I know it has been posted about in here before, but I want to also put the good word out there about my experience.

I've had chronic migraines since I was 5 years old (I'm now 30). In recent years I've found prescriptions that have helped me get down to 2-3/week that I can usually nip in the bud with my abortive. I take Ajovy as a monthly preventative, and notice that the last week or so before I take it again I have significantly more migraine days.

I started taking creatine about a month ago to aid with the strength training I've started this summer. I realized the other morning that I had not opened my box of Nurtec (abortive) since I picked it up almost two weeks ago, and I am a week away from taking my monthly shot. I don't think this has ever happened to me in my life.

I had not heard of creatine helping with migraine before I started taking it. Turns out there is research to suggest that mitochondrial dysfunction contributes to migraines for some people, and creatine supplementation can help with this. I don't actually understand how this works and am not here to explain it, but my sister (with chronic migraines) is a neurologist in residence is now super excited about the idea and starting to take it as well.

Not saying it's a solution for everyone, but I think it's absolutely worth a shot for how cheap and harmless it is to try!

EDIT: I'm taking 5mg of creatine monohydrate daily

Curious! Mine is light, I always have to keep my phone brightness night mode on, I have to watch movies/shows on laptop so it’s not too bright, always have to wear sunglasses in sunny weather.

I got my migraines from my mom, and always have found it interesting that her triggers were cold water.. she always needed her water room temperature.

I have suffered with migraine for over 2 years now however my experience seems a bit different to most people on here. I don’t necessarily get a lot of discrete severe attacks. However, I have a constant low grade state of migraine symptoms, headaches, light sensitivity, prickly pain, nausea etc every day fluctuating in severity. I do also have moderate discrete attacks when triggered however they are rarely severe unless I really get it wrong. I have tried amitriptyline for 3 months which helped reduce my baseline somewhat but also seemed to trigger me more into discrete attacks so came off it. I have just started Ajovy 2 weeks ago and have seen no benefit as of yet. Given the constant low grade state my neurologist also explored potential autonomous nervous system issues so I had a period of increase salt and fluid which did not help a lot either. I was wondering if anyone out there has suffered in the same way and found and particular treatment useful for this?

Hello! Wondering is anyone else experiences this or can help me figure this out:

I often experience, in my right ear, a sudden change in hearing preceding a migraine: it will begin by sounding like white nose, followed by a sudden change to high pitch ringing for a brief second, then no hearing for a few seconds before hearing ability bleeds back in. This normally only lasts for a few seconds (at max 30 seconds) and then is almost immediately followed by a migraine with nausea/dizziness and balance problems.

My migraines are 99% of the time located on the left side, this weird hearing phenomenon takes place on my right side every time. Is this a common precursor to vestibular migraines? Or is this something else?

I've a migraineur for about 15 years now at about 17+ a month at my worst. My primary triggers are barometric pressure and hormones, but honestly I'm not even sure anymore since it has changed so much over the years.

My boyfriend has episodic migraine (like maybe 4 a year) and i have chronic migraine (right now i’m at about 20 headache days per month) and im just so jealous when he gets a migraine he calls out of work and relaxes. I can’t do that, i would lose my job if i called out everytime i had a migraine. It also seems like his migraine are completely resolved after he sleeps through the night or takes a nap. My migraines usually last 3-9 days consecutively.

I know every person is different and i’m glad he doesn’t suffer from migraines often but it feels like we are suffering from a completely different disease at this point.

anyway I love my boyfriend and hate our migraines lol

I’m 23 weeks pregnant with my first baby and today is day 7 of a migraine that has honestly been one of the hardest things I’ve ever dealt with.

I have never had a history of migraines or headaches before pregnancy and was not taking any medications before this started.

I ended up being admitted to the hospital for several days because the pain became severe (10/10) and wasn’t responding to treatment.

While I was there they:
Had the neurology team evaluate me.
Had ophthalmology evaluate me, and they found no papilledema.
Did CTA/CTV scans of my head and CTA scan of my neck with IV contrast/dye (all normal).
Performed two occipital nerve block injections in the back of my head.
Gave me multiple migraine treatments including Compazine, Reglan, Zofran, Tylenol, Benadryl, magnesium sulfate, sumatriptan, oxycodone, and butalbital-acetaminophen-caffeine (ESGIC).
Monitored me for several days.

