Hit me up with tips and tricks to support my 8 year old.

We saw a gynae today who is confident its IC. We will likely get a scope done for surety. After 4 years of episodic pain that destroys her and anything she enjoys... we are keen to get on top of it.

Has anyone been helped by doing pelvic floor exercises yourself at home.

Hello everyone, I am 26 female. Also, for reference I've never had a UTI before. Back in February of this year I started getting the feeling of needing to pee 24/7 even after I just peed. The urgency and frequency is there 24/7, which then turned into debilitating bladder pain and pressure. I NEVER had the symptom of it burning when I pee, and I still do not now. I went to the ER and my urine sample came back free of infection, no signs of a UTI. But they gave me macrobid to try out to see if it worked. It didn't end up doing anything so I went back after a week, did another urine sample (came back fine again), and this time they gave me ciprofloxacin. This also didn't do anything for me. So I went back a third time and did another urine sample of course, everything was fine again. They told me it was probably stress and gave me solifenacin. It did help me for about 2 weeks, where it made my symptoms a little bit more manageable, but still was super bothersome. Then it all came back in full force and even worse. It also started getting absolutely unbearable during my period. I've been on birth control since I was 19 for really bad cramps because I used to faint due to the pain. Since then my cramps have been little to none, but now they are awful for the whole 7 days I take the placebo pill and even when my periods were bad the cramps only lasted 3 days max. I went to my family doctor and she said she could not do anything basically but she sent in a referral to a urologist. I have an appointment august 7 (thank god) after waiting for 6 months.

I did a lot of research on endo and IC the last few months. I've been doing an IC diet for over 2 months now. I quit caffeine back in feb, I only drink water, no spices, no acidic fruit or other foods, no chocolate, I don't eat out anymore and I don't eat processed food. I just feel the exact same though. I feel like this diet isn't doing anything for me. I also started doing pelvic floor relaxation exercises on youtube and I've been doing those for 2 months about now too. I do find they help me feel more relaxed but again, my symptoms are really not changing. The reason why I started doing this diet because there was 2 different occasions that food made me feel awful. In early june my symptoms weren't so bad for once, I wasn't peeing as much, I didn't have much bladder pain and pressure, and for some stupid reason I thought it would be okay to have a bowl of chocolate ice cream, and 2 hours later I was rolled over in immense pain. And the other time I had 2 glasses of orange juice and I thought I was going to have to go to the ER because of the pain. After the bowl of ice cream I felt like i had one of the worst flares ever, I was peeing every hour and the bladder cramps were so painful I was crying almost everyday, and it lasted like that for a whole month! and even now I still feel like I'm recovering from that ice cream.

I ordered d-mannose and IC well, I've been taking those for 2 weeks now. No difference seen so far. Everything I feel like i'm doing is not working. I'm just really scared when I go to my urology appointment they aren't going to find anything and won't take me seriously. Every time i went to the ER and my family doctor I felt like because I am young it wasn't really a big issue to them and passed it off as stress. I'm very quiet and introverted so it's also harder for me to get my thoughts across to doctors. And it's also hard to explain my symptoms when I am in so much pain, I feel like i'm holding back tears the whole time. I know this isn't stress (or it maybe be influencing it but there is something wrong I know it).

I have been measuring my urine as well because I had to make a voiding diary for my urology appointment. The most I pee at one time is 50ml, every 1-2 hours. I wake up constantly throughout the night to pee, and because of that and that pain I get maybe 4 hours of sleep a night. I am hanging on by a thread at work. My concentration is shot, and I'm always messing stuff up and forgetting things. I’m at a loss of what else I can do to help myself.

Does this sound like IC? All my symptoms match up but I just don't have the burning in my urethra. or could it be something else? Any advice or thoughts are greatly appreciated.

Hi! I’m diagnosed with IC but I don’t think it’s as severe as some people in here. And it’s gotten way better after Amitriptyline. But, there’s still some troubles. I get up 3-5 times every night to go pee. And I think it’s because I’m a light sleeper, so my partner wakes me up on accident. Then, when i wake up, I can’t just go to sleep. I HAVE to pee or I can’t relax, even if there’s barely anything. And sometimes in the day I have to pee 2-3 times in a row to really feel empty. And when I get a migraine obviously I have to drink a lot of water and when it’s hot but then I’m just peeing. All the time! But somehow I’m still grateful that I’m not in debilitating pain. Though I worry all the time that it will get worse. But I still don’t know if my condition ‘counts’ because it doesn’t seem too bad. Maybe it is and I just don’t know what normal feels like. But I dunno, it is what it is. Thanks for reading.

Hi all, I've been dealing with these symptoms off and on since February of this year:

- urinary urgency

- feeling like my bladder isn't empty after peeing

- a sore feeling around my bladder/lower abdominal area

- lower back pain

-- sometimes feeling like absolute crap

- sometimes white tissue-like particles floating in urine (one of the urogynecologists I saw said it's probably lining of my cervix slougihing off. I thought maybe it could be my bladder lining.

I've seen two different urogynecologists. The first one thinks I have genitourinary syndrome of menopause and overactive bladder. The second one thinks I have either IC or Overactive Bladder. She told me symptoms overlapped. The first doctor prescribed estradiol estrogen vaginal cream and Phenazopyridine (the active ingredient in Azo) The second one told me to continue using the estrogen cream and ordered pelvic floor therapy, which I'll start next week.

I have gone through periods of a month or 6 weeks without symptoms and then they come back. I think I'm having a flare now. What do you think? If you do think it's IC , what has helped you? Also, if you don't mind sharing, how were you diagnosed,

Thanks for your help.

Did anyone have a normal Cystoscopy exam before they were diagnosed with IC? If so, what ended up getting you the official diagnosis.

Took it for one day made symptoms a little worse and gave me a massive headache . Stopped taking it . Anyone have a similar experience or think I should give it another go

Have had on and off flare ups since I was about 16 (26 now). I’ve gone about 3 years now managing the flares nicely but I went on holidays about 5 weeks ago, and for some reason I had this huge flare up on the airplane, I am assuming because of the pressure and holding in urine for multiple hours? Anyhow, 5 weeks later and I’m still in agony. 2 rounds of antibiotics done, nothing working, I’ve now been put on mirabegron, a type of muscle relaxant. Anyone tried this before? Really hoping this will clear up and I won’t have to go back for a cystoscopy, the recovery after the last one I had years ago was horrific. Generally just feeling extremely isolated, lonely and trapped in my own body. Havnt been intimate with my partner in almost 5 weeks either. Life sucks man.