Hi all!

I’ve just got both of my RGP lenses fitted and i’m starting the journey of getting used to them! I’ve gone from pretty terrible vision to 20-20, and so far it’s amazing.

One thing I didn’t expect to struggle with however was just how emotional it is being able to really SEE things for the first time (in a long time). I haven’t seen my fave this clearly since childhood and it’s really overwhelming. There is so much new sensory input and things are so much more detailed than I ever expected.

Has anyone else dealt with a rather large emotional reaction to seeing this clearly? I assume it’s rather common, but It’s be nice to talk to some people who understand!

Turns out i’m not as bad looking as I thought and it’s really shifting my perspective on a lot of things, who’d have guessed!

Hi all,

I got diagnosed 2.5 years back and I am 37 years old. My doctor said that keratoconus gets stabilized post mid-30s and I have been monitoring my pentacam scans every 6 months. Things have been stable since then.I am able to manage through spectacles. I was in a relationship and the guy knew about this condition from day 1 but rejected me post 5 months citing this condition as the reason. People who have keratoconus just want to know is this condition that bad? Am I taking it lightly? Anyone out there for whom this has stabilized as well? Does it impact your personal relationships in any way?

I was at Moorfields eye hospital yesterday for my first try out with a test Scleral lens. I was so nervous on the way there but it actually went extremely well and I found the lens very comfortable. They’re going to tweak the fitting a little bit on the lens they produce and then for the other eye I’ll just get a standard soft contact until the PMD gets just as bad as the left.

For those who’ve been wearing scleral lenses for a while, what piece of advice do you wish you were given when you first started wearing them?

Does anyone else get a cloudy line across their scleral lenses throughout the day? I've been wearing sclerals since 2021 with varying degrees of succes. My current lenses get progressively cloudier throughout the afternoon/evening and I usually need to reset once or twice a day. When I reset there is always this cloudy streak accross the exterior, lower half of the lenses and it only comes off with a soak in peroxide. My doctor has recommended two different daily allergy eye drops and now eyelid wipes as a way to remove any debris before the lenses go in but nothing has really improved. The photo is one of my lenses at the end of the day after a rinse with peroxide. Does this happen to anyone else?

I have scleral lenses and am struggling taking them out with the plunger. It just feels so stuck to my eye. I’ve heard you can drop saline on the plunger before hand —does that mean I gotta open up a whole other saline thing or can I use the rest of the one from the morning. I know it sounds cheap but it seems like such a waste😂. or can I use a drop of the solution?

I'm 22 years old with -5.5/-6.0D myopia. Initially my doctors recommended PRK Xtra, but after additional Pentacam and other scans, the senior cornea specialist changed the recommendation to ICL. They said I don't have keratoconus, but I have a borderline Pentacam. All my other tests are normal (corneal thickness 518/529 µm, ACD 3.37-3.40 mm, retina and dry eye normal). In this situation, would you recommend ICL alone or C3R followed by ICL? Why would C3R be considered if there is no keratoconus?

Like my slightly or early karctokonus dead in both eyes right now so we don't want touch it with lazer surgery so go for icl but what about the boardline issue in eyes

Did the borderline issue fade away after icl surgery or like after icl what happened

They mentioned exactly this " Both eyes have borderline values on corneal topography "

Can you help me with this ???

I need some advice.

I underwent C3R (corneal collagen cross-linking) in both eyes in 2024, about two years ago.

Over the past week, I’ve started noticing some small curved light shadows that seem to be new. I’m honestly very scared that this could mean my keratoconus is progressing again, and I’m afraid I might need another procedure or surgery in the future.

My right eye has had more sparkling curved lights for a long time, so I mostly rely on my left eye because it gives me clearer vision. However, over the last two weeks, I’ve started noticing tiny curved light distortions in my left eye as well, and it’s making me very anxious.

Could this be a sign that my keratoconus is progressing, even after C3R?

Hi everyone,

I'm 22 years old from India and I'm looking for advice from people who have gone through a similar situation.

My details:

Age: 22 (M)

Myopia: -5.50 D (right), -6.00 D (left)

Stable prescription for about 2 years

Corneal thickness: 518 µm and 529 µm

Anterior Chamber Depth (ACD): 3.37–3.40 mm

Retina: Normal

Dry eye: Normal

But docter told i don't have karactoconus but like it is dead right now in eyes and we don't want touch it with any other lazer like we don't want wake up it , so go for icl

My Pentacam was reported as borderline, but my doctors told me I do not have keratoconus.

