Diagnosed last month after about 6 years of thinking I only had a skin issue causing itching (prurigo nodularis). I’ve heard that a lot of people with PSC also report issues sleeping, so I’m wondering what does that actually look like for you? Any luck remedying it?

I also have diabetes Insipidus which means I don’t concentrate urine without meds, so I have been getting up to pee at least once a night for 20 years. But in the last couple years it’s to the point where I wake up every 2 hours on an average night. Good night of sleep means I sleep deeply for those 2 hours and bad night of sleep is more restless.

My therapist asked if I wanted to be referred to a psychiatrist for sleep meds & for some reason I am hesitant. Maybe I am pessimistic that it will ever get better & don’t want to be dependent on yet another medication. Would love to hear your experiences.

Hi. My daughter had very high liver labs and very active UC. She is 15 now. A little over a year ago, she started taking Oral Vancomycin. 1500mg a day. Two 250mg capsules from ANI three times daily.

Well, within a month, her UC went into remission. Within a couple months all her liver labs normalized. Needless to say, as a single father whose has raised her full time, I can't express enough how massive the blessing this was. She has grown and thrived and lived a normal life since.

However, my pharmacy Osco just notified me they will no longer procure the ANI brand (because it costs too much). I am going to try to seek out other PHarmacies. While I know there are other brands that have worked, I also have heard there are some that don't. Things have been going so well, I am very concerned about switching. I don't want to switch what is working so well.

Are there any in this community that have experience in this? What are the known brands of Oral Vanco that are effective just in case I have no choice?

Is anyone on the liver transplant list? How long have you been on it?