r/SPD 21d ago

Reserch Monthly Research Master Post

1 Upvotes

If you want to post about studies or research you are doing post here with your, IRB approval (or equivalent), and a brief description of the study.


r/SPD 20h ago

please suggest sensory tools for visceral hypersensitivity!

1 Upvotes

i’m extremely hypersensitive to the sensation of hunger and digestion and it causes anxiety. I just discovered using a vibrator on the back of my spine by my stomach when I’m feeling hungry and eating and oh my gosh this is completely changing my life! It’s such a relief! Even though it’s awkward and kind of hilarious I feel so much better!

Can you suggest other sensory tools like vibration to help with hypersensitivity?

Thank you!


r/SPD 1d ago

sensory issues with hygiene

3 Upvotes

I'm on referral for autism and ADHD diagnosis, and have been for a little while (almost a year) and OCD, dyslexia, anxiety and depression run in the family. I also have some trauma that I think I have PTSD from but will be asking a professional at some point. I recently gave birth and my sensory issues seem heightened, I presume from sleep deprivation. I'm finding it difficult to do things that make me uncomfortable like washing my armpits and face.

I hate the feeling of residue on me, bar soap makes my skin feel dry so I use liquid soap, but I don't like the bubbles on my face. The issue with my armpits is I don't know if I put enough soap on, then I don't know if I washed it all off because I can't feel the liquid soap and I can't use the bar soap because I can feel it long after washing.

Any advice?


r/SPD 1d ago

Noise protection

4 Upvotes

Could I get peoples opinion on something?

I currently wear Bose Earbuds/earplugs with earmuffs over top almost all day. I'm contemplating getting Bose headphones to put over my earplugs instead of earmuffs. Mostly for when I'm out in public because I hate wearing my earmuffs around people and also they hurt my head. But I need to know if the noise protection for that combination is as good as my current set up. Anyone used a similar set up? I don't have a shop in my town that has them to test them out. I tried on Sony in a shop and they barely did any noise protection.

I know Bose are expensive so most can't afford that brand. I get them 2nd hand. Even if anyone uses other brands I'm interested in comparing earplugs+earmuffs to earplugs+noise cancelling headphones. Thanks!


r/SPD 1d ago

Sensory seeker 101

2 Upvotes

I have a wonderfully exuberant 4 year old who doesn’t test as “anything” but shows a lot of sensory seeking behaviors. He rams things, bangs things, hollars, wants to wrestle 24/7. He’s smart and social. I’m trying to understand how to help him. Getting g to sleep is hard. I can see the scolding’s and comments from peers already starting to shape him. OT seems a little arbitrary. He already does most of the things in a sensory diet a million times a day. What am I missing? How could I help him find a bit of balance?


r/SPD 1d ago

Parents Is It the Sneakers or a Sensory Issue?

Thumbnail
1 Upvotes

r/SPD 2d ago

Building a sensory tool for anxiety/panic/overstimulation

1 Upvotes

Hi everyone! I'm a neuroscience graduate with ADHD and anxiety, and I've been experimenting with a sensory-focused product for moments of anxiety, panic, overwhelm, or overstimulation. I'd love to hear your experience with different sensory needs or coping tools.

I put together a short survey to see what people would actually want in something like this.

If you're interested in helping, comment or DM me and I'll send you the link.

Thank you so, so much! :)


r/SPD 2d ago

Self Out of curiosity. Does anyone else experience coughing fits or other violent ish reactions to overstimulation?

2 Upvotes

Google says, but is kinda iffy on, other people experiencing coughing fits when overstimulated. For 10+ years I've had near daily painful coughing fits to where it affected my life and mental state. With the increasing time frame I've experienced muscle locking, spasms/numbing, seizure/stroke like symptoms, graying vision, the usual stuff; and of course, a lot of crying just from being near a room of talking people or in bright lights. Not to mention the depression to borderline "schizophrenic?" pipeline.

After quitting my job at an art museum after figuring out that it was the artworks and lights that were causing me to randomly run into walls headfirst or putting me on the floor every shift, I've figured out, about a year ago, that I may be in the SPD area. That my daily life, from school to retail/service, was essentially putting me in a mental deathbed.

