r/ostomy 18h ago

Loop Ileostomy Gave myself my first partial blockage in like a year 🤪

10 Upvotes

I'm feeling mostly better now, but oops. This is the first time I got a partial blockage since my revision surgery last year.

I spent the first two years with my ileostomy being incredibly cautious about food, then started gradually cooking more and sampling small stuff. That gave me a lot of confidence. I couldn't handle any fresh fruit or veg and I was craving it so much. After my revision, I waited about 6 months before being adventurous. Turns out I could now eat small amounts of berries, nuts, and even lettuce!

So.. I got cocky. I started eating full salads, snacking on fruit and nuts, and having small bites of stuff I know doesn't sit well, like cabbage or mushrooms.

Last night I had a delicious cheeseburger with steak fries and a side salad. Before my meal was even over I knew I messed up..! Those fries had potato skins and the salad was fresh arugula. The burger was stacked. I immediately felt painfully bloated but stayed out a few more hours.

Good lord, that night was rough. I felt like a balloon. My stomach was sore and nauseous. Zofran didn't touch it. Intermittent cramps. I couldn't sleep it was so uncomfortable. The worst was how dehydrated I felt but was too full to drink much

I took like 4 showers that night for some relief with the hot water and thought standing might help move things through.

By 8am I called it and took a sick day.

24hrs later I'm still feeling bloated and digesting last night's meal but no longer in pain

I love that I can safely eat more foods but I really have to stick to smaller portions.. I got too confident too fast..

I'm grateful it wasn't any worse and that I have an understanding boss.

... and honestly.. the burger was worth it


r/ostomy 4h ago

Colostomy Curious

7 Upvotes

Does anyone have online Ostomate friends for commiserating? I am a 45 year old Dad of 5 - happily married - active and busy. But sometimes I just need that fellow 40s something parent to whine with on a very surface level… in a similar situation. I feel like if I whine too much to my spouse it probably gets old for her. As a Dad and a husband I feel pressure to seem strong and healthy to care for my family.


r/ostomy 6h ago

Ken/Barbie Butt Barbie Butt Recovery tips?

5 Upvotes

I have barbie butt surgery scheduled in about a month. I already have my end ileostomy and that's great, but the rectum has been in a flare for 10 years and it needs to go. I'm ready, but with a couple of questions.

I tend to sit a lot but I understand I won't be able to sit for a while after surgery. After the first week, did you still lay down most of the day? Did you find yourself standing more?

Are there sleeping positions that are more comfortable during recovery? Back? Side with a pillow? I have maternity pillows, if those are helpful.

How long did it take to get back to moderate activity? Did you find that walking aggravated the wound?

Anything else I should know? I appreciate any advice y'all have.


r/ostomy 15h ago

Reversal Reversal scheduled for next month.

4 Upvotes

So as the title says I’ve scheduled my reversal for August 27th. It’s a bittersweet thing for me. Reversal was always part of the plan and for a while I wasn’t sure I even wanted to, but after a year of thinking about it I’ve decided to go through with it. I never hated my stoma, it saved my life and I’ll always be grateful for that. I’ve found such support in this community and I’m so happy I found this sub-Reddit.

That said, I’m looking for advice from those who have gone through it. I’ve been doing a lot of research and reading so I know all the risks etc. I’m just looking for insight from real life people who’ve experienced it first hand and what helped you before and after the surgery and how to prepare for recovery. Thanks in advance!


r/ostomy 16h ago

End Ileostomy Is ileostomy and Barbie butt surgery too much at once

5 Upvotes

My sister is having surgery to have an ileostomy and she is wondering if she should do the Barbie butt surgery at the same time to just get it over with. I’m trying to help her research things. Has anyone out there done both these surgeries at once? Would love to hear from you. Was it the right choice for you? Any regrets. Please share your advice. Very much appreciate it!


r/ostomy 1h ago

End Ileostomy How bad was the recovery/pain for the rectal stump surgery vs the ileostomy surgery?

• Upvotes

Getting my second and final surgery soon.

Just curious, how bad was the rectal stump surgery in terms of how hard it was to recover / how bad the pain was versus the first ileostomy surgery?

What was your experience?

How long did it take you to recover before you could go back to doing your normal life again?


r/ostomy 4h ago

End Ileostomy Tips for emptying off the toilet

2 Upvotes

Back in April, I was in a car crash and ended up with an ileostomy. My leg was also badly injured and I’m unable to fully bend it and can bear zero weight on it. Up until a few days ago, I was in a neck brace and unable to empty my bag. My partner has been doing for me since getting home.

We’re trying to figure out the best way for me to do this on my own. Does anyone have any idea of how to approach this? For a few more weeks, I won’t be able to stand and do it. He currently empties it into a big medical cylinder we swiped from the hospital but I’m afraid it’s too tall and will slip when I do it solo. Should I try emptying it into something else? And should we move where the opening faces? (Currently it faces outward so it’s easier to access but I know most people face the mouth inwards between the legs).

And I’m not sure I’ll be able to change the bag myself. My stoma loves to just keep on producing, even if I haven’t eaten or drank anything in hours. Any tips would be appreciated!


r/ostomy 52m ago

End Ileostomy ADHD Help

• Upvotes

Excuse me if this has already been asked before, but does anyone have any experience with stimulants with a bag? I was on Adderall before I got sick, but stopped taking it after I got a bag, since it was extended release and would go right through. Does anyone have any tips/ideas on what meds might work best? I have been without this medication for 8 months now and it's honestly been horrible lol


r/ostomy 3h ago

End Ileostomy Skin issues

1 Upvotes

I need some advice I’m a little over a month out from my operation and I am having skin irritation because my stoma like lifts off the skin and there’s a ring under / around it that is getting irritated and breaking down a bit. I was recommended to use aveno skin treatment which I started but I also have a bit of trouble cutting the back perfectly so I also want some advice for that too please help


r/ostomy 13h ago

Products and Companies Any functional alternative uses for Marlen barrier rings?

1 Upvotes

I don't know if the product was enshittified, if the rings were improperly stored prior to shipment, or if it was the age of the rings, but they stopped working for me. When I'd stretch one apart, it would immediately tear. I normally kept one under my boob to heat it up for when I used it, and when they started to tear, I even sealed them in a plastic baggy and submerged them in hot water to soften them. Neither worked, and they still tore. I now use Safe n Simple barrier rings with aloe and zinc.

So now I have a bunch of these Marlen rings that are absolutely useless to anybody because they don't work as intended. It's not something I'd donate because the next person would have the same issue.

Is there something else they might be good for? I really don't expect there to be, but I'm hoping someone is creative enough that I won't have to just trash these.


r/ostomy 19h ago

No Ostomy/Pre-Surgery Colonic inertia

1 Upvotes

Hi all. Tell me what would you do? I have colonic inertia, pelvic floor problems, rectocele repair twice, more hemorrhoid banding than I can count, anal fistula surgery and have now developed fecal leaking. I have had to use laxatives for 50 years. It is to the point that they either don’t work or they give me diarrhea all day. I have so many days I can’t leave the house for one reason or another and I am just tired of it. However, I see an ileostomy has its own set of issues. For one I love to sleep. Not to mention leakage also. But I feel like at least I could leave the house. Give me your opinions. Thank you in advance!


r/ostomy 17h ago

No Ostomy/Pre-Surgery Urgent advice needed

Thumbnail
0 Upvotes