Any time I look at the sky, I get this but it’s moving inside out, like rolling sort of. Anyone else?

I wanted to know if any of u guys have constant static only in the periphery, like me :(

How Hey everyone, how can I get Keppra without talking about my VSS and HPPD? Is my only option to see a private neurologist and explain it to them? It's just really uncomfortable for me."

I have a lot of migrane too maybe its will help

Has anyone else experienced this? When I go to bed and wake up in the middle of the night, a certain spot in my vision has a tint of color that isn’t actually there. For me, it appears red. It fades after about 10 seconds, but recently, over the past day, it seems more noticeable and redder than before

How linked is very bad visual stress with VSS? I have both.

Hi all, I’ve had VSS to some degree my whole life but it became much more severe suddenly when I was 20 (overnight explosion of new symptoms, floaters, overly bright vision, then in months following halos/starbursts around lights and much more). Other than that my other main sudden spike was when I was 30, 4 days into taking an extremely low dose of Adderall My tinnitus spiked severely and has never gone back down to baseline even after stopping Adderall. Other symptoms have gradually worsened or sometimes improved over the years but those are my two major spikes.

I also have severe SIBO and digestive issues that leave me unable to eat normally. As my SIBO has gotten worse my memory and brain fog has also gotten way worse, it’s scary sometimes.

My digestive issues started around 2011 around the same time severe PSSD started from SSRIs (Prozac). None of these issues have resolved so my whole adult life I’ve had PSSD, VSS and SIBO.

It really sucks and I want to get help.

I think that treating my gut issues could maybe help with my other conditions but even if it doesn’t, treating my SIBO is pretty mandatory at this point. There is a very small list of foods I can tolerate and even those make me feel bad. My Dr. thinks I have MCAS. I’m still hoping that it’s more of an MCAS like reaction to SIBO that could resolve if SIBO is controlled but either way I’m experiencing a ton of crazy symptoms that mostly get worse as time goes on.

TLDR: I need to take Metronidazole & Rifaximin (aka Flagyl) to treat my long term SIBO but am terrified of triggering another permanent VSS spike ESPECIALLY the tinnitus. And no I will absolutely never take Neomycin as that’s a know hearing loss/tinnitus trigger.

Has anyone else gone through SIBO treatment who also has VSS? And if so did the treatment worsen your VSS? Any advice from SIBO + VSS people would be greatly appreciated.

I’m so tired of feeling sick all the time, I need to do something to at least try and get better.

Other side note is my doc is reluctant to treat my SIBO with herbal anti-microbials because of all my MCAS symptoms. She says that herbals could actually be more upsetting for MCAS than antibiotics. Basically I got a lot going on and it feels so hard to treat one thing without worsening the other.