I have done every treatment for Bartonella around the sun including Moyazeni protocol (Rifabutin, Clarithromycin), DDDCT, HDDCT, MB, TCM, etc. and nothing has worked as well as Brownstein protocol using 50mg a day of Lugol's Iodine solution, it works. Give it a try for yourself and experience the results. Not sure why in-for-the-long-run got banned by admin, but he's right.

So I finished my 4-week doxy course a week ago after we caught it early (in first two weeks, but had multiple EM rashes). I got bit in a pine forest in lithuania. in sandals. and bare legs. because I’m the smartest person alive. I was on here whining a week ago that I don’t feel much better.

It’s so much worse now. I can barely walk on my feet because they’re so sensitive, but weirdly theyre worse when I’m lying down. I’m so tired. I’ve never been so tired in my life, it feels like my body is about to just give up on itself. I can’t do shit without having to lie down for a while, I’ve been trying to resume work and I’ve just been completely wiped. I hid in the bathroom for 15 minutes today just to sit on the floor and breathe.

I’ve been slowly getting worse over the course of this week and idk what to do. I’m in the UK, there are no urgent-appointment llmds here. I had a lyme blood test done after ten days of antibiotics and it came back negative, but I’m taking this with a hefty pinch of salt because we were still within one month of the bite, AND had been treated for ten days. BUT I think my doctor is going to take this at face value. I will call her tomorrow anyway, but I’m fully expecting to be turned away or retested before they give me anything.

I’m scared, I don’t want this to get worse. I’ve only been back in work for a year after I developed chronic migraine, I can’t take serious time off. I have my apprenticeship work-based project coming up, I finally had everything back on track

Is there a reason to eliminate dairy from your diet? I am doing no sugar, no carbs. I know it affects doxycycline. I am only on Bactrim, Clarithromycin, and cefdinir. Flucanozle only once a week.

started taking Rifampin two days ago (2 x 300 mg); I’ve had mild intestinal cramping and gas, and as of today, severe diarrhea. I don't know what to do or which medication to take to stop the diarrhea (one that won't interact with the Rifampin). Should I stop taking the Rifampin? Should I cut the dose in half? Please help.

I was just diagnosed with anaplasmosis caused by a black legged tick. I was camping when all the symptoms hit me. Vertigo, hot sweats, uncontrollable shaking that led to a panic attack. I developed severe insomnia to where I had to go to the emergency after 4 days of not one wink of sleep. An extreme headache similar to a migraine, but no rise in my temperature when checked,my mind was racing to the point where I couldn’t stop thoughts. I developed a couple nervous ticks. It was crazy

When I went to the ER they drew blood, when I received them the readings were bonkers. My doctor was like wow, These readings are all over the place. My white blood cell count was really low , which concerned him enough that he wanted me to see a blood doctor. In the process of setting up the appt. The health dept. contacted him to let him know the lab had sent them the results, because they were concerned. They informed him that I had anaplasmosis, and to start treating me with Doxy immediately. The bacteria from the bite were gobbling up my white blood cells.

The health dept. contacted me to collect data, and tell me how to get info to learn about it. I had no idea I had been bit. No marks, no bullseye and no symptoms until all of them at once. I believe that tick related illness is going to be a pandemic in rural areas. Those little shits are trouble!

I went to a music festival in Minnesota last weekend and ended up with strange bites on my legs on Friday after laying in the grass. No ticks in sight, and I assumed it was some sort of mite. Started feeling extremely fatigued on Sunday and by Monday/Tuesday I was so achey in my legs, hips, and knees and my lymph node in my groin on the side of the bites was swollen. Next I developed a stiff, sore neck, an alarming headache, and dizziness. Then came the nausea and general feeling that my body is fighting something. I went to urgent care bc I was concerned the marks were not bites but shingles (had it when I was 15). Immediately the practitioner said the marks look like tick bites and I am showing signs of Lyme.

Still unsure and am waiting on blood tests, but so far my experience does not line up with anything I previously knew about Lyme. I thought it always presented with a bullseye rash and the tick had to be imbedded. Even if I don't have Lyme, I've been doing a lot more research, and will be spreading awareness because it is incredibly scary that a bite can go unnoticed and cause such harm.

If it is Lyme, I am feeling very lucky that my symptoms came on so quickly and I am being treated so soon (prednisone for 5 days and a first round of doxycycline while we await results). If it is not Lyme, I am concerned bc my symptoms are so generic and we would be at square 0 lol.