Now that I have a possible answer, recovered, and learned what to do when I have a fit; I've lurked in comment sections and talked to others that have sensory issues but only received answers that are generally/normally about how things give them icks or they have emotional breaks.

Is there anyone that experienced more concerningly strong physical reactions like me?


r/SPD 3d ago

Self Unflavored toothpaste

2 Upvotes

Hi all!

I’m on the hunt for a TRULY unflavored toothpaste. I can’t tolerate mint at all, hate flavors like bubblegum or fruit, and find sweeteners like xylitol completely disgusting. All of the toothpastes I can find (cleure, dr. Bob’s, risewell, oranurse, squigle, jack and jill, tate’s, etc.) that claim to be unflavored turn out to have sweeteners. I need fluoride, but at this point I don’t care if it’s in the toothpaste itself or if there’s a fluoride-free toothpaste + other form of flouride combo. Please help!


r/SPD 4d ago

Can anyone please explain to me why my 3 year old child needs proprioceptive input to tolerate sensory input?

7 Upvotes

Hello, everyone. I have a 3 year old diagnosed with level 2 ASD and we suspect ADHD too.

He needs heavy work/deep pressure through sensory based OT to be able to tolerate everyday sensory input.

If we stop OT, he is unable to tolerate oral input (can't tolerate food or any brushing), when we take him outside to busy parks or stores (he starts running aimlessly to get proprioceptive input or he asks me to pick him up (deep pressure) or he verbal stims to regulate himself). Sometimes, when there are a lot of people around like at a restaurant he either starts running, climbing tables, crawling under chairs or he cries.

ATP, he cannot function without the constant proprioceptive input in daily life.

Does it ever get better? Will things ever change? Or he will constantly elope outside and will be unable to eat without it?

Thanks for reading my post. If you have any information or experiences, please share it with this worried mom.


r/SPD 4d ago

Feeling being touched

1 Upvotes

Anyone has this?


r/SPD 4d ago

Self Does anyone relate to this?/ is this worth getting evaluated or am i just as “unusual” as other tell me?

6 Upvotes

Hi guys, I was curious if anyone relates to this and if it’s worth getting evaluated I can’t tell if there’s a reason, if it’s just trauma, or if I’m just as “weird and unusual” as people say. These are some things that others have pointed out that I do which they find “unusual”. If I remember anything else I’ll add to it

I’m often told I take things too literally. But I’m listening to what they say?

I can’t stand the sound of people chewing it like physically pains me

I hate how loud restaurant are and often have to take several trips to the bathroom just to sit in the floor of a stall and cry where it’s quieter

I eat the same food every day for every meal and will only switch once I get tired of it to the point that it disgusts me (this can span for 6-8 months for each food)

I wouldn’t wear sneakers until middle school and would only wear my purple crocs because I didn’t like that horrid line on top of socks. I can wear them now but I’m v specific on the kinds of socks, I’ve noticed that the line is a lot thinner in cheaper made super thin socks

I don’t sit with my feet in the floor, it’s just simply not comfortable and not my brains default. My knees are also to my chest or I find a way to sit comfortably

I walk on my toes

The sounds of the lights and or buzzing of electricity feel ear piecing and makes me want to stab my ear drums. I especially hate watching tv with the lights on bc how am I supposed to hear it over the god awful noises of the lights.

I used to cry if they changed the arrangement of desks in school

I HATE SPOONS. I will not use them, I don’t own them, I don’t remember the last I have used one, if I had to guess probably early elementary school. I hate the way they touch my mouth.

I recently got noise canceling earbuds and cried bc it’s so peaceful finally.

I am very specific on the times of day I do things. Ie I use the bathroom at 8 pm, not before not later, 8pm, 12 am, 7am. If it’s past those I simply won’t bc it’s not my time, in this example this has led to me getting constant UTIs

They used to have to take my journals bc in elementary school we were told to journal about everything we did in our day, so I journaled every single minute, if I walked, if I stood up, if I laid down, anything. I journeyed each minute anything changed.

