r/leukemia 18h ago

It’s transplant day!!

58 Upvotes

Hi everyone, 31(f).

It’s stem cell transplant day! I’m anxious but hopeful.

I was diagnosed with AML in March. I’ve had two rounds of chemo (induction and consolidation), I responded well and went into remission - I am now MRD negative (0.04%).

I'm having my stem cell transplant today. Any advice and tips on getting through the next few weeks? I’m feeling incredibly anxious.

I’ve been warned about mucositis, though I’m not suffering with this yet. Doctors have said most people require a feeding tube which I’m completely dreading?

I am mixed race, so finding a matching donor was difficult, and my donor is an 8/10. So of course, GVHD is a worry but I know this can be managed.

The main thing getting me through this time is hearing from others who have walked this path or similar, and have made it through.


r/leukemia 5h ago

AML Dad was just diagnosed with AML after MDS diagnosis last year

3 Upvotes

Hi all. As the title says, my father was just diagnosed with AML. He was diagnosed with MDS last year. He is 62 and has already beaten esophagus cancer and lung cancer. I think I'm just looking to hear other people's stories. His oncologist said 15-18 months with aggressive treatment. I don't know what that treatment will look like, but I'm scared it'll make his last moments miserable. He wants to go down fighting, and all I can do is support him. What can I expect if anyone has been in a similar boat? I know everyone is different, so anything will help.

Thank you guys <3


r/leukemia 13h ago

Update on cell composure

3 Upvotes

The doctor meant to say chimerism which is 20% and should be 40% post relapse and now remission so that’s where it was confused

He said it could be in the inflammation in my spleen and hopes it will be released

As there is no cancer visible in the marrow or blood

So what does that mean for me, planned dli, 19 years old


r/leukemia 1h ago

ALL PEG reaction

Upvotes

27F currently finishing the consolidation phase of my treatment. The last two times getting Pegaspargase I developed nausea/vomiting and severe lower abdominal pain that only resolved with multiple doses of morphine. The pain felt like the most unrelenting severe period cramps. My doctors are stumped after my CT came back clear. Has anyone else had a similar reaction to Pegaspargase?