Curious if anyone had a similar experience because apparently the vast majority of people never see the tick or the bite!

Hi,

I cannot tolerate doxycykline because it flares up my gastritis despite eating before taking it, is minocykline better tolerated and less irritating to gastric mucosa? Anyone who had a hard time with doxy but could take minocykline?

Thank you

My daughter has pans/pandas and we've been dealing with infections and mold for 3 years now. Recently she has been having headaches, leg/ankle pain, back/side pain and just feeling off. We had a functional doctor run the vibrant labs and it shows lyme and bartonella. He gave her an all herbal protocol. We don't know exactly when then lyme infection started since she also had mycoplasma last spring. She took azithromycin for almost 2 months and then amoxicillin for the myco but she was having the side pain at the time so maybe there was overlap?

Can we truly get rid of lyme without using antibiotics again? She has been on and off them for the past 3 years for strep, ear infections etc.

What's next after you've done all types of antibiotics both oral and IV.? Some herbs. Now detoxing from mold.

I don't even know what to do next once I'm done detoxing.

Ozone? SOT? More antibiotics? More herbs?

Hopefully they keep researching.

https://apple.news/Av4yqKJdLRNubDCxOSW7wPg

Was asking my LLMD for a blood thinner for ages. I could literally feel how sludgey everything feels in me. She denied. Natto is a biofilm buster and we tried years ago she didn’t warn me it was a buster. Hell. Way too sick for that. Got bit again this May and was admitted to hospital. They found a stroke in my brain. They discharged me with nothing but Xanax LMAO. Took matters into my own hands and ordered a gnarly blood thinner… you may recall my last post where I had zero brain capacity. Well that day I began to take the blood thinner. It’s like night and day. Feels like my brain is getting oxygen and blood again. 2 days in a row I was able to leave bed and run errands and do a small workout. Still struggling to execute cues in Pilates the whole 50 min but I’m in the dang studio again which is a blessing. Just ran a little to get the circulation going. Used to be able to run a lot but haven’t all summer since the new bite - basically was in bed 7 weeks which triggered a LOT of PTSD rage and fear. Anyway I was dumbfounded that something could work so fast and I put myself on a smallish dose. YES I know I am playing with fire. YES I know I need to be monitored but I am long done with my quality of life being in doctors hands. YES I’m aware there are risk. My entire career was in medical and actually swore I would never take the drug I am on due to the risks and better options available - well they’re only available if you have all the right access. I was so shocked I googled how fast a blood thinner can work and it wildly said quite as soon as I feel the difference which is shocking to me. I am MADDDD. Mad I’ve been suffering so long needlessly and maybe this was part of the problem. Lyme coagulates the blood yall!!! If you’ve had an infection in you your whole life your blood is likely THICK AS HELL. Is anyone else working on this issue??? I was a healthy runner weight lifter did all the things and had a career before I got sick - there is no other reason besides Lyme and Covid infections that would make my blood like this. Years ago a Lyme literate Neuro told me I had a lack of blood and oxygen flow to the brain and I just don’t understand why I wasn’t put on something sooner?? Especially since my llmd doesn’t even think the infection is the main issue - she thinks mcas now but I don’t agree. Mcas feels like a mild irritant to me now - in the last everything and anything filled my histamine bucket. Ok enough venting, apologies for the length!!!!

Hi everyone,

I wanted to get your opinions on my situation.

About 2 months ago, I started having stomach spasms, followed by pain in my right rib area for about a week. After that, I developed pain in my right hip. A little later, my left hip also started hurting for about a week, but that pain completely went away, while the right hip pain has continued. Most of my symptoms have been on the right side of my body.

At first, I thought it might be early appendicitis, so I went to the ER in Poland. They performed a contrast CT scan and blood work, but everything came back normal. All of this happened within about 2 weeks.

The only possible exposure I can think of is that I sat on the grass once in May. I never noticed a tick bite or a rash.

Later, my blood tests came back positive for Borrelia IgM, but IgG was negative. They then performed a Western blot, and these were my IgM results:

• OspC Ba – weakly positive
• OspC Bb – weakly positive
• OspC Bg – positive
• p39 – positive
• p41 – positive
• VlsE Bb – negative

What has surprised several doctors is that almost 2 months after my symptoms started, I'm still only IgM positive and IgG remains negative.