I HATE velvet, it should burn. I think it has something to do with the friction and density of the fibers.

I miss what people want me to do. Ie my bf tells me to bring my laundry upstairs, so i bring it upstairs and leave it in the hamper. Then he’s mad because I didn’t put it in the washing machine, but didn’t directly tell me to so I didn’t know to do so.

I despises touching dirty dishes; old food and simply will not

some situations i will accept (hugs for example), however it will feel very forced and not really a pleasurable experience (same with forcing smiles for pictures) other times i become irritated upon being touched (typically when unexpectedly) and completely reject it. I feel trapped, and imprisoned and I’d don’t like the idea of the contact. I’ve never hugged my best friend

I’m am an adult in my 20s but still have majority of my baby teeth

gets emotional attachments to inanimate objects + fictional characters + gets attachments to people easily

I also think people are nicer then they are and later found out that what I think they complimented me for they were actually bullying me for

I don’t grasp the “because I said so” because okay but why? Like I need to understand the purpose and reasoning behind why I’m supposed to do something or why something is the way it is and have it make sense to me before I can accept it as reality. People usually call me argumentative but I just want to understand..?

I skip a lot of hygiene things bc I do like how it feels. Showers feel like I’m dying,

I have an amazing memory, I can directly quote word for work exchanges and the scene surrounding it from when I met people 5 years ago.

I don’t like addressing people by their name.

I can’t do conversations with more then one person easily at a time. I also struggle to know when I’m supposed to talk, or laugh, or not say anything?

I can make eye contact when someone is talking to me, like I can stare at their eyes, but I can’t when I’m talking. I’m usually referred to as “a sweet girl” but also somehow “abrasive and weird” once they get to know me.


r/SPD 6d ago

warm sweater/hoodie suggestions needed

Thumbnail
2 Upvotes

r/SPD 6d ago

Seeking Recommendations for Sensory Friendly Work Pants

Thumbnail
3 Upvotes

r/SPD 6d ago

Self Seeking information

1 Upvotes

Hi everyone, I am glad I found this sub and I hope I could get some help on how to approach this whole topic.

I am in my thirties and my brother has a 5 year old child that shows a few unusual behaviours. That actually reminded me that I myself had some serious trouble in different areas as a child that I eventuall "outgrew" (or learnt to manage). My parents never really talked me through it I just found some old papers when I was a teenager where my orthopedic seemed to have diagnosed me with "sensomotoric integration dysfunction".

The most noticable was being fearful of tons of stuff that required motorskills and coordination in any shape or form. I just could not do it. I remember that even curbs were difficult for me because I had to think about which foot to use first to "climb down". Later at school I just could not plan motor skills at school sports and just sucked in pretty much everything.
At birthday parties there was that game "protect your balloon/ballon dance" where you had to try to protect a balloon that was tied to your leg and at the same time try to pop the balloon of your dance partner. I have videos where a friend actually let me step on hers because I was having difficulties aiming for it without help and even then I was to fearful to pop it because of the noise".
There was also another game "hear, taste, feel, smell" where you were blindfolded and had to guess differnt items. I also was to afraid to participate because I was picky and also didn't like certain textures.
I am prone to get carsick/seasick and loud environments make me tired easily. In general I am rather to sensitive to other peoples emotions and pick up on peoples moods very easily. As a child I was rather quiet and read a lot and was in general a bit of a "dreamer" and a bit forgetful as well. I never took much medication but I suspect that I could react more sensitive to certain stuff as well. I had really bad side effects after taking benadryl for example but also after a pain killer shot that contained adrenalin.

Does this fit into the SPD category? My brothers child shows some of the things that I had. I pretty much forgot about how different I was but I think if I could understand better what this really is I could get him a bit more help with it than I had. One thing that is really hard in hindsight is that I always blamed myself for being different or unable to do what everyone else could. Because I really tried to join in so many games and activities and just couldnt. even today I freeze up often when I get into situations that remind me of it. To put a name on all this for the first time could really help to not make this my personal failures but just a diagnosis.


r/SPD 7d ago

Self The research around SPD pisses me off :(

10 Upvotes

I was originally diagnosed with SPD around 12, and now I’m 19, almost 20. Sometimes I go online and look for new findings or ways to help with SPD, but I feel like I never see anything new, especially when it comes to long-term treatment.

