Hi everyone, some help would be greatly appreciated, if any of you amazing people could spare some knowledge or information please. My younger sister has been suffering with PSSD for over 2 years. When I say suffering, I mean it’s absolutely ruined her life and shot down any dreams she’s ever had (as most of you already know). She is mostly bed bound and we don’t know how to help. I worry she’s losing hope of ever overcoming this. I understand that there is currently only one Dr or very few professionals looking into treatments and mechanisms of PSSD and I understand it’s so discouraging for any one of you or your loved ones going through this. What I want to do is reach out to as many professionals I can to raise awareness of PSSD and how it is affecting people’s lives and just at-least try to ignite some compassion and interest in the subject to hopefully spur on more research and funding.
If anyone could give me any information on Drs names, PSSD organisations, mental health drs or current research happening that links to PSSD. Even any information that you think that would help at all. I want to do this on behalf of my 27 year old sister as she is so fatigued and struggling to fight anymore.
I just wanted to say that I have a previous medical background so I am familiar with abbreviations, medical terms and research papers.
Thanks Everyone
Amy

I started SSRIs at 13, I was taking them for 1,5 year and since then I couldn't have a pleasurable orgasm (physically happens, but almost no sensation) or feel my tip. Recently I saw someone on here saying they lost their nipple sensation after SSRIs. I thought no one could feel their nipples, but turns out no. I can't feel any part being touched, the tip nor the circles around them, but in the tips I can feel cold if I press something cold to them. Anyone else on here got something similar?

The medication caused mild blurriness in my vision, light sensitivity, and an additional 0.5 diopter of astigmatism.Why am I so sure? Because both of my parents have prescriptions within minus 4.0 diopters. I tested at minus 4.0 in 2020, and by 2024, both eyes were nearly minus 6.0. In 2025, it barely changed, and yesterday's test showed no change either—except for an additional 0.5 diopter of astigmatism.

That means from 2016 to 2025, I spent about 15 hours a day staring at my phone and computer—using cheap, low-quality small screens, in the dark, often lying on my side for long periods. I also frequently ejaculated, which left my body weakened and likely worsened my myopia. But even with all that, I never developed astigmatism. And from 2024 to 2026, my prescription didn't change at all.

Then, starting last November, over the course of six months, I took a total of 16 tablets of paroxetine—only 1/4 tablet per day. During those six months, I felt my vision was a bit blurry, and I assumed my prescription had increased again. But yesterday I had a comprehensive eye exam—everything else was fine, except for the new 0.5 diopter of astigmatism.

It's now been three months since I stopped the medication. The emotional and cognitive numbness, along with the gastrointestinal constipation and bloating, have mostly recovered. Only the sexual dysfunction and the 0.5 diopter of astigmatism haven't improved at all. I've been exercising regularly since July 2025, and I'm physically in the best shape I've been in over the past 12 years. This sudden 0.5 diopter of astigmatism is definitely not natural.I don't know whether there's some underlying eye condition that medical tests can't pick up, but based on how I feel, I believe my vision is now about 2.00 diopters worse than it was before I started the medication last November.

If anyones looking to talk about their situation just message me 👍 need people to talk to who are in the same situation

At 2023, I used Zoloft for 3 months and after tapering off, I had PSSD for 1.5 years. I still think my libido is not the same, although I reach orgasm very quickly now. I’m 24 and a woman. I’m battling with major depressive disorder yet again, and don’t want to lose a part of me all over, I love my libido, the joy I get from masturbating. I am human and living after all. It’s scary, I never even had sex yet.

My therapist says I must take medication at this point. Anything I can do to combat this illness without meds? I already eat well, do sports. Depression was induced by my dad‘s cancer and unemployment. It wasn’t due to malnutrition etc.

How do I get out of this pit without losing a part of me?

And I am so, so sorry for anybody else going through PSSD and depression, I know how heartbreaking it is for a “treatment” to take a part from you, I am so sorry.