I've had extensive testing since then:

• Complete blood work (all normal)
• Contrast CT scan (normal)
• Ultrasound (normal)
• MRI of my spine (normal)
• Rheumatology work-up, which was also normal

The right hip pain actually became much worse after one physical examination, to the point where I couldn't sit comfortably for a while.

Has anyone here had Lyme disease where they remained IgM positive but IgG negative after around 2 months? If so, did your IgG eventually become positive, or did it stay negative?

I'd really appreciate hearing about your experiences.

started taking Rifampin two days ago (2 x 300 mg); I’ve had mild intestinal cramping and gas, and as of today, severe diarrhea. I don't know what to do or which medication to take to stop the diarrhea (one that won't interact with the Rifampin). Should I stop taking the Rifampin? Should I cut the dose in half? Please help.

Basically, I just survived high school. I knew if you were good at stuff and you’re funny you could get by but in reality I was hiding so many parts of myself, including suffering with lyme.

Now the lyme has gone really bad partially because of abusive family dynamics.

I am finally starting to have productive conversations with my parents. We sre going to try to confront how I can deal with this lyme situation.

Anyway, someone I haven’t seen in like 10 years who knows I have lyme, but they don’t know the extent of it because well sometimes this person is very booksmart but kind of not in other ways.

I’m literally managing managing so many thresholds like at the point where if I talk too much I lose my voice tomorrow. If I shake someone’s hand, I hurt my hand. If I type too much on my phone I literally fucking burn out my forearm. They get all knotted for weeks.

And I’m managing a stressful household and this illness.

my friend texted me to hang out. I just couldn’t because I don’t feel well but I was trying to …

you know .. put up a boundary lightly with him.

Long story short, he showed up to my house out of nowhere with two other people and left a note and asked my neighbors if I still live there

and all of this is just making me really upset and overwhelmed.

I know what he did is from a good place, but I also I know human nature and what actually happens when you tell people about the realities of Lyme .

And I also feel like one of the last things you get is the personal freedom to control access to yourself and information.

I want to keep them small the things that trouble me because I think it also just bum them out.

I just feel like if I really want to explain the autonomous nervous system, and all the ways that this disease and affects my body and how that impacts my life I have to do it on my own terms, not pressured into it.

I think some of his behavior is driven by grief because one of our other childhood friends died a couple years ago and then one recently.

He knows I have an illness.

But I didn’t create this world. I didn’t create these darker sides of human nature. How do you create my disease and I didn’t create the situation I have with Lyme disease in my family.

But what I do know is how to survive the day to day. If I just go out and be spontaneous and do all this stuff and it causes severe consequences on my body, there’s not much I can do when my body is wasted because a lyme threshold ceiling collapses and I can’t type or talk or mive for four months..

I want to send a text putting up a pretty good boundary of like don’t just come to the house again, but like I love you I don’t know when we’ll hang out in the future, but just respect that please.

Am I being an asshole? I don’t know.

I got diagnosed with Lyme last week. Pulled a tick in Switzerland and developed a bullseye rash 30 ish days later. I work outside in the sun so opted for Amoxicillin instead of doxycycline but I’m wondering if that was a bad choice. My first priority is clearing the disease. Should I switch over to doxycycline for 28 days instead of amoxicillin?

My daughter has had Lyme + coinfections for 12 years, since she was 10. Six months ago she started sleeping more than usual. Her doctor said that this was normal; her body is fighting the infections. Now she is sleeping 20 hours a day. She’ll sit up to eat meals, then she’ll go back to sleep.

She was on antibiotics, but she was getting really sick from them, probably because she had been taking them for years. So she’s on antibiotics abx break to restore her gut flora.
Currently she’s taking a few DesBio and NutraMedix herbals.

She has started with Tesla light therapy and will begin Rife treatment next week.

Has anyone experienced this?
Has anyone tried Tesla light therapy? Was it effective?
Advice is greatly appreciated!

Started Saturday evening. Wednesday night now. Whatcha think? I never saw a tick.

So I live in Australia. I was in the UK for 10 days. Came back the 10th. I got off the plane (26 hour journey!) and took a nap when I got home and then a shower and found a tick in my arm then. I immediately went to the ER to be safe since the area I visited has Lyme and I have no idea how long it was on my arm for. It didn’t look huge when I pulled it out but who knows. I had a tiny red mark after taking it out.