Despite all of this, the migraine has barely improved. The nerve blocks did not give me noticeable relief either.
After several days, my pain became slightly more tolerable, so the neurology team and hospital felt comfortable discharging me.

They prescribed me ESGIC/ESGIV (butalbital/acetaminophen/caffeine), Benadryl, and Ativan as needed. The problem is the medication does not seem to take the pain away completely. I’m still waking up every couple of hours because of the headache.

The biggest thing I’ve noticed is that the headache is very positional:
The pain is mostly in the front of my head/temple area with some occipital pain.
It feels like a squeezing pressure with throbbing/pulsing.
I have light and sound sensitivity.
When I stand up or sit down, I get a sudden intense throbbing, pulsing, and sharp pain sensation that feels significantly worse for about 20 seconds before settling back down.

Changing positions (standing, sitting, or lying down) seems to trigger the worst spikes of pain.
Some background: this is my first pregnancy, and I am considered higher risk for preeclampsia because during my anatomy scan they found left uterine artery notching, so my OB is monitoring me more closely.

During my hospital stay, my labs were also checked:
CBC showed normal white blood cells (9.5) and normal platelets (283), with mild anemia (hemoglobin 11.5).
Metabolic panel was mostly normal, including sodium (140), potassium (4.0), kidney function (eGFR >100), AST (23), and ALT (15).
Blood pressure remained normal/low during admission (around 92–121/52–76).

My neurological exams were normal (normal strength, sensation, reflexes, and mental status), and my imaging was normal, which is reassuring. But I’m honestly getting anxious because it has been a full week and the migraine has barely improved.

Has anyone experienced a migraine lasting this long, especially during pregnancy? Has anyone had a migraine that required hospitalization and multiple treatments before it finally broke?
What finally helped you get relief?
I do plan on following up with my doctors because my home medications aren’t providing enough relief, but I would really appreciate hearing from anyone who has gone through something similar because right now it feels like this is never going to end.

A word of hope to chronic migraine sufferers, including the minority like myself who are men: hope is out there. I've just gone from migraines almost every day to virtually migraine-free, for now anyway, and this is my story.

Last year at age 37 I experienced my first migraine on the 13th of April. I'd never had any kind of serious headache in my life to that point - in fact, I'd hardly ever had any kind of headache at all. I don't want to digress too much into my subjective experiences of symptoms and, besides which, it's safe to say anyone reading this knows that migraine headaches are very unpleasant experiences for all persons afflicted by them. I'm happy to discuss anything in the comments.

After an emergency room visit or two and a few misdiagnoses later (I was put on verapamil for cluster headaches, and then later told I had occipital neuralgia and/or cervicogenic headache), by October I had a new GP. He was skeptical of my prior diagnoses and decided I should try rizatriptan. Well, they worked - at bringing the headaches down after they'd started anyway. The headaches would still come on reliably several times per week, so I began going through the rizatriptan wafers at quite a rapid tilt. Managing this as well as the constant balancing act of taking enough paracetamol/ibuprofen to prevent attacks but not too much to cause medication overuse headache became a frustrating part of my life for several months.

By May of this year, my number of triggers had grown into a stupidly long list, my migraine-free weeks were getting more and more rare, and the attacks during the on-weeks were getting to almost daily. My productivity took a big hit. Even with a religious level of trigger avoidance and using rizatriptan (and often, ibuprofen and panadol as well) early to terminate attacks, the headaches and recovery periods would sideline me for three to four hours at minimum each afternoon. Chronic migraine had reared its head and unwittingly I was robbed of normal life.

Then everything changed. In mid-June my GP prescribed Pizotifen (Sandomigran) at a conservative dose. The change was not short of dramatic. Within two weeks, I went from 5 or 6 full-blown attacks per week to just one or two small attacks. The dose went up a bit (I'm now on three to four 500mcg tablets daily), and I became migraine-free. Save for a few auras that still threaten to turn into headaches on occasion, and the fact I am still very cautious to avoid triggers, I got my life back. Full boxes of rizatriptan wafers sit in my medication drawer, unused. It's a strange sight!

