/1Unit is still fine and ill adjust ratios up to 20g/1Unit and end up hypo

My question, is this normal or should I suspect something might not be right with my insulin and bin it? I've had a bit of life change ratio but exercise amounts etc. are still the same. More weights/resistance than normal but nothing id suspect would affect this.

Thanks in advance


r/diabetes_t1 17h ago

Weygovy

7 Upvotes

Any normal weight folks who are type 1 take weygovy or GLP to help with TIR and slight insulin resistance? My main goal for taking it ISNT weight loss. but doctor said it could be a good try for Tir And insulin resistance. I can afford to lose weight so that’s why the weight loss side effect isn’t of concern. Thank you


r/diabetes_t1 6h ago

Beyond frustrated

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1 Upvotes

High struggling to get it below 190 for 4 days now. Beyond the point of burnout. Weight lifting is my hobby and I feel like my body is constantly working against me.


r/diabetes_t1 18h ago

Healthcare First Podiatry Appt

8 Upvotes

Went to see a podiatrist for the first time due to comorbidites. He was so fun and friendly and taught me a few tricks I hadn't been able to master, like feeling my own pedal pulses.

His guidance for T1s - you don't have to wear diabetic shoes unless you have problems. Diabetic socks are okay for everyone, but any sock with no seams to rub on toes is best. Non binding at the top is more for people with issues, but doesn't hurt.

Inspect your feet daily, it takes 5-10 seconds. Check between toes, for dryness, and any cracks or holes or discharge. Look for callouses that mean mobility may be changing and creating excessive wear

Wear shoes all the time. At home, at work, at the beach, in the pool, etc... a few horror stories of young T1s getting sand burned feet and taking months to heal, and one losing half his foot to an unhealed burn that progressed to ulcers.

Shoes - any that are comfortable and preferably a wide toe box

Trim your nails flat, file the other edges to avoid in grown toenails.

If you've tried all the things to lower your blood sugar- a walk, new site, new insulin, ketones, hydration, etc...consider infection and go to urgent care for lab work.

Visit a podiatrist once a year for baseline sensitivity, nerve and circulation exams, and to have referrals up to date for emergencies.


r/diabetes_t1 7h ago

Follow-up to my post here 7 months ago - I built the thing. Turns out the hard part wasn't smart alarms, it was whether I'd still be logging on day 14.

0 Upvotes

Hey again,

Some of you might remember me - 7 months ago I made my first ever post on Reddit here, complaining about 2 things: logging without wanting to throw my phone across the room, and alarms that never adapt to what I just ate or dosed. A lot of you were really generous with ideas - xDrip+, Juggluco, Gluroo, the whole DIY looping rabbit hole. Thank you, honestly šŸ’œ

Sadly none of it fit my setup - iPhone, Libre, and I don't want to switch to Android or solder myself into a rig šŸ˜… So I did the slightly stupid thing I said I might do at the end of that thread and built it myself.

First - the thing I got wrong.

I was reading that old thread back and most people who replied told me some version of "I don't log, I eyeball it, I'm fine". And these were people 20, 28, 34 years in, sitting at 88-92%. For a while it made me think I was overcomplicating all of it. But then someone in the thread said something that stuck with me - that people actually struggling with their numbers probably aren't the ones posting them. That kinda reframed the whole thing. If you earned the right to run on instinct after decades - this was never going to be for you, and that's completely fair :) I built it for the version of me from year one who was drowning in mental math šŸ˜µā€šŸ’«.

Now the part I didn't see coming.

I was sure the hard problem is the clever alarm - the "I already took insulin, stop nagging me for 30 mins" logic. Nope. The hard problem is embarrassingly boring: are you still logging on day 14. I'm the guy who ate identical breakfast every workday for years just to keep things predictable, supposedly peak discipline - and even I quietly quit logging in every app I tried by week two or so. Every single one šŸ¤¦ā€ā™‚ļø Friction always won and I dropped the process.

So the whole thing ended up being about that one number for me. Not TIR, not A1c - day-14 logging retention. Because if logging dies, everything downstream is dead too, and you're back to an alarm that just tells you that you already lost šŸ’€.

Where I landed: I've been logging consistently for around 6 months now, since I started building it. Obviously take it with a grain of salt - I'm the guy who built the thing, so probably the most biased tester alive 🤣 One data point, not proof. But it's 6 months longer than I lasted with anything else and I think I know why.

Funny thing - it's not voice. I assumed talking to it would be the killer feature. In practice what actually made it stick was making the common stuff nearly free: my long-acting is 1 tap because it's always the same. Fast-acting is a tap into recents. Food - I make photo, then select from recents and adjust the portion, because it remembers what I ate before. Voice stayed as a backup for when I can't make photo and need to describe the food somehow. So photo + recents does the heavy lifting. I guess the win wasn't some clever input method, it was removing those 10 seconds of thinking before every entry.

And the actual payoff wasn't a glucose number. It's that I stopped eating the same breakfast every day :) That rigidity was the thing I hated most about all of this - the "same food at the same time forever" life that a couple of you flatly said you refuse to live. And you were right to. Once logging stopped being a chore I could eat different things again and still understand what's going on. I think that's what I was actually chasing the whole time and didn't realise until it happened.

It's on the App Store, iPhone only. It's a logging companion that adds context to your CGM data - it doesn't dose you and doesn't tell you what to do, you stay fully in control of every decision. I'm deliberately not putting the link in the post because I don't want this to turn into an ad. If you actually want it - say so and I'll drop it in the comments. That's genuinely not why I'm here :)

What I'm here for, and I'd really appreciate blunt answers:

  • If you tried a logging app and quit - where exactly did you drop off? Day 3? Day 14? What was the moment it became too much?
  • What would have to be true for you to still be using it?
  • The same-meal thing: anyone else eating same food on repeat mainly to stay predictable? Would you break out of it if logging was effortless, or is the routine its own kind of peace?

Thanks for reading. Last time this place gave me way more than I expected 😊 ā™„ļø


r/diabetes_t1 16h ago

If anyone on Omnipod 5 app ever cant take insulin because its says sugar is HIGH when it isnt? Restart the phone!

3 Upvotes

This just happened, and the Insulet rep just wanted to tell me to put it into manual mode, then go to bolus and enter in carbs. I told him over and over, I already turned off automated and put into manual, i press the bolus button and it just says your sugar is HIGH and bolus calculator is unavailable, despite even the omnipod 5 app showing a 230 sugar. This went in a circle because he was completely unable to even process what I was telling him. I hung up and then restarted the phone, and now it all works again.. So lesson learned: if it wont let you enter carbs into calculator for weird bug like this just try restart or force restart of phone. The first thing I tried was force stopping app and clearing cache but that had no affect unfortunately.


r/diabetes_t1 22h ago

Have you ever

10 Upvotes

Have you ever, using a insulin pen. Stuck yourself, then realized you forgot to dial in the units first? Did it twice this week. Arm, had to start over, couldn't dial with one hand. Tonight, in leg, but had two hands to hold and turn dial

Aha glucose 93. Tony the Tiger says it's a Frosted Flakes night. Gotta luv under 100. šŸ˜†