r/EctopicSupportGroup Jun 08 '22

ADMIN ANNOUNCEMENT

82 Upvotes

Hey folks, please stop reporting to me the positive pregnancy tests, or posts about pregnancy after ectopics. Let people celebrate their joy.

Hwoever, if you want to post such a pic, please make sure you use a content warning so those who would find it upsetting can scroll past.


r/EctopicSupportGroup 9h ago

the signs were there

3 Upvotes

Mid June I found out I was pregnant after a miscarriage in December 2025.
I had my first appointment in July 6th and was around 5w5d, quite early for a first OB appointment but I wanted to check because I was spotting. We couldn‘t see any gestational sac and my OB said that it just might be too early so we did some blood tests. My HCG was around 1000 and two days later, the numbers doubled so my OB confirmed the pregnancy.

Initially, my next appointment would have been on July 30th, however I started spotting and passing blood clots on the July 17th and the following days, so I called my OB and was able to go for another check on 20th. In the ultrasound we still didn‘t see any gestational sac where it should‘ve been, which was alarming and she saw something near the left ovaries. Had to do some blood tests again, however we would‘ve gotten the results only one day later because of logistics. My OB also told me to go to the hospital the minute I feel I have pain in the lower stomach, since she suspected an ectopic pregnancy.

I was already feeling anxious and nervous after the appointment, so we went to emergency that evening. Had more ultrasounds and did more blood tests, turns out my HCG has risen to 18,000 so they then confirmed what my OB suspected, an ectopic pregnancy.
Had to stay the night and had my emergency surgery the next morning. I was already at 7w5d by then, so it was alread quite developed and they had to remove the damaged left tube.

The main and most important lesson I have learned from this is that it‘s crucial to listen to your body and gut feeling. In hindsight, I should‘ve asked for more appointments after the HCG tests were done, to check that everything is still alright. I‘m just glad and relieved that I was able to do the surgery so fast, since it can get lifethreatening and that the doctors and staff in my hospital were so kind and supportive. In my case, the shock from the last few days have helped me with overcoming the grief.


r/EctopicSupportGroup 5h ago

I'm exhausted

2 Upvotes

I'm so tired of feeling like a constant ticking timebomb. I am 20 days post MTX - here's my HCG trend.
Day 1 - 3000

Day 3 (went to the ER for pain - was released) - 6600

Day 4 - 6505

Day 13 - 2547

Day 20 - 1550

I'm still absolutely terrified of rupturing. I had terrible cramping/ bloating/ pressure over the weekend and told the doctor about it today and they did not give me an ultrasound as I have also been constipated so they said it sounds more like constipation pain and that they are looking for continuous pain rather than pain that subsides. I did, however, get a complete blood count done and my levels are normal (and higher than what they were on Day 3 when I went to the ER). I'm just so freaking tired of feeling this way. I'm overanalyzing every single pain and I'm scared to live my normal life. I am travelling tomorrow (I am Canadian and my husband is a US citizen, he lives 5 hours away from me and we just bought a house prior to all of this happening so we planned our housewarming party also prior to all of this happening) and I'm just still so nervous. I'm mainly just venting but I would like to hear some reassuring stories of MTX and if you had any pain during the process but did not rupture and how long it took you to get to 0. I've read so much about women rupturing week 2-3 after their MTX shot and it scares the heck out of me.


r/EctopicSupportGroup 23h ago

Tube removed. Feeling really let down.

17 Upvotes

Currently on the ward after having my left tube removed and internal bleeding fixed.

I was 5weeks pregnant, I had been having spotting and cramps on and off for just under a week, along with not having a bowel movement for 7 days. I was on holiday abroad, so I decided to call the early pregnancy unit as soon as I returned. This Friday just passed, I called the early pregnancy unit, and they told me to come in. By the time I arrived, I was in agony and fell into the waiting room. They quickly took me in, gave me paracetamol whilst I writhed around in pain.

They were concerned my pregnancy might be ectopic, so they took some bloods to check my HCG (it’s 2,700) and sent me to the surgical assessment unit (sort of like CDU, not a real ward but a sort of waiting area).

