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I was just diagnosed with anaplasmosis caused by a black legged tick. I was camping when all the symptoms hit me. Vertigo, hot sweats, uncontrollable shaking that led to a panic attack. I developed severe insomnia to where I had to go to the emergency after 4 days of not one wink of sleep. An extreme headache similar to a migraine, but no rise in my temperature when checked,my mind was racing to the point where I couldn’t stop thoughts. I developed a couple nervous ticks. It was crazy

When I went to the ER they drew blood, when I received them the readings were bonkers. My doctor was like wow, These readings are all over the place. My white blood cell count was really low , which concerned him enough that he wanted me to see a blood doctor. In the process of setting up the appt. The health dept. contacted him to let him know the lab had sent them the results, because they were concerned. They informed him that I had anaplasmosis, and to start treating me with Doxy immediately. The bacteria from the bite were gobbling up my white blood cells.

The health dept. contacted me to collect data, and tell me how to get info to learn about it. I had no idea I had been bit. No marks, no bullseye and no symptoms until all of them at once. I believe that tick related illness is going to be a pandemic in rural areas. Those little shits are trouble!

I got bit on Sunday, rash started that night and has continued to grow. Been on doxycycline since last night. ANYWAYS… this is embarrassing to ask and when googled I just got back a random study so heres my weird question… Monday morning I had vaginitis symptoms, and I swear its from the Lyme! I have very few lady parts issues in the past and this does seem like too much of a coincidence if it is not related. Anyone with a similar experience?

Title: Ongoing neuro symptoms after Lyme treatment — unsure what to think

Hi everyone,

I’m 20 and I’m looking for opinions or similar experiences. I know Reddit can’t diagnose me, but I’m feeling pretty lost and would appreciate thoughts on what could be going on or what I should ask doctors next.

In summer 2024 I started feeling unwell with heavy fatigue and brain fog. I had been in Latvia in May 2024, where there are a lot of ticks, but I don’t remember a definite tick bite.

In August 2024 my mother noticed a large circular rash on my leg. I went to a doctor, but Lyme wasn’t suspected at first. The rash kept getting bigger, and around 6 weeks later I asked my college GP for a Lyme test. I was told it came back positive, but I never got a copy of the result. I was treated with 10 days of doxycycline in November 2024.

After treatment I felt better for about 6 weeks, but around mid-February 2025 symptoms started coming back. My fatigue and brain fog are not as bad as before, but I’ve developed/persisted with neurological-type symptoms.

Current symptoms:

• Tingling in both feet, comes and goes every day
• Skin sensitivity, sometimes clothes feel uncomfortable against my skin
• Feelings of heaviness in different parts of my body, comes and goes
• Random muscle twitches, comes and goes
• Buzzing/painful/unusual nerve sensations in different parts of my body, comes and goes
• Visual snow, especially noticeable against a blue sky
• A lot of eye floaters
• Redness at the back of my throat for around a year, sometimes sore in the morning
• Lymph nodes sometimes noticeable in groin and right side of neck
• Anxiety/stress from not knowing what’s causing everything

I’ve been seen by infectious diseases more than once. They didn’t think I had ongoing active Lyme and felt some symptoms could be part of recovery, especially since fatigue/brain fog improved.

I also had blood tests in Latvia in 2025. From what I understand, they didn’t show active Lyme. One showed borderline Borrelia IgG, later Lyme results were negative. I also had high EBV VCA IgG and low copper/ceruloplasmin on one test. I had been taking supplements/herbs, including things recommended by a herbal practitioner, so I’m wondering if supplements or low copper could be relevant.

Recently while in Germany, my sensory symptoms got worse and I was admitted to neurology for a few nights. They considered neuroborreliosis and did blood tests, nerve tests and a lumbar puncture. The lumbar puncture didn’t show inflammation, and they didn’t find a clear cause. They suggested pregabalin for the nerve symptoms.

I’ve now seen a neurologist in Ireland. He didn’t give a clear explanation but ordered more bloods and prescribed pregabalin, though he said it may only help symptoms and not the root cause. My GP is also sending me for an MRI and testing for possible stomach/reflux-related issues because of the long-term red throat.

I also have an appointment coming up with a Lyme/infectious disease specialist.

What I’m wondering:

• Could this still be related to Lyme even if recent blood tests and lumbar puncture don’t show active infection?
• Could this be post-treatment Lyme symptoms, small fibre neuropathy, nervous-system sensitisation, nutritional deficiency like copper/B12, or something else?
• Has anyone had symptoms like tingling, buzzing, skin sensitivity, twitching and visual snow after Lyme or another infection?
• Is pregabalin worth trying at a low dose, or should I wait until more tests/MRI results come back?
• What should I ask neurology/infectious diseases/GP to check next?

I’m not trying to assume everything is Lyme, but I’m still having symptoms and don’t really know what direction to go in. Any advice or similar experiences would be appreciated.

Does anyone know of an absolute BEAST doctor? I have lyme & all the cos. A parasite issue too BUT I need someone who thinks outside the box (and can run bloodwork) I forever feel like there is a missing link in my case. THANK YOU.

To be honest, I just read some stories on this thread about people who’s body wide nerve pain never has gone away and it’s jsut their life now and I am spiraling about it. Mine has definitely improved, when it flares bad it’s not AS bad as it was last fall when this all started. But hoky shit it still hurts every day. Little spasms everywhere. Throbs, sharp, dull aches, you name it. It’s definitely my nerves acting up.

I’ve always assumed the pain would go away once the infections have been actively treated. Whose pain has gone away? I’ve been treating with herbs for just a few months.