Sorry for the long post, i guess i need to vent. I'm currently on three Lupus meds, and my current rheum believes I absolutely have to feel better. They do help with fatigue noticeably, but some issues are getting progressively worse. I cannot lift my freaking legs. I cannot go up the stairs. My rheum keeps sending me to the neurologist, who usually sends me right back (this time, he send me for a bunch of MRIs) My primary insisted I see a new rheum he for a second opinion, so I did. I thought that a new doctor may switch some meds around, or try something new. I liked the location since it it really close, and i cannot drive too far, my leg gives up and I cannot stand heat, it is literally making me sick for hours after.

I saw the nurse practitioner today, who didn't ask for any symptoms or tried to examine me, but asked for the most recent blood work. After a few minutes of going through them she declared i may not have lupus at all. I told her I have every freaking symptom of it. I pointed on old tests where my dsDNA was flagged, and she argued it was pretty low, and it is negative now, so it is good. It is good because I am on three meds for years, I told her that. ​My joints are swollen, im in level 7 pain lately, I cannot use my left hand since my fingers look like sausages, I'm stiff like a piece of wood, I'm feverish all the time, I have rashes on my face and all over my body, my brain fog is so bad that i got lost on the way to their f-ing office in the area i drove tons of time, but my blood work is great, so I am completely and utterly healthy!

I directly asked her, if it is not lupus, what is it, then? Could it be miositis, since i got specific antibodies for it? She started saying that it could be anything, since on the panel only one miositis marker was flagged, but went silent when I again asked her , if she can name a specific condition. She only mumbled about waiting for the MRI results.

Surely, I won't go back to that office ever again. They set an appointment, but i am cancelling it. I really need to find a doctor in my area. At this point, I just don't have any strength to do it again., I went through years of trying to get a diagnosis and treatment, and the waiting game crippled me. I guess I will start looking again, tomorrow. Please wish me luck.

I've been diagnosed with lupus for almost 3 years now, but these spots have only started showing up in the last 3 months or so.

They start off as dry spots (almost all are circular) anywhere from my fingers to my shoulders, and then they turn into white spots. When I get really warm or when sun hits them, they get red and sometimes slightly raised, then fade back after I've cooled down. The pics included are about an hour after being in the sun and heat, vs this morning when I haven't been exposed yet.

They don't itch or hurt, they're just there and making me nervous. I've had tinea versicolor before and it doesn't act the same. I'm still a month away from my dermatologist appointment I asked for 2 months ago, so I'm just wondering if anyone has an idea of what it could be!

So I am a diagnosed lupus. I occasionally get Livedo like lace pattern on my thighs, knees and part of upper shin. It's not related to any weather change. Perhaps more has to do with how I am feeling physically . Like I was at work yesterday feeling crap. I went to the toilet and noticed how horrible my legs looked. They stayed the same till after I rested and had some nsaids. I was wondering what everyone's take it. I am not even sure if its Livedo.