For nine hours I was in agony, and when I say agony I mean it. I’m really good with pain, and I was screaming. Other patients were worried about me. During this time, I begged, and begged for some sort of laxative as I still hadn’t moved my bowels, my stomach looked 6 months pregnant and I was really worried my bowel would rupture.

I was pretty much ignored, and told to stop worrying. They finally offered me lactose in the late evening, which I thanked them for through tears. The pain continued to get worse, and they gave me an enema. This didn’t work, no bowel movement at all. Nobody ever mentioned that bowel trouble is a symptom of ectopic pregnancy.

When the doctor finally came to see me (it had only been nurses at this point) she attempted to check my cervix with a speculum, as she ‘didn’t understand’ why I was in so much pain. It was agony, and she had to remove it. She told me they were going to admit me to a ward for overnight observation. On the ward, I continued to cry and writhe in pain with nothing but paracetamol. I didn’t eat, I took a spoon of some warm custard they offered me and threw up immediately. The next morning, after an awful night, they gave me some suppositories. These also didn’t work, and it’s now 10 or so days since I’ve been to the loo other than overflow liquid.

Now the doctor comes to see me again, and tells me they can’t scan me as they don’t do pregnancy scans on the weekend. So they discharge me in agony, tell me to try ‘see if a spicy curry helps’ and I’m sent on my way, with the promise of a phone call Monday for a scan. My weekend was about how you would imagine.

Early pregnancy call me to come in for a scan Monday at 11.30am. Once I get there, my pain is worsening, and after an hour delay they finally perform transvaginal ultrasound. No pregnancy is found in my uterus, and she struggles to look properly because in her words ‘my bowel is all over the place’. My bloods are retaken, and I’m sent back to waiting room. I sit there doubled over, until a nurse says she is concerned and takes me somewhere to lie down.

After 2 hours, I’m finally sent back to the surgical assessment ward. My HCG isn’t increasing as it should. They ignore my worries about my stomach pain. Hours later, the consultant finally comes to talk to me. Turns out, the scan I had earlier showed that my abdomen was full of blood, and my tube had already ruptured. I was told it was too late in the day for surgery now, so they would admit me to a proper ward and be sent to theatre the next morning. It’s also at this point she starts asking me about ‘funeral arrangements’ and whether they have my permission to smear my pregnancy on a slide in future for clinical reasons. I’m so very upset, exhausted.

I’ve had my surgery today, and they took the tube. My incision is gnarly and it’s left me with a ‘shelf’ similar to a c-section. They gave me fentanyl, which causes constipation, which you think would make them consider a laxative. They didn’t. Since then, they keep throwing morphine at me, which also causes constipation, and I’m having to refuse as they won’t give me a laxative no matter how much I beg. The doctor has ignored the nurses requests all day long. Nobody has come to discuss my surgery results, I managed to tease some information from a nurse. Im taking myself home tomorrow, and I’ll put in a complaint.

I’m not really sure why I wrote this, and I’ll be surprised if anybody wants to read this entire essay, I’m not sure of the rules so if this must be deleted that’s ok, but I think I just really needed to write this down and process it.

I’m so very sad.


r/EctopicSupportGroup 8h ago

HCG Testing?

1 Upvotes

Helloooo dear r/ectopicsupportgroup friends - trying to conceive again and wondering how you all are monitoring HCG properly? I lost my left tube with an ectopic last December (the 31st), but we are trying again and I maybe saw the faintest line on the test? Looking to get regular Hcg monitoring just in case and really have no idea
how to do that besides urgent care.


r/EctopicSupportGroup 11h ago

Contact Dermatitis from Pads

1 Upvotes

Hello,

I made a post the other day about a possible ectopic pregnancy looking for advice. I did, in fact, have one… or still do… I received methotrexate 3 days ago. I have been bleeding, but not a ton. Of course I’m using pads. Well I woke up yesterday morning with an awful, angry, itchy stripe where the pads sit up against my body. I think they gave me contact dermatitis. I already switched to 100% cotton topped pads. Knowing how my skin is, though, I’ll probably have this angry, itchy stripe for at least a week or two. Has anyone else experienced this? Is it safe to use any creams or medications for this? I feel like I’m going to scratch my skin off. This definitely is adding insult to injury :(


r/EctopicSupportGroup 12h ago

I’m 5 weeks pregnant and my oura ring temp dropped. I’m freaking out. Is this normal? 😭

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1 Upvotes

r/EctopicSupportGroup 22h ago

Thank you and help navigating trying again.