It's been less than a month like this and I hope it sticks.

Hang in there, all!

as abortive?

I have chronic migraine and my treatment plan is Bitox and Nurtec as an Bortive. I get 1-2 attacks per week which need Nurtec but lately I realized that I can abort them with a ginger shot if taken early.
Did anyonee else find relief with ginger shots?
(Not all shots but extra strenth ones wotk better)

Hey guys! Firstly, this subreddit has been amazing in helping me cope with my situation so thank you to everyone!! Now, some background; I've been getting daily migraines for the last four months and I'm pretty sure I have chronic migraines even though I don't have the diagnosis yet (the NHS is great but the wait times leave something to be desired). No real start or trigger to them, just starting waking with migraines one day 😞. This subreddit has been such a blessing seeing others going through the same situation as me and helping me feel I'm not going crazy! I've tried a couple of migraine preventatives (amitriptyline and Pizotifen) and I've been on sumatriptan, paracetamol and ibuprofen but these migraines always seem to break through.

So I wanted to ask something to see if anyone else goes through this. I have my good days and bad days but it feels like when I have a few good days in a row, the next migraine that will strike is like a billion times worse. I don't know if it's because I can compare between days or the migraines themselves have a point to prove 🥲 does anyone else experience this? Or is it all in my head?

Anyway, thanks for taking the time to read! 😁

Tldr; does anyone feel like after a good day with little to no migraines symptoms that the next migraine is wayy worse?

If you’ve had positive experiences with nurtec, can you tell me what to expect after taking one? I just took one for the first time.

I starting having visual aura so I went straight for the nurtec as my doctor recommended. I took it an hour ago and my visual aura has faded. Am I just going to feel normal now since I took it? Seems like a silly question but I also have anxiety so I’m wondering what to expect next. Should I go lay down? Or can I continue with my day?

So for some context I used to get a headache every single day very bad ones bed ridden for months, then when a neurologist finally took me seriously I was approved to take emgality and it immediately changed my life. I was finally able to go outside whenever I wanted to go out to the big cities again and hang out with people I haven't seen in months. The first injection got rid of the aura which was amazing it felt like I was unconscious the entire time then I woke up and the 2nd injection was even better I felt amazing and even normal most of the time I did more in a month than I have the entire year but now I just took my 3rd injection 4 days ago and I feel horrible, I feel a lot worse than I did before I took it I felt fine before. Has anyone else had this happen? Did it get better with some time? The Aura is still pretty much gone but ive been getting very painful headaches these last couple of days. At least I have nurtec and naproxen to fall back on.

I just wanted to say that while I haven’t gotten a medicine to help my migraines yet, I was finally listened to!

My first neurologist 6-7 years ago had his pretty little assistants talk to me for about five minutes and then he came in the room for less than a minute to review the info with said pretty little nurses. I was not asked anything and he got mad when I spoke up to clarify something the nurse said. He looked at me like I was trash for all of two seconds and told the nurse what to prescribe. He did not care that nothing helped and that Topamax caused hand tremors. I stopped the meds within 4-6 months (I forget) and have been without a neurologist since.

I just saw a new one today and he took a solid 45 minutes with me. All my history, my symptoms, the different meds available, how to use these, what insurance might cover without much hassle, etc.

I will be trying sumatriptan and ajovy! I am so excited. I am terrified for the auto-injector but I’ll have my partner do that for me.

Hoping I can get relief in the next few months.

So I’ve had migraines for over 4 years since I had COVID. At the time I developed them my neuro didn’t make the connection so I started the usual treatments: CGRP meds, triptans, Botox, etc…

Nothing worked great, but eventually landed on quarterly Vyepti infusions, Nurtec, and eletriptan being the best combo so far but I hate triptans because I almost always have a mild rebound “minigrain”

Anyway, over time I started getting a ton of other syndromes from ME/CFS, PEM, hot / cold intolerance, chronic vestibular disequilibrium, flare ups where my whole body feels like it’s fizzing or being electrocuted, visual snow etc.

Developed allergies to random shit I never had before like medical adhesive. Tested positive for small fiber neuropathy.

