after lurking into this subreddit for months, i got THE call last week and i’m 1 week post OP now (-: time in the hospital has been going so slow… it’s my first time on the adult ward as i’m only 17 and have been treated on pediatric oncology the past years. Thought i’d share, is there anything i should expect to happen that doctors don’t talk about or anything i should know?
thanks in advance!!

Thought this might interest some of us

My darling husband has been called to the kidney transplant unit today. The don’t kidney should arrive in 30 mins and we will know quickly if it’s ok. My stomach is in knots as I’m too unwell to go with him.

I’m 10 months post liver transplant. I visited my brother for the first time since surgery and I completely forgot he has a bird.

With in 10 minutes we had a heated argument about the bird cause he would not put it up. Not only that the floor is covered in food scraps. He was upset I was going to leave because I can’t be around birds.

I told him that the only pet I can be around is dogs. It has to do with the scat. But as I’m walking out he starts googling and tells me AI said that not true. I replied back I believe my Doctor of you ***** computer.

My family is upset and that I should have been more diplomatic and stayed longer. I have told them my health is more important then his feelings!

My dad has been in ICU delirium and in very critical condition for the past 20 days since the lung transplant. It’s really hard to see him go through this, there is a lot of muscle wastage and it’s been about 3 months at the hospital. Doctors say that he does have a fighting chance and they have seen cases like this before, recovery is really slow. I’m getting quite frustrated with the situation, how do you deal with this? Will he get better?

I posted not too long ago about it. I am still panicking a bit. I tried to contact the transplant team but I only talked to a nurse.

They never really confirmed or told me I had CAV. But I went to one plaque to many with one at 90% in 2 years. My next checkup is in October but I can't bear the wait.

Some days I get back on my feet but when I have too much time to think, I panic again.

I'm 30, I have been on Sirolimus for many years so no changes have been made to my medication for my heart. I always had high cholesterol but since my stents, I'm now taking an injection to lower it and it is now well below what they want which is great.

But now I have a hard time projecting myself in the future and feel like I have an expiration date.

A month ago I thought it was only my cholesterol... I should not have thought about it and researched it...

So i am doing some research on how the care is different for different kind of trasnplants such as kidneys, lungs heart or liver.

I understand there are some common care tips such as avoiding heavy loads, avoiding grapefruits, taking meds on time, preventing infections. But i am looking for specifics for each organ.

I myself am a kidney transplant, so i understand how keeping low to moderate protein diet, and like keeping hydrated is important for kidney transplants.

I want to know specifics for each transplant on what to look for in each case scenario.

I would love to hear,

You can mention your organ name and then the care or things to look for.

Itd be a great study

Hello! Brey’s journey has been incredibly tough, and she’s now in urgent need of a second liver transplant. Your support can make a real difference in easing her medical expenses and helping her focus on recovery. Please consider clicking the link below to donate or share it with others who might help. Thank you for your kindness during this challenging time.

https://gofund.me/796daca6c

My husband will be 10 years post transplant this year. I’d really like to have a “celebration of life” surprise party for him, but I know it would cost a lot of money.
Does anyone have experience with getting monetary donations/ corporate sponsorships for events like this?
I don’t want to miss the opportunity to celebrate such a beautiful milestone just because of the cost