6 Upvotes

Hi everyone,

First, I want to thank everyone who’s shared their story on this page. The kindness, support, positivity, and realness has helped me tremendously. I’m so thankful for this page.

I’m wondering if anyone can help me navigate the emotions I’ve had since my ectopic, which happened in October of 2025. I was 6 weeks along when I started having spotting. I immediately called my doctor and they told me it could be from running/exercise. She was not concerned but had me come in for bloodwork to check my hCG levels. The night after I went in for bloodwork work, I ended up in the ER due to extreme pain and the bleeding had gotten really bad… that ER visit was super traumatizing. I knew I was likely miscarrying. I remember laying there in fear during my ultrasound when the ultrasound tech said “you know, in Europe we tell women they need to rest and their feet up for first 12 weeks of pregnancy.” My mind immediately filled with guilt, as I am a busy person and tend to always have a lot on my plate. I still think about writing that ER, as I do not think techs should be telling patients what to do. Esp in such a vulnerable and horrible situation of fear! Anyways …

The ER Doctor got the results and told me it’s likely a miscarriage but that’s all he could tell me and said I should follow-up with my OB Monday. I decided not to wait and called my doctor Saturday. She said it sounds like I passed it but we’ll double check my hCG levels Monday. Unfortunately, I didn’t quite make it to my appointment Monday for bloodwork and ended up in ER. This is when they found the ectopic. I was given methotrexate and my doctor had said she’s only had one patient it hadn’t worked for. Two days later I ended up back in the ER with a ruptured tube and internal bleeding. It’s the scariest moment when you’re lying in a hospital bed, wondering if you’ll see the sun again.

Luckily my surgery went well. While I healed physically, mentally I’m still really struggling. We just started trying again and I thought this month would be it. I had positive ovulation tests and I’m in a better work environment, my stress levels are lower, I’m taking recommended prenatal supplements etc. I guess my question is, how do you combat depression from negative pregnancy tests , while simultaneously being terrified of being pregnant again. I’m 37, almost 38. My husband is 40. I also have a hard time hearing the “chatter” of people blurting things about like “after 35 you’re at high risk for genetic disorders.” I don’t think people have intentions to be inconsiderate, but my gosh, when will people realize we know the risks?! We don’t need to hear you blurt out statistics! I’m dealing with a lot of guilt for waiting, but we also weren’t ready years ago.

I find all of these thoughts to be overwhelming. I’m sorry for the rant. Hope this helps someone else know they’re not alone if they’ve felt this way too.


r/EctopicSupportGroup 16h ago

HSG and confusion

1 Upvotes

I am so confused. And hoping someone can provide any sort of similiar experience or advice?

Several years ago I got an HSG because my doctor recommended for fertility testing (before trying to conceive). It showed both tubes closed? I got a second opinion with another Dr one month later, fully open. The second report stated “bilateral normal fallopian tube spillage.”

Any experience with this?

Now that I want to conceive, I am getting a third opinion but anxious to see what they will show :( if the most recent one showed open, hopefully it still is?


r/EctopicSupportGroup 18h ago

Questions post-op

1 Upvotes

Hey, so I'm not sure how to start this but I was about 2 months pregnant when my left tube ruptured while I was at the grocery store. I didn't even know I was pregnant till a few days before it ruptured but I'm just having a hard time coping I guess? I didn’t necessarily want a child but after hearing from the doctor that my left fallopian tube had to be completely removed and from my family that I have basically halved my chances of having children in the future. I just feel bad. When I think about what could've been. I feel like I've completely ruined any chances I have at having children, a family. One of the nurses was so sweet and kind though. She told me that though this is something very traumatic that's happened, plenty of women go on to have successful pregnancies with just one tube. I don't think I'll ever forget her. I've been out of the hospital not even a day and I just feel stir-crazy. I have to depend on the people around me and I just feel useless. I'm rambling, I just wanted to know the following:

1) Is it natural to feel some burning sensation where the tube was removed? I only really experience it whenever I stand for too long and if I used my abdomen to move out of bed.