Ive heard people call SPD an invisible disability which is new to me; I don’t know why but it’s never occurred to me that SPD is specifically a disability, which kinda freaks me out.

The fact that I haven’t been diagnosed with ADHD or any other more recognized mental disorder (that SPD tends to come with or so I’ve heard) scares me too, as a female I’m very reluctant to go try to get diagnosed, I’m afraid that if they find something it will be an uphill battle for real treatment or I’ll waste my time and money trying to find more things wrong with me.

I understand that research on SPD is very difficult as it’s different for everyone, but I would really like a support group of real people I could get in contact with, especially around my age. At the least, I’d love some fresh resources that I could go through to better help me understand my cloudy little brain a bit more.

TLDR, I wish SPD was more separate from other similar brain disorders and such (as in, better researched as its own disorder rather than paired with others), and that I’d would kill for more resources to better understand my brain better.

Sorry if this comes off as just a big vent, I really do want real community, resources, and support for me and anyone else who suffers from SPD


r/SPD 9d ago

Self Do I have to have all the symptoms of SPD to tell my parents I think I might have it?

3 Upvotes

I'm 14F. I've always thought I had misophonia, which I would say I do. Any type of tapping or "ASMR" thing that I don't willingly listen to makes me genuinely want to vomit. But I recently discovered this disorder and discovered I have a few other overlapping issues. I'm very sensitive to light, I absolutely hate when lights are turned on when I'm eating or laying down, my screen light has to be way down. Sometimes it's fine though. The one other thing I found was overlapping is my sensitivity to fabrics. I have basically 3 pairs of pants and one skirt I will wear, because any other fabric; ex: jeans, sweatpants, leggings, I physically cannot wear. Obviously, I feel this has been something that is affecting my life, but I was wondering if there was truly a chance I have it, and if there is, if I should mention it to my parents. Thanks.


r/SPD 9d ago

What does an OT do? Is it worth the money as an adult?

4 Upvotes

My biggest issues are I'm not good with motion-related things (riding a bike, driving a car, amusement parks, slides, anything that changes my balance really), and I have absolutely ZERO pain tolerance. Like, if I get a paper cut, that's it man. My whole day is ruined. And getting any kind of illness? Absolute nightmare scenario. (And with multiple chronic illnesses, this definitely affects my productivity.)

So I've read a lot of things about OT (even from professionals) that are like "wow OT is the greatest it's like a miracle cure for SPD you GOTTA try this thing it's legendary!!!!!!! 😭😭😭😭😍😍😍😍😍😍"

So if I shell out the money for OT, what's going to happen? I just show up and go "hi i don't like motion stuff and have no pain tolerance whatsoever, help" and they wave a magic wand and fix me? What do they actually DO? And more importantly, how long does it last? I've been offered neurofeedback treatments for other neurological conditions that are like "yes just three sessions a week for six weeks and YOU TOO can be normal- for like a few months or so anyway, then you gotta pay for another round of treatment if you want the effects again"

So what happens at OT, and how long does the benefit last? I want to make sure I know what I'm getting into before I shell out my life savings for this.


r/SPD 9d ago

Reserch SPD causes?

1 Upvotes

Has anyone found articles on what the potential causes of SPD might be?

I only ask because I'm fairly sure at least some of it is genetic. My dad is very sensitive to touch and will wear the same clothes for more than a decade until they're literal rags. He's also especially sensitive to scents and my mom isn't allowed to have ANYTHING scented in the house, even if it's just "fresh scent antiperspirant" or Lemon Pledge (one time my mom tried using slightly scented trash bags and he went absolutely manic.) And he will NOT accept substitutions on personal care items- if there's no orange Listerine, he's not rinsing.