At first I was told I was developing more intense auras. I kept bringing up COVID being where it all started and finally got referred to a specialist in Long COVID and they agreed with me, that I have long COVID.

A few weeks ago I started Low Dose Naltrexone and my migraine and aura severity has so far been under control that last week was the first week in maybe a year where I didn’t take a triptan for a migraine headache. Also have been under a lot of stress which normally is my biggest trigger… so I think it’s doing something for me. Maybe just the reduction in neuro inflammation?

I know it’s mostly used to help with the ME/CFS symptoms so I didn’t expect it to do anything for my migraines but… 🤷

This may not be helpful to most people in this sub and it may even appear silly, however the reason i get migraines is heat on my neck! The moment my neck gets warm and starts to sweat, i instantly get really intense migraines, literally minutes before i see an aura as well. I jokingly used a fan close to my body when i laid down (since ice for some reason doesn't work) and i felt instantaneously relieved! It was genuinely mad. Never in my life have i felt so much relief (air conditioning doesn't help either). Only the lowest setting on a big fan does the trick. I used this for three days and i've been migraine free. My neck specifically gets very warm during my period as well, so i suffer the most during that time. I probably won't anymore, which is insane after years of genuine suffering(the pain reaches my eyes)

my dorm window fan is so loud I cant sleep, and it just blows pollen straight onto my bed. closing the window makes the room stuffy and gives me a headache. We can't drill holes for a real AC. Are there any quiet window mounted alternatives that actually filter the air?

This sounds crazy but the ice caps I wear on my head during an attack get warm so fast. Is there such thing as a mini freezer I can keep on my bedside table with my ice caps in them?? I’ve found lots of little fridges but no luck with freezers.

Hey! I just wanted to ask if anyone else can relate..

I have lots of triggers for migraines, but my biggest one is manifesting (??) them. For example, if I think throughout the day that I haven’t had a migraine in a while, or even sometimes just think about migraines or the word migraine, I will 9 times out of 10 have one by the afternoon. It’s so weird. I’m hoping someone relates!

I was thinking of trying one of these that has good reviews for airplane flights. I wondered if they work for barometric pressure migraines. I had a horrible Sunday night migraine when intense thunderstorms hit at 2 am.

Thanks for any thoughts.

Note: I did search past comments, but it seemed everything was 2-4 years old.

Sorry if this has been discussed before...I've been on Ajovy for a year and it's been working great. But I am so bloated--no constipation, just constant bloating. I had been on Botox for a few years, but it stopped working (that was a huge bummer) and after trying Aimovig, I've found that Ajovy has really worked well in preventing migraines. I look like I'm pregnant (I am not) and my face is like a balloon. I am so happy with the migraine results from Ajovy, but the bloating is so uncomfortable. Does anyone have experience with this?

It's a vicious cycle

Migraines give me insomnia

Insomnia gives me migraines

Migraines give me anxiety

Anxiety gives me migraines

These mugs were wood fired, the salt and ash in the firing made the text run. It's hardly readable and it's a cruel metaphor for how my brain feels with a migraine. Finding words so I can communicate and doing simple math suddenly feels herculean.

literally everything gives me a compression headache. I just wanna have my hair up when it’s hot asf outside. Does anyone have and idea how to do that. Everything I’ve tried hurts my head after like 3 minutes or less. Save me.

I think I may have bypassed a migraine today.

I get hormonal migraines which I have recently lessened the frequency of with Magnesium Glycinate. I started my cycle yesterday and as I was heading to bed I could use *tell* I was going to wake up today with a migraine, but it wasn’t at the point where I could take my Sumitriptan.

I’d seen on here people describing the Migraine cocktails at the ER including Benadryl and Tylenol so I just decided to take both before bed and… I didn’t have a migraine today (& really think I should have).

Did I discover magic? Has this worked for anyone else?

For some reason, my libido is increasing. I feel the urge to masturbate more every day.

Currently I'm taking 120mg of propranolol a day. Honestly this is really confusing. I did a bit of online search and everywhere it says the opposite. But instead of decreasing the libido, the exact opposite is happening in my case.

Has anyone faced the same issue? Is it normal?