2) Can I smoke? I wanna smoke 🍃 bad just so that I don't have to take the painkillers prescribed to me since they cause constipation.

3) Is there anyway I can fix my lower belly from hanging? Since I lost 2 liters of blood and I passed out 3 times and the doctors couldn't tell where exactly the ectopic pregnancy was located they had to perform emergency surgery. Basically a cesarean cut along my lower abdomen.

4) How can I tell if my insides are bleeding again? I'm not saying it is or that I feel a particular type of sensation, I just want to keep an eye out in case I need to head to the hospital again since the whole experience was pretty terrifying.

Even if you can't answer any of my questions, thank you for taking the time to read. Literally only found this sub today and I've been bawling my eyes out. I'm glad I've found people who can relate to what I've been feeling.

Thank you♡


r/EctopicSupportGroup 1d ago

Ectopic Surgery , which supplements should i use for regaining my energy and future pregnancy

2 Upvotes

Hi everyone, I have a question and I would really appreciate your advice.

I had an ectopic pregnancy, and in May 2026 my fallopian tube ruptured. I had emergency laparoscopic surgery after that. It is now July 2026 but I still don’t feel like my old self. I feel very weak, tired, and I have body aches. My energy and strength have not fully returned.

I want to know which supplements or multivitamins helped you after an ectopic pregnancy/surgery or after major blood loss. What should I take to rebuild my strength, improve my energy, and support my body before trying for another pregnancy?

Are there any healthy supplements (for example iron, magnesium, CoQ10, prenatal vitamins, etc.) that you would recommend? I would love to hear your experiences and suggestions.

Thank you so much.


r/EctopicSupportGroup 1d ago

My hcg went from 57 at 11 DPO to 181 at 13 DPO and 1300 at 16 DPO. What you think? could this still be ectopic? Or much likely a normal pregnancy? I had a previous ectopic last March.

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4 Upvotes

r/EctopicSupportGroup 22h ago

HSG dye spill but 1 cm right hydrosalpinx

1 Upvotes

Hi all, hoping for some insight on my HSG results from today. A little background on myself, last May (2025) I had an ectopic where my left tube was removed. I've had 2 chemicals since then and finally decided to speak to an infertility specialist last month. I've had all my blood work done, everything came back normal. I had my HSG done today and had some unusual results. I had a dye spill on my right (remaining) tube, but also a 1 cm right hydrosalpinx. Everything I've looked up seems contradictory. Looking for anyone that's had similar results, thanks!


r/EctopicSupportGroup 1d ago

Fear post-cornual ectopic.

3 Upvotes

I posted recently about my wife going through a second ectopic and now that we're a week out we've come to understand from post-op notes that it was cornual, and we're learning what that means.

Best case that means we can try again in months, which are months our possible child will lose with my terminal father-in-law which sucks. We're also just scared of it happening again.

The operating OB went on vacation which means we don't get our post-op appointment until late August, and my wife is absolutely terrified that this will happen again. Nothing I've read has made me feel any better with most papers amounting to a shrug. Quite reasonably, that's super scary to my wife, who very much does not want to die and at least doesn't want this to happen again.

I'm kind of just yelling into the void here, but if anyone has any experiences either way I'd love to hear them so maybe we don't feel so alone in the dark.


r/EctopicSupportGroup 1d ago

To start IVF or not? Looking for similar cases

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1 Upvotes

r/EctopicSupportGroup 1d ago

If you lost a tube, did you notice ovulation cramps on the intact tube side going forward?

1 Upvotes

r/EctopicSupportGroup 1d ago

Ectopic diagnosis

3 Upvotes

Hello everyone, I just need some advice from people who have experienced this.

