Have had on and off flare ups since I was about 16 (26 now). I’ve gone about 3 years now managing the flares nicely but I went on holidays about 5 weeks ago, and for some reason I had this huge flare up on the airplane, I am assuming because of the pressure and holding in urine for multiple hours? Anyhow, 5 weeks later and I’m still in agony. 2 rounds of antibiotics done, nothing working, I’ve now been put on mirabegron, a type of muscle relaxant. Anyone tried this before? Really hoping this will clear up and I won’t have to go back for a cystoscopy, the recovery after the last one I had years ago was horrific. Generally just feeling extremely isolated, lonely and trapped in my own body. Havnt been intimate with my partner in almost 5 weeks either. Life sucks man.

Has anyone been helped by doing pelvic floor exercises yourself at home.

Hello everyone, I am 26 female. Also, for reference I've never had a UTI before. Back in February of this year I started getting the feeling of needing to pee 24/7 even after I just peed. The urgency and frequency is there 24/7, which then turned into debilitating bladder pain and pressure. I NEVER had the symptom of it burning when I pee, and I still do not now. I went to the ER and my urine sample came back free of infection, no signs of a UTI. But they gave me macrobid to try out to see if it worked. It didn't end up doing anything so I went back after a week, did another urine sample (came back fine again), and this time they gave me ciprofloxacin. This also didn't do anything for me. So I went back a third time and did another urine sample of course, everything was fine again. They told me it was probably stress and gave me solifenacin. It did help me for about 2 weeks, where it made my symptoms a little bit more manageable, but still was super bothersome. Then it all came back in full force and even worse. It also started getting absolutely unbearable during my period. I've been on birth control since I was 19 for really bad cramps because I used to faint due to the pain. Since then my cramps have been little to none, but now they are awful for the whole 7 days I take the placebo pill and even when my periods were bad the cramps only lasted 3 days max. I went to my family doctor and she said she could not do anything basically but she sent in a referral to a urologist. I have an appointment august 7 (thank god) after waiting for 6 months.

I did a lot of research on endo and IC the last few months. I've been doing an IC diet for over 2 months now. I quit caffeine back in feb, I only drink water, no spices, no acidic fruit or other foods, no chocolate, I don't eat out anymore and I don't eat processed food. I just feel the exact same though. I feel like this diet isn't doing anything for me. I also started doing pelvic floor relaxation exercises on youtube and I've been doing those for 2 months about now too. I do find they help me feel more relaxed but again, my symptoms are really not changing. The reason why I started doing this diet because there was 2 different occasions that food made me feel awful. In early june my symptoms weren't so bad for once, I wasn't peeing as much, I didn't have much bladder pain and pressure, and for some stupid reason I thought it would be okay to have a bowl of chocolate ice cream, and 2 hours later I was rolled over in immense pain. And the other time I had 2 glasses of orange juice and I thought I was going to have to go to the ER because of the pain. After the bowl of ice cream I felt like i had one of the worst flares ever, I was peeing every hour and the bladder cramps were so painful I was crying almost everyday, and it lasted like that for a whole month! and even now I still feel like I'm recovering from that ice cream.

I ordered d-mannose and IC well, I've been taking those for 2 weeks now. No difference seen so far. Everything I feel like i'm doing is not working. I'm just really scared when I go to my urology appointment they aren't going to find anything and won't take me seriously. Every time i went to the ER and my family doctor I felt like because I am young it wasn't really a big issue to them and passed it off as stress. I'm very quiet and introverted so it's also harder for me to get my thoughts across to doctors. And it's also hard to explain my symptoms when I am in so much pain, I feel like i'm holding back tears the whole time. I know this isn't stress (or it maybe be influencing it but there is something wrong I know it).

I have been measuring my urine as well because I had to make a voiding diary for my urology appointment. The most I pee at one time is 50ml, every 1-2 hours. I wake up constantly throughout the night to pee, and because of that and that pain I get maybe 4 hours of sleep a night. I am hanging on by a thread at work. My concentration is shot, and I'm always messing stuff up and forgetting things. I’m at a loss of what else I can do to help myself.

Does this sound like IC? All my symptoms match up but I just don't have the burning in my urethra. or could it be something else? Any advice or thoughts are greatly appreciated.