Do you have Fibromyalgia or chronic widespread pain?

In this remote study, we are exploring how non-drug treatment approaches related to a person's sleep schedule, such as morning light therapy and assigned sleep schedules, might affect their chronic pain experience. (IRBMED: HUM00240590)

What is involved?
Participation will be fully remote and take place over the course of 5 months involving:

• Wearing a Fitbit for 5 weeks
• Completing 8 virtual visits via Zoom, each visit lasting between 30mins - 2hrs
• 4 weeks where you may be asked to follow a sleep schedule or do a 1 hour light treatment each morning at home

No drugs involved, no blood draws.

Participants will be compensated up to $700 upon completion of study tasks.

Visit UMHealthResearch website for more information or see if you qualify with the pre-screening survey.

Hi everyone,

Currently, my engineering class is working towards creating systems to make spaces for inclusive.

I'm having trouble coming up with solutions to problems disabled individuals experience in their day-to-day lives.

I was wondering if I could get some insight from actual people living with disabilities.

If you're comfortable, please share any unique problems you may face due to your condition, which does not yet have a solution, so I could potentially work towards a mechanical solution for it.

This does not have to be limited to physical disability but also mental/emotional (e.g. autism, adhd, agoraphobia)

🙏

Hi all! I'm a disabled writer currently in the midst of researching and writing a nonfiction book about the concept of people "faking" disability. The three main topics are: the culture of disbelief around disability, the ways businesses profit off of us not being believed, and the flaws of methods used to prove that we aren't disabled. This is largely centered around the US so US residents are preferred, but not required.

I'm looking for folks willing to share their experiences about any of the following:

* The process of requesting any benefit due to disability, e.g. workers comp, SSDI, workplace accommodations, leave of absence (paid or unpaid)

* The processes used to 'verify' illnesses like independent medical evaluations (IMEs) or reviews by forensic psychiatrists

* Having benefits or healthcare denied for suspect or inconsistent reasons

* Conditions worsening or going untreated because of people who don't believe you have a disorder or who don't believe your diagnosis is "real."

These will mostly be unstructured interviews (video or audio call, 30-60 minutes or more if you have time). let me know if you need to use a different contact method due to access/ability.

Participants will be compensated for their time. Any and all input is appreciated!

ETA: Thank you all for your interest! I've responded to a few people already, and I may reach out to a few more once I've had the chance to get through a few interviews. I'm doing this alongside my day job, so it may take a bit to respond to everyone.

Hi guys, I'm working on a school project and have a 17-question survey (takes about 7 minutes to complete)

https://forms.gle/TjJzhbxKMrUmgFcA8

It's mostly about the Deaf and Hard of Hearing experience when interacting with music, how you interact with music, if there are aspects that are more important rather than the sound, like lyrics, music videos, sign language translations, etc.

Feel free to leave your suggestions here, I would love to go through each of them!

I'm a student at @senaclages (https://www.senac.br/)

Hello, my name is Carrie West, and I am conducting a research study regarding mental health, identity, and chronic pain. I am currently a student at Maryville University, and this research is a core component of my senior thesis. Participation involves completing an anonymous online survey that will take approximately 10 minutes. Participation in this study is completely voluntary, and responses will remain confidential. If you are interested in participating, please click the survey link below. Thank you for your time and consideration.

https://maryville.az1.qualtrics.com/jfe/form/SV_bpIQigxq9eg0Cay 

https://docs.google.com/forms/d/e/1FAIpQLSdjlWZr-63colimiqwOvID6rnw4PLvioSVaPDkoOzKo7DZvTw/viewform?usp=publish-editor

if you have any questions please reach out to me at @[email protected]

My name is Jenna Boeger, and I am a doctoral student at National University. I am conducting an online survey to determine the impact of invisible disabilities on daily living. In order to participate, you must be

·      18-50

·      Identify as having a chronic invisible illness for at least 3 years.

The anonymous survey will take about 15-20 minutes to complete and will ask about your experiences with your chronic illness using multiple-choice and open-response questions. The survey also includes questions about your age, gender, mental health, and activities of daily living (ADLs).