I’ve been diagnosed of a possible ectopic today at my 5w+4 scan. I’ve cried for hours. They said they can see a mass near the tube and nothing in the uterus.

HCG is currently 13000. Last week, it started at 15, then 65, then 167.

I’m devastated, I’m still in denial and thinking maybe it might be a misdiagnosis?😭

How did people cope with the loss. This is my first pregnancy as I’ve never tried before and I’m so heartbroken that I’m losing my baby. HELP😭


r/EctopicSupportGroup 1d ago

Ectopic vs miscarriage

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2 Upvotes

I am taking letrozole for fertility and at 14dpo I had a positive urine test (photo). Then at 17dpo I started having heavy bleeding similar to a heavy period. Had labs drawn and my hcg was 18 and progesterone 2. We assumed miscarriage and the following day I was sent to the ED for severe vaginal bleeding and cramping. I was soaking 2 pads an hour and passed probably 20 quarter sized clots. Hcg at the hospital was 27 and nothing was visualized on the transvag ultrasound. They sent me home when the bleeding stabilized and I have had slowly decreasing bleeding similar to a period. Yesterday (technically would be 5w 2d) I had a repeat hcg and it was 25. Also took another urine test which is the second photo.

I feel concerned that the levels aren’t trending down despite all this bleeding. My OB keeps saying it’s likely just a miscarriage but we can’t rule out an ectopic. I feel like I’m going crazy with health anxiety and the possibility of an ectopic. Does this sound similar to anyone else’s ectopic experience? I never thought I would be hoping for a “simple” miscarriage.


r/EctopicSupportGroup 1d ago

Feeling heartbroken after an ectopic pregnancy. Looking for others who understand. 💔

13 Upvotes

Hi mamas 💕 I’m reaching out because I’m going through something I never expected and I’m looking for some support from women who may have been through something similar.

I recently found out I had an ectopic pregnancy and had to go through treatment. My heart is absolutely broken, and I’m trying to process everything physically and emotionally.

If you’ve experienced an ectopic pregnancy, I would really appreciate hearing your stories what your recovery was like, what emotions you experienced afterward, what you wish someone would have told you, and what I should expect in the weeks ahead.

I’m not looking for medical advice, just hoping to hear from other moms who understand this kind of loss and can share some encouragement. Thank you 💕


r/EctopicSupportGroup 1d ago

The furthest you went with an ectopic pregnancy

9 Upvotes

Hi, everyone! Can I know more about your experience with ectopic pregnancies? I’m looking for more personal experiences and not the generic explanations of what an ectopic pregnancy is.

What were your early symptoms before rapture? How long can an ectopic pregnancy last? Where was your ectopic? And how long did it take for you to get pregnant again?


r/EctopicSupportGroup 1d ago

Progesterone

1 Upvotes

I’m hoping that someone can maybe answer my curiosity. My backstory is… it took us 8 months to conceive my son and I had a very healthy pregnancy minus some bleeding around the 6 week mark. Flash forward to now trying to conceive our second baby. I had a miscarriage at around the 6 week mark and then a couple months later I had to have surgery to remove an ectopic. I average a 10 day luteal phase. I track my cycle with my oura ring. I’ve asked multiple doctors along the way if progesterone is needed to help support a longer luteal phase and maybe through the first trimester. Every single one is reluctant and basically say it’s not really necessary. I’m not disagreeing with them because they’re clearly the experts, but I guess I’m just curious if anyone can give me more of a reason why they would be reluctant?

Thanks!


r/EctopicSupportGroup 1d ago

Ectopic and discovered endo

4 Upvotes

Hi everyone,
After reading many of your stories I would like to place mine here and hear some of your feedback and experiences.

My first pregnancy resulted in an ectopic that had to be treated via laparoscopy yesterday. They had to remove my right tube because it was showing signs of slow rupture and I had some free blood in the area. While cleaning up and removing the ruptured tube they also detected endometriosis, they took out a sample that they will analyse.

