6 years ago when I had my first attack physiotherapists helped me to walk again over months - this year I ran my first half marathon in 2 hours 45 minutes, then continued about my day afterwards and I’m so grateful!

I got banned from r/MultipleSclerosis for posting very relevant information with links... How good are the mods on this subreddit? Will they boot me for posting relevant links?

https://med.stanford.edu/news/all-news/2022/01/epstein-barr-virus-multiple-sclerosis.html

Did ~6 miles on the Appalachian Trail today from Carver’s Gap to past Grassy Ridge and back. Roughly 1200ft of elevation gain with a 10lb lumbar pack. I had poles with me and that helped. I trail run in Chacos, for whatever reason the sandals help my stability and proprioception. I got to see the Gray’s Lily, an endangered and imperiled endemic wildflower found only in high elevation meadows in NC, TN, and VA.

Six years ago I signed up for my first #TheMay50K.
Honestly, I never imagined where it would lead.
This year I completed 800km during May:
714km on my Bianchi E-Omnia C-Type e-bike 🚴
86km on a Concept2 rowing machine 🚣
That takes my six-year totals to:
1,400km+ completed
£23,000+ raised
180+ sponsors
I was diagnosed with RRMS in 2012 at the age of 47. Like many people, my first thoughts were about the future: Would I still be able to walk? Work? Exercise? What would life look like?
Fourteen years later, I still use a walking stick, I’m still active, and I’ve just completed my biggest May challenge yet at the age of 60.
I’m not an athlete. I’m simply someone living with MS who wants to raise awareness and support the incredible work being done for the MS community.
To everyone who has sponsored, encouraged, or followed the journey over the last six years — thank you. You’ve helped turn a personal challenge into something much bigger.
Every kilometre matters. Every donation matters. Every conversation about MS matters.
🧡 #TheMay50K #MultipleSclerosis #MSAwareness #MSWarrior #Fundraising #ChronicIllness #DisabilityAwareness #Resilience #WorldMSDay

I think I may have MS
Is diagnosis a hard process?
Thanks in advance

When I first got MS I was completely blind for a few months and then colourblind for another few months but since then I have perfect full colour vision and according to my neuroopthalmologist... I should "treat" myself "to something sweet because" my "left optic nerve, while still damaged, has recovered more than it should've been able to!" . I never did get that treat 🤔😂

I have however been getting eye fatigue and sensitivity to light but I have finally got a pair of green-tinted glasses that really help with that 👍 Just thought I'd post it here incase anyone else has eye fatigue and light sensitivity as it may help to get tinted glasses 👍

A publication by a young Cambridge researcher, Will Barrie, was posted online on April 3rd, ahead of its official publication in the Revue Neurologique.

It is titled “The evolutionary origins of multiple sclerosis.”

This publication is a brilliant synthesis of several studies: our origins based on the study of ancient DNA, the Old Friends hypothesis, and the Evolutionary mismatch theory.

It suggests that the disappearance of helminths (intestinal worms) in Western societies, combined with a genetic susceptibility inherited from our ancestors of the Pontic-Caspian steppe, could explain the increase in cases of multiple sclerosis.

There is a post on Substack explaining why this article is important and the therapeutic approach it suggests with helminthic therapy (links in the first comment).

Since we are pretty limited in rehab opportunities, I really got into the concept of visualization and manifestation for this purpose. Pretty much hoping that the brain can rewire itself . I was looking for an app or anything pretty much that would help me with that and ended up developing the app on my own. I had a quick five minute meditation felt pretty cool. Good how how do you feel about this idea? Would you be interested in using anything like this? What are your ideas for improving it further for even better experience 🙏

https://www.themay50k.co.uk/s/17812/45933

Warning, long post!

Has anybody been through the steps of getting diagnosed and after four months your neurologists are still between multiple sclerosis and functional neurologic disorder?

I spent the last four months going through procedures seeing and still don’t have a diagnosis.

I really thought thought seeing the specialty neurologist for MS would give me the answers but he just ordered another MRI and he says he thinks it’s functional neurologic disorder.

I have been seeing my primary care physician, I’m in speech pathology therapist I am doing physical therapy. I’m doing cognitive behavioral therapy.

I’m doing talk therapy and at this point I still don’t have any relief my symptoms which are on the left side of my brain that control mobility and speech are continuously getting worse.

I also saw my reg. neurologist last week, whom was sure it was an again that is MS. Then after 2 months of waiting, I was able to finally see the Specialist end of the week. He is for sure that it’s functional neurological disorder and not MS, even though I have lesions on the brain which functional neurologic disorder does not and FND does not cause lesions on the brain.

Has anybody ever been diagnosed with FND instead of MS and what has bleeped you try to get back to normal? MS has medications and FND does not. Any information would be great greatly appreciated.

Thank you again.

PS if you guys have any recommendations or any other types of disorders that this could be, please feel free to answer with them below because I’ve been sitting for almost half a year and still have no answers so at least I could ask my neurologist to look for these things

Please excuse any misspelling or words that are not supposed to be there. My hands are weak, and my voice is very slurred.