Follow this link if you wish to participate in this voluntary research: [https://ncu.co1.qualtrics.com/jfe/form/SV_2fcBjIdcWHHjg4m]()

Thank you for your time,

Jenna Boeger, PsyD Student, National University

For questions, contact me at [[email protected]](mailto:[email protected])

NU Email: [[email protected]](mailto:[email protected])

Supervisor: Dr. Sarah Carroll https://www.nu.edu/degrees/jfk-psychology/faculty/sarah-carroll/ 

Hi there,

I am a student at Rangitoto College researching the quality of life and independence of those with poor eyesight. I would really appreciate anyone (with poor eyesight or fine!) to fill out this form for me :)

Thank you so much!

https://forms.gle/LaAbffyA5ac4kK1E6

Hi, I am a teen who is passionate about Augmentive Alernative Communication. I am building a free AAC website tailored to the needs of users. If you are an AAC user (or a caregiver of one), I'd appreciate it if you could take ~10 minutes to complete this google form

https://forms.gle/fBNShxBoxN7hPn2k9

A huge thank you to those who have participated so far! We still need more participants, particularly if you are bisexual!

We are looking to better understand the diverse mental health experiences of adults with a marginalized sexual identity (e.g. gay, lesbian, bisexual, queer, pansexual, sexually fluid, omnisexual).

If you meet the eligibility criteria, please consider this quick, 10-15min, anonymous survey:  https://csufobjbs.au1.qualtrics.com/jfe/form/SV_6sCeGsZJld6774W

You will be asked questions about sexuality, self-kindness, belonging to the LGBTQIA+ community, sleep, suicidality, and depressive symptoms. The survey has received ethics approval (H26115).

About us: We are Psychology Honours Students from Charles Sturt University in Australia. It is hoped that this international study will help to inform improvements to mental health support for people with marginalized sexual identities.

Please click this link for the ethics approval letter: https://acrobat.adobe.com/id/urn:aaid:sc:AP:23e6db21-4592-4881-8472-c98ab36e4b5c

Please feel free to share!

Thank you! It is greatly appreciated!

If you feel like telling me personally here is my academic email: [email protected]

Hi everyone! We’re two students working on a project to design a better door opener for people who struggle with doors that don’t have ADA push buttons.

We know that doors with closers or tension (think heavy commercial doors, doors that slam shut, doors that require a lot of force to open) are a real barrier for a lot of people, whether you’re in a wheelchair, dealing with strength issues, injuries, etc. Sometimes pain points are the force needed, the speed at which they close, or just the awkwardness of doing it one-handed. We want to build something that solves your specific problems and not just a guess at what those problems are.

We’d love your input on a few quick questions, feel free to answer as many or as few as you want.

1. How do you currently open doors without a button? What’s your typical workaround?
2. What’s the worst part about encountering these doors? Force? Speed? Something else?
3. Have you tried solutions like t-pulls or long-reach openers? Did they work for you?
4. How often do you run into these doors? (Daily? Weekly? Specific building types?)
5. If you could fix one thing about opening doors, what would it be? (Easier to push/pull, works on all door types, etc)
6. Any weight or size limits for a tool you’d use or carry?
7. Would you prefer something you carry, wear, or have attached to something?
8. Budget wise, what would you realistically spend on a solution?

Even if you have just 2 minutes to answer one question, that helps us so much. Comment below or feel free to dm. Thanks for your time, we’re building this for you so your feedback really matters?

Dear Forum, I am currently writing my bachelor’s thesis at Humboldt University of Berlin. My research examines the impact that the use and maintenance of assistive technologies (referred to in the questionnaire as “HET” - Human Enhancement Technology) have on your perceived daily stress.

To shed light on this issue, I am conducting an online survey. The survey is anonymous, voluntary, and takes about 15 minutes to complete. The questionnaire is offered in two languages, German and English, please make your pick at the top of the intro page.

 Here's the link: https://umfrage.hu-berlin.de/index.php/145454?lang=en

Thank you very much to everyone who fills out the questionnaire - every response really helps!

I’ll do my best to answer any questions. Since the questionnaire will be posted on a few more forums, this may unfortunately take some time.

Hello everyone!

I truly hope you can all help me out here.

I am looking to design fully adaptive and inclusive sportswear for those with disabilities, ostomies, neurodivergence and all other needs!

After a severe case of sepsis majorly changed the trajectory of my life, leaving with me with multiple organ failure, a permanent colostomy and partial paralysis, I’m looking to turn that adverse life event into something positive to help others as well as myself!