The did a blood test for Lyme and a culture. Culture came back negative but I’m still waiting for the Lyme result almost 14 days later. And then I have to take another Lyme test.

In the meantime, they put me on 10 days of Doxycycline. I finished it off yesterday and my arm still has a little red bump but nothing grew or spread and I feel fine . My GP is pretty clueless on this though . And the hospital is telling me to wait for the results and to get more blood drawn in a few days. Australia doesn’t have Lyme (so they say…) so everyone seems like they’re winging it tbh.

Does this sound like enough? Should I ask for more antibiotics or wait for results?

After 17 years of mystery illness I got diagnosed with Lyme, Bartonella, babesia, h-pylori, and ehrlichiosis. I started treatment and responded incredibly well, but accidentally got pregnant like 4 months into treatment and obviously had to go off my protocol. That sucked. I restarted treatment after weaning her, and am basically 100% with some mild lingering things, but they don’t affect my quality of life.

My daughter is 13 now, and the suspected she has my same ailments. She’s generally healthy, and not sick sick like I was. But she definitely has some symptoms, and it’s time to treat her. Her stutter that hasn’t resolved with months of speech therapy is her biggest issue, followed by migraines, and heat intolerance. My doctor doesn’t take pediatrics but because she’s 13 now, and he had me as a patient, he’s taking her on.

Our appointment is tomorrow, and he’ll order her the blood tests. I think he uses Great Plaines laboratories, so I’m hopeful they’ll catch if she has anything. (Conventional testing missed my Lyme and co-infections 6 years before I officially got diagnosed.).

Is there anything I can do to stir up the infections so that they’re more likely to be caught? I’d sit her in the sauna, but again, she’s incredibly heat intolerant.

Sounds insane, but I want to put a drop of each of my Byron white formulas in a foot bath for her, so I’m not dosing her, but her skin can absorb a little of them.
I’m not sure if that’s appropriate or not. I formation on that idea of mine isn’t widely available.

I don’t want to get her sick, but I also don’t want to chance missing an infection, even with the high standards of testing. Especially because she’s so miserable with her stutter, and I’m paying out of pocket for the appointments and testing.

Thanks in advance!

GLXG tests are expensive but Dr claims they are reliable, specifically the ISPOT tests that measure T cell response

However, the 2023 VICTORY study seemed to suggest this method produces lots of false positives

Salut, je voulais vous expliquer un peu la situation. Les premières photos, celles que vous voyez au début, datent d’il y a environ 4 jours jours. Au départ, il y a eu deux petits boutons qui sont apparus, et franchement je pensais juste à une piqûre de moustique, parce qu’il m’arrive parfois de faire des réactions cutanées un peu bizarres après une piqûre.

J’avais écarté l’idée de punaises de lit, parce que je dors avec mon copain et, si c’était ça, je pense que j’aurais eu d’autres boutons ailleurs que sur ma jambe droite et lui aussi du coup. Là, pour le moment, je n’ai des boutons que sur la jambe droite, et mon copain n’a rien du tout. Ensuite, un ou deux jours après, la marque violacée est apparue. Et c’est surtout ça qui m’inquiète, parce que je ne sais pas d’où ça vient. Depuis, j’ai l’impression que ça s’étend un peu, et il y a aussi deux petits boutons violacés à côté. J’ai pris des antihistaminiques et mis de la crème sur les boutons, mais ça ne change pas grand-chose.

J’ai aussi essayé de vérifier s’il pouvait y avoir un moustique ou autre, et j’ai mis du répulsif un peu partout, mais je n’ai rien trouvé. Du coup, je commence à m’inquiéter, parce que ce n’est pas du tout la première fois que j’ai des boutons, mais c’est la première fois qu’ils réagissent comme ça. Je me demandais donc ce que ça pouvait être, et surtout si ça pouvait être quelque chose de sérieux comme la maladie de Lyme, même si je n’ai trouvé aucune tique sur moi.

pitié avez vous eu des trucs similaires et si oui est-ce que ça va mieux ?

#piqure

I got bit on Sunday, rash started that night and has continued to grow. Been on doxycycline since last night. ANYWAYS… this is embarrassing to ask and when googled I just got back a random study so heres my weird question… Monday morning I had vaginitis symptoms, and I swear its from the Lyme! I have very few lady parts issues in the past and this does seem like too much of a coincidence if it is not related. Anyone with a similar experience?