Initially, C3R (corneal cross-linking) and prk was discussed,

but after reviewing my scans, the cornea specialist recommended ICL instead. Like they scan the eyes after 4 days gap checking if any changes but no changes in all reports and all reports are same

I'm confused because:

If I don't have keratoconus, why was C3R even considered earlier?

Has anyone had borderline Pentacam without a keratoconus diagnosis and still been advised to undergo C3R?

If you chose ICL in a similar situation, how has your vision been long-term?

If keratoconus were to develop years later, would that affect the vision achieved with ICL?

Has anyone here had C3R followed by ICL?

How long did you wait between the two procedures, and what was your outcome?

I'm looking for experiences from people with similar reports, especially those who had borderline Pentacam rather than confirmed keratoconus.

Thank you!

Sorry for yet another post from me but this is the only place I feel I can get advice.

10 days ago my partner had a corneal transplant. Everything was looking good but about 4 or 5 days ago his eye started weeping more than it had been. My partner thought nothing of it really but then at his follow up on Tuesday just gone (his 1 week post op) they discovered that the leak was cause by a suture that had come loose when the inflammation went down.

Today he went in for suture revision and it seemed to go well, the only thing is as they were replacing the original loose suture and tightening it the other were coming loose and they ended up replacing all of the sutures as well as adding a couple more.

He has another follow up on Monday just to see how these sutures are holding up but has also been put on the list for surgery that day just in case. He told me that obviously this is just precautionary but if necessary it could be for either another suture revision or it could be to redo the whole procedure.

I am just worried that this is not going well and despite the Dr's reassurances on Tuesday that this is normal, it is worrying that they had to replace all of the sutures and not just one.

I'm also worried about money coz this takes him away from being able to work and he just lost his job about a month before having surgery so Statutory Sick Pay isn't really an option and whilst we do get UC most of the time we get next to nothing because of my work.

Hi everyone,

I'm 22 years old from India and I'm looking for advice from people who have gone through a similar situation.

My details:

Age: 22 (M)

Myopia: -5.50 D (right), -6.00 D (left)

Stable prescription for about 2 years

Corneal thickness: 518 µm and 529 µm

Anterior Chamber Depth (ACD): 3.37–3.40 mm

Retina: Normal

Dry eye: Normal

But docter told i don't have karactoconus but like it is dead right now in eyes and we don't want touch it with any other lazer like we don't want wake up it , so go for icl

My Pentacam was reported as borderline, but my doctors told me I do not have keratoconus.

Initially, C3R (corneal cross-linking) and prk was discussed,

but after reviewing my scans, the cornea specialist recommended ICL instead. Like they scan the eyes after 4 days gap checking if any changes but no changes in all reports and all reports are same

I'm confused because:

If I don't have keratoconus, why was C3R even considered earlier?

Has anyone had borderline Pentacam without a keratoconus diagnosis and still been advised to undergo C3R?

If you chose ICL in a similar situation, how has your vision been long-term?

If keratoconus were to develop years later, would that affect the vision achieved with ICL?

Has anyone here had C3R followed by ICL?

How long did you wait between the two procedures, and what was your outcome?

I'm looking for experiences from people with similar reports, especially those who had borderline Pentacam rather than confirmed keratoconus.

Thank you!

Hi everyone,

I'm 22 years old from India and I'm looking for advice from people who have gone through a similar situation.

My details:

Age: 22 (M)

Myopia: -5.50 D (right), -6.00 D (left)

Stable prescription for about 2 years

Corneal thickness: 518 µm and 529 µm

Anterior Chamber Depth (ACD): 3.37–3.40 mm

Retina: Normal

Dry eye: Normal

But docter told i don't have karactoconus but like it is dead right now in eyes and we don't want touch it with any other lazer like we don't want wake up it , so go for icl

My Pentacam was reported as borderline, but my doctors told me I do not have keratoconus.

Initially, C3R (corneal cross-linking) and prk was discussed,

but after reviewing my scans, the cornea specialist recommended ICL instead. Like they scan the eyes after 4 days gap checking if any changes but no changes in all reports and all reports are same

I'm confused because:

If I don't have keratoconus, why was C3R even considered earlier?

Has anyone had borderline Pentacam without a keratoconus diagnosis and still been advised to undergo C3R?

If you chose ICL in a similar situation, how has your vision been long-term?

If keratoconus were to develop years later, would that affect the vision achieved with ICL?

Has anyone here had C3R followed by ICL?

How long did you wait between the two procedures, and what was your outcome?

I'm looking for experiences from people with similar reports, especially those who had borderline Pentacam rather than confirmed keratoconus.

Thank you!