I would greatly appreciate if you could take a little min to complete my survey.
Every single disability and ostomy group on Facebook has denied me sharing this so I do hope I can try and get some feedback here.

Thanks all so much

https://forms.gle/WNBpkNydLTL5J8wh6

Hello, my name is Carrie West, and I am conducting a research study regarding mental health, identity, and chronic pain. I am currently a student at Maryville University, and this research is a core component of my senior thesis. Participation involves completing an anonymous online survey that will take approximately 10 minutes. Participation in this study is completely voluntary, and responses will remain confidential. If you are interested in participating, please click the survey link below. Thank you for your time and consideration.

https://maryville.az1.qualtrics.com/jfe/form/SV_bpIQigxq9eg0Cay 

Hi everyone!

I’m researching the everyday challenges people with disabilities and their caregivers face. My goal is simply to learn from real experiences and better understand where things could be improved.

If you’re willing to share, I’d really appreciate hearing about your experience:

What are some of the biggest challenges you face in your day-to-day life?

What tasks are more difficult or time-consuming than they should be?

Are there any products, services, or apps you wish existed?

What’s something you deal with regularly that you think most people don’t realize?

Thank you to anyone who’s willing to share. Your insights are greatly appreciated.

I am currently researching accessibility in University and I was wanting to know what people thought of the term "accessibility" being used for access requirements outwith disability. As examples; when it is used to discuss access for pregnant women, or the needs of Muslim people, or Irish Language provision as an access need.

I find it frustrating when people decenter disabled people from conversations about disability, and instead focus the conversation on how it "can benefit everyone" or how it is "good for profits". It can feel like they are removing disabled people from the term access for political reasons or to make it seem more financially beneficial. It's easier to ignore us than to actually engage with disability.

However, In these cases I've given above, the term "access" IS being uncoupled from disabled people, but it is still directly targeting those in need - and not just 'broad strokes corporate speak'. 

I consider myself disabled, but I also say I have accessibility needs which are not related to my disability (needs around my gender identity, and needs around my learning difference). 

I wanted to know how people in the community felt about the topic of "accessibility" and it being used in a way that is not solely about disability. Any thoughts would be welcome. Thank you!

This is a part of early research i am doing in my work at Glasgow University [[email protected]](mailto:[email protected])

I am currently researching accessibility in University and I was wanting to know what people thought of the term "accessibility" being used for access requirements outwith disability. As examples; when it is used to discuss access for pregnant women, or the needs of Muslim people, or Irish Language provision as an access need.

I find it frustrating when people decenter disabled people from conversations about disability, and instead focus the conversation on how it "can benefit everyone" or how it is "good for profits". It can feel like they are removing disabled people from the term access for political reasons or to make it seem more financially beneficial. It's easier to ignore us than to actually engage with disability.

However, In these cases I've given above, the term "access" IS being uncoupled from disabled people, but it is still directly targeting those in need - and not just 'broad strokes corporate speak'. 

I consider myself disabled, but I also say I have accessibility needs which are not related to my disability (needs around my gender identity, and needs around my learning difference). 

I wanted to know how people in the community felt about the topic of "accessibility" and it being used in a way that is not solely about disability. Any thoughts would be welcome. Thank you!

I have a newly-paraplegic mama friend who is returning home after months in rehab. She has the major things in place like an accessible housing unit, motor chair, etc, but I would like to send her a care package of things that would truly be useful as she navigates this new way of life.

I've thought about a reacher/grabber for her kitchen and lazy-Susan spinners for her shelves, and I've realized I have no idea what kind of everyday things I take for granted. I would be truly grateful for some more ideas to put together to help her transition home be just a little less bumpy.

Thank you!!

I am PhD student from Swinburne University of Technology. I am conducting interviews with wheelchair users to understand experiences of air travel.

If you:

·     Are over the age of 18

·     Use a manual or powered wheelchair for mobility 

·     Have travelled by air (domestic or international) within the last 3 years

Then we invite you to share your air travel stories. This information will contribute towards proposing improvements to the air travel industry.

This study has been approved by ethics and I can provide more details about the study.