I didn’t know I had endo, and due to this being an emergency surgery for the ectopic removal specifically they didn’t go about and check other areas for endo scars.
On top of the shock about this happening on our first pregnancy, I wonder what best to do now. I am terrified of a new pregnancy resulting in an ectopic as well, wonder at the same time if jumping to IVF is too early. Me and my husband are fertile as per my hormonal checks and his spermiogramm literally one month before getting pregnant, 34 and 33yo, cook at home and eat no processed food, no alcohol or drugs, sport regularly.


r/EctopicSupportGroup 2d ago

Testing sucks

17 Upvotes

Every month when I get my period, I still have to take a pregnancy test to confirm I'm not pregnant because I had a period when I had the ectopic.

This sucks.


r/EctopicSupportGroup 1d ago

General success stories and hope? (success stories with one tube + mild endo?)

2 Upvotes

First pregnancy, got my right tube emergency removed 3 days ago as it slow motion ruptured. During the surgery, they did find some mild endo lesions near my bladder and bowel, as well as 1 definitely benign cyst, and another smaller, likely benign cyst. The first 2 days were an achy, sleepy blur. Actually, the physical pain wasn't so bad. Day 3 (today) my body realizes: Oh, so we aren't pregnant anymore *cue super heavy period and very painful cramps and awful sadness*. It was like the peak of a period but lasted 15 hours straight. Even my ol friend naproxen sodium could not keep the cramps totally under control. Anyway, I am feeling much better physically end emotionally thanks to loads of crying. I don't want to stay in the dark forever, I want some hope to enter back into my life. Anyone have a better perspective down the road? Thanks!


r/EctopicSupportGroup 1d ago

Thank you and help navigating trying again.

2 Upvotes

Hi everyone,

First, I want to thank everyone who’s shared their story on this page. The kindness, support, positivity, and realness has helped me tremendously. I’m so thankful for this page.

I’m wondering if anyone can help me navigate the emotions I’ve had since my ectopic, which happened in October of 2025. I was 6 weeks along when I started having spotting. I immediately called my doctor and they told me it could be from running/exercise. She was not concerned but had me come in for bloodwork to check my hCG levels. The night after I went in for bloodwork work, I ended up in the ER due to extreme pain and the bleeding had gotten really bad… that ER visit was super traumatizing. I knew I was likely miscarrying. I remember laying there in fear during my ultrasound when the ultrasound tech said “you know, in Europe we tell women they need to rest and their feet up for first 12 weeks of pregnancy.” My mind immediately filled with guilt, as I am a busy person and tend to always have a lot on my plate. I still think about writing that ER, as I do not think techs should be telling patients what to do. Esp in such a vulnerable and horrible situation of fear! Anyways …

The ER Doctor got the results and told me it’s likely a miscarriage but that’s all he could tell me and said I should follow-up with my OB Monday. I decided not to wait and called my doctor Saturday. She said it sounds like I passed it but we’ll double check my hCG levels Monday. Unfortunately, I didn’t quite make it to my appointment Monday for bloodwork and ended up in ER. This is when they found the ectopic. I was given methotrexate and my doctor had said she’s only had one patient it hadn’t worked for. Two days later I ended up back in the ER with a ruptured tube and internal bleeding. It’s the scariest moment when you’re lying in a hospital bed, wondering if you’ll see the sun again.

Luckily my surgery went well. While I healed physically, mentally I’m still really struggling. We just started trying again and I thought this month would be it. I had positive ovulation tests and I’m in a better work environment, my stress levels are lower, I’m taking recommended prenatal supplements etc. I guess my question is, how do you combat depression from negative pregnancy tests , while simultaneously being terrified of being pregnant again. I’m 37, almost 38. My husband is 40. I also have a hard time hearing the “chatter” of people blurting things about like “after 35 you’re at high risk for genetic disorders.” I don’t think people have intentions to be inconsiderate, but my gosh, when will people realize we know the risks?! We don’t need to hear you blurt out statistics! I’m dealing with a lot of guilt for waiting, but we also weren’t ready years ago.

I find all of these thoughts to be overwhelming. I’m sorry for the rant. Hope this helps someone else know they’re not alone if they’ve felt this way too.