I didn't notice anything odd until my diagnosis and now I'm fairly certain that's where I got it from. But I don't know if there's other potential causes as well.

Thoughts?


r/SPD 10d ago

Self How to deal with sweat?

2 Upvotes

Hi, I have been sweating more recently (heatwave and probably because of hormones) and it's absolute hell. I hate it so much. It makes me all stiff and afraid to move. I shower and use deodorant and anti perspirant but this heat makes you sweat within minutes. Self attempt at exposure therapy did not help.


r/SPD 10d ago

For those of you that toe-walked as children, how do you wish your parents/caregivers had responded to it? What would have been the best way to support you in hindsight?

1 Upvotes

r/SPD 11d ago

Sensory help!

5 Upvotes

I am getting so frustrated and worried. My 14 month old hates anything touch sensory. Sits on a blanket on the lawn and won’t move. Any time she touches grass she screams. When we recently went on vacation, she screamed in the pool then we went to the beach and she screamed on the sand. Today we went to a stream and she freaks the second she even thinks you are going to put her toes in. And it’s not just a small scream, it’s the loudest scream I’ve heard and doesn’t stop even after you take her away. We are so patient with her, we take our time and slowly introduce things, even touching the tip of her toes to anything other than the floor sends her over the edge. We have tried sensory bins to slowly introduce different things but it’s not helping. BUT we have gone to a few playground with small rocks and some with wood chips for the ground and she crawls on those no problem which just leaves me more confused. I’m just lost what to do because all of the “fun” things aren’t fun for her and it makes me sad.

Touch seems to be the only sensory issue so far. She eats EVERYTHING, isn’t worried about loud noises, and hitting all of her communication milestones appropriately.


r/SPD 12d ago

Self I love graphic t’s but l…

8 Upvotes

THEY’RE SO SCRATCHY I HATE THEM. Do any of you guys know a way to get around this? I wanna start wearing them and caring about what I wear but it makes me want to crawl into my skin to wear one


r/SPD 12d ago

Mom intentionally triggers me

5 Upvotes

Since I can remember, I’ve had sensitivity to sounds, specially chewing and sniffling. It causes me to panic and makes me really angry and uncomfortable and I know that noises are uncontrollable for a lot of people, but I just can’t stand it.

Anyways, I was diagnosed by my therapist with misophonia when I was around 15. I grew up with a really loving family and my mom is very supportive and generally very kind. However, she is the LOUDEST person I have ever met. She is CONSTANTLY sniffling like literally every couple of seconds every day since I can remember. She manages to make mouth smacking noises just consistently, like she always licking her lips and opening and closing her mouth. She also smacks her lips when she eats.

I know it’s hard for her to control, but what bothers me is that she’ll intentionally try to trigger me. She doesn’t believe that misophonia is a real diagnosis and she thinks that I’m just being rude, so whenever I politely ask her to blow her nose or chew quieter, she intentionally lean in and sniffle extremely loud in my ear or chew really loud in my ear. She does this all the time. She has made so many comments about how misophonia isn’t a really thing and that I’m just rude, even though I try really hard not to be. The only thing that really bothers me is her intentionally making noises to trigger me. I’ve tried everything, including headphones and noise canceling earplugs and nothing works because the sniffling is just CONSTANT. I can’t wear headphones around her 24/7. I love her so much but it bothers me so much that she does this and that she doesn’t respect the way I feel :( am I valid in feeling this way?


r/SPD 13d ago

how to deal with applying lotion/moisturizers to body?

9 Upvotes

hi! I have SPD but I also have very dry skin, live in a very dry place, and have eczema. since the only real way to treat eczema consistently is moisturizer, I've been really struggling with the fact that I can't stand using it. I can deal with most smells but the feeling of having it on my skin makes it awful for me to touch anything. this means no clothes, blankets, sitting, standing (when I moisturize the bottoms of my feet which I desperately need to do), using my phone, reading, etc. I've tried a lot of different moisturizer options but they all have this problem, even if they dry quickly because I still feel them. does anyone have any tricks or suggestions? or maybe even a lotion/moisturizer that is magic and causes no problems? thank you!