FOR MORE INFORMATION PLEASE CONTACT:

Mark Hanson (PhD student)

Email: [[email protected]](mailto:[email protected])

Hi all! I’m a disabled museum professional working on my PhD in Architecture, focusing on Disability in Museums at the University of Portsmouth. My thesis title is ‘More Than Just a Ramp: A Detailed Look at Bodies with Chronic Pain within the Museum Space’. My data collection consists of an online survey via Google Forms to hear directly from people around the worldwho have chronic pain and visit museums. The survey is anonymous, no questions [aside from consent] are required, you can skip any questions you do not wish to answer, there is no time limit, and you can choose if you want to submit it or not.
There are three areas that the questions fall under:
1) your lived experience of chronic pain
2) your experience of visiting museums as a person with chronic pain
3) any thoughts you have that would make museum architecture more welcoming for those with chronic pain
The only requirements to participate are 1. Have visited a museum and 2. Have chronic pain as your main diagnosis or a symptom of another. There are two levels of consent forms to participate within the survey. Please be aware of your own wellbeing and though these questions do not aim to be triggering, it may be emotionally challenging to recall past events. Please keep your wellbeing in mind over this survey. You will not be compensated for your submission, and I make no monetary value when you submit as well (though, as a thank you, I’ve put a picture of my dog in the comments!).
This disease that we live with, for me, is a joy stealer. I’mlooking forward to continuing to serve our community in museums through this research to make each visit a little bit better for all. Thank you!

https://forms.gle/HNonqYnvt44LxQwE8

Are you a disabled person who wants to help a disabled researcher study sexuality education for disabled people? Take this anonymous online survey!

You must be aged 18+ and born after 1989.

You must be able to read and answer questions in English on your own or with the help of an aide.

The survey is 10-20 minutes long; the exact length depends on what questions relate to you, your identity, and your educational experience. You do not have to finish the whole survey at once. The questions ask about identity, sex education coverage, sex education sources, how helpful you found your education, and life experiences related to sexual health, identity, and experience.

Survey responses will be used for dissertation research at Widener University and may be used for future publications and presentations.

Find out more and participate here: https://widener.qualtrics.com/jfe/form/SV_8nUPgqgozKAgo1U?source=Forum

Participation is completely voluntary. Widener University I.R.B. has approved the solicitation of participants for this study (Protocol #925, expires 06/22/2027). Email the principal investigator (Arya Boris, MEd: [email protected]) or the faculty advisor (Dr.  P. Lannutti:[email protected]) with any questions.

Please share with other people in your life, such as your friends, family, and peers!

Thank you so much for the fantastic engagement last time!

If you missed the chance to complete the survey (and you meet the below criteria) we'd love your input!

https://csufobjbs.au1.qualtrics.com/jfe/form/SV_6sCeGsZJld6774W

We are Psychology Honours students at Charles Sturt University, conducting research into risk and protective factors for mental health, among adults with a marginalized sexual identity (e.g., gay, lesbian, bisexual, queer, pansexual, sexually fluid, omnisexual etc…).

Participation is open to:

·       Adults (18+), with a marginalized sexual identity (e.g., gay, lesbian, bisexual, queer, pansexual, sexually fluid, omnisexual)

The anonymous survey has ethics approval (H26115), takes around 15 mins and includes questions about sexuality, self-kindness, belonging to the LGBTQIA+ community, sleep, suicidality, and depressive symptoms. All information provided is confidential.

If you are concerned about answering questions of this nature, please do not participate.

To participate or learn more, click the link above.

Feel free to share and thank you!

We are currently seeking people who experience chronic stomach symptoms like nausea, vomiting, belching, or pain to participate in this important research.

Participation is easy and completely anonymous. Simply complete a 15-minute online survey that includes questions about your demographics, symptoms, and mental health. Your valuable input will help researchers better understand and manage chronic gastroduodenal symptoms, including gastroparesis.

Access the survey now at this link: https://auckland.au1.qualtrics.com/jfe/form/SV_5cNZ69rlIXk70PA 

Together, we can work towards improving the lives of those suffering from chronic gastroduodenal symptoms. Thank you for your support! 

This study has been approved by the Auckland Health Research Ethics Committee on 12/04/2023 for five years. Reference number AH25798.

This research is being conducted by Dr Mikaela Law, the Faculty of Medical and Health Sciences, The University of Auckland, [[email protected]](mailto:[email protected])

Medical and Health Sciences – University of Auckland