Hi does anyone have any experience of the use of Elidel for inverse genital psoriasis.

Im in the UK ( female, 26) have had genital psoriasis for 15 yrs. have used all sorts of creams ( daktakort, nystaform, lotriderm, trimovate) for my genital and none has got rid of it. On my dermatology visit today they have told me they’re trying me on elidel for 6-8 weeks. Anyone used this and how did it go for them?

I’m using enstilar foam on my plaques on other areas and it seems to be keeping them at bay but I can’t shift it on my genitals

Hi everyone!

I have a pretty unusual psoriasis story, got guttate after having strep, a full-body flare-up, treated with UVB, and now I get some scalp psoriasis and an OCCASIONAL very small spot in random places- chest, calf, etc...

I have three previous tattoos, none of which were affected during my flare up.

Anyway, I want to get more but am very concerned about a tattoo causing a full-body flare-up. Is there a way you would recommend doing this? The only time I consistently get spots is from Koebner phenomenon and happens under my watch regularly.

I’m diagnosed with psoriasis since I’ve been 12, usually it’s alright to function with. I haven’t changed my diet or anything, but I noticed a big flare. New spots on my knees, smaller ones on my legs, the spots on my elbows are getting bigger and I use prescribed medications literally every day, I just cannot figure out what caused that sudden flare, since nothing changed in my life; no stress/no change of diet. Can anyone recommend a good moisturizer to put on after I put my ointment on?
Also, what do you think about saran wraps? Has this worked for anyone or made the situation at least a bit better?

Hi everyone! I hope you’re all enjoying your day. 

I’m the founder of a community growing rapidly on TikTok called (@sensitiveskinclub). We also recently joined IG! 

I’m building an education and community platform for people dealing with historically under-researched and underfunded skin conditions, including seborrheic dermatitis, fungal acne, hidradenitis suppurativa (HS), psoriasis, tinea versicolor, etc. The goal is to provide accessible education and build a real community around these conditions. I’ve been living with seborrheic dermatitis for over 10 years, and my struggle with the condition, along with years of dedicated research, is what inspired this mission.

One major piece of the platform is an image library showing how these conditions present across the full range of skin tones. Dermatology is a visual field, and darker skin tones have historically been left out of dermatological imagery. If clinicians don't know what these conditions look like across all skin tones, they cannot adequately serve a diverse population. Correcting that gap is a core pillar of this project. Beyond serving clinicians, this library will also be a valuable self-research tool for our community, helping people recognize and understand their own conditions. To ensure accuracy, we will be consulting with dermatologists experienced in treating people of all skin tones to verify these images, so the database truly reflects and serves our audience.

To build this library, we will be inviting members of our community to contribute their own images, with full privacy protections in place. This is a first-of-its-kind initiative, and the community we're building now is who will make this resource possible. If you're interested in learning more about other features of the platform or contributing, feel free to reach out with questions or suggestions and follow along on either TikTok or IG! 

My philosophy is, if we aren't being prioritized, and the resources we need aren't being created for us, then let's go ahead and create them for ourselves. Thank you, and I look forward to building this together!

Red light masks and treatments are seeming all the rage in the beauty world atm but I’m wondering if they could be good for psoriosis? The main one by currentbody explicitly says it’s not for psoriasis but .. maybe they just have to say that? Has anyone had any experience with this?

Hi. I'm starting skyrizi soon and I'm a bit scared. My dermatologist said she'd never seen psoriasis this bad, and that injections were the only option. In 2013 I had enbrel and humira, both of which I got allergic reactions to. So that is a concern I have now, too. But I'm also very scared of side effects, with the previous two I had, there were some pretty scary ones listed. I'm also scared the injection will hurt bad(I'm scared of needles)

Anyway, I would like to hear people's experiences with skyrizi.

The dr very casually said "it's psoriasis. I'll prescribe a cream" and walked out. This made me think it was not a big deal, a cream should heal it. But turns out it's much more serious than that? I'll have this forever? And it may not go away unless I made huge changes in my life? Why was she so calm and didn't explain anything? I'm so angry and upset and overwhelmed😭😞 I havent even gone for the cream because I'm so overwhelmed and somewhat depressed and in denial. Am I being over dramatic? 😭😭😭😭

So I’ve had scalp psoriasis for as long as I can remember literally since I was like 6 years old and I’ve tried everything, head and shoulders other dandruff treatments, coconut oil, vitamins and prescribed shampoos and I’m giving up all hope so here I am!

My scalp is so bad that the flaking is so bad no matter what I do with my hair and it’s really affecting my confidence so any suggestions I am willing to try.

20(F) About two years ago I got my first patch on my stomach and I thought it was eczema so I put lotion on it, I got about two more and thought nothing of it. I haven’t had anymore until this past January. I got a big patch on my elbow and a couple months later on my forearm. I now just discovered I have a patch on my private area, and I didn’t know you could get one there. It totally freaked me out and makes me feel super insecure and uncomfortable, I just need better steps handling it, I’ve already seen a doctor but I need tips and tricks from people who have been through it and have experience.

i was curious to see what jobs people with psoriasis have that benefits them with their overall health, that have that support from their work colleagues also a work environment that supports their skin conditions and treatments.

currently looking at jobs that are beneficial to people living with psoriasis.
work in the baking industry but the constant flare ups aren’t worth it anymore, i want to change occupations before my flare ups get worse

I want to use whitening products for my arms but I'm not sure if there's a whitening product that's ok to use for my skin type. I want to "fix" my hyperpigmentation by whitening it since I noticed that the flare ups that cleared up on my legs aren't noticeable at all unlike with the ones on my arms (I usually wear long and thick pants so my legs are of a lighter color compared to my arms). Is there any products that can help fix this?

Hi,

got my first Bimzelx shot yesterday? Is anybody interested in a diary I would write about the changes with my PSO/PSA? Would also post pictures to see the progress of one year.

Cheers

Hello everybody, I’ve been on Otezla for two months and it’s done wonders for my skin but I notice my fingernails have gotten significantly worse. They Almost look like wood. Is this normal ?

Anyone else feel like there's almost a tightness in their muscles and body, and even a headache, pre-shower and after the medicated shampoo, lotions, and ritual, like a new person? It might not last, but it feels great.

Signed,
A chronically itchy and red brother in arms

Me and my family went out to a city for my dad's treatment and we have booked a homestay there. On the second day, i stayed back at the hotel as my parents went to the hospital for getting some tests done. Being bored, I went up to the roof and was chilling with a coffee and a book. One of the guys who was helping the owner suddenly came up to me and started chating. Everything was good until he started getting all touchy with me.He seemed drunk and tried to molest me. I was alone and shit scared. I don't have visible psoriasis rn, only some in my torso. As soon as he tried to grab my waist, i lifted up my top and showed him 2 big lesions in my waist and said it's an infection which spreads on touch and i came here to get the treatment for this. It worked. He immediately got up and ran away from there. I can't believe this happened. I was on the verge of getting molested and psoriasis saved me!!

I’m using clobetasol propionate 0.05mg on my wrist and hands at the moment.

I think it’s been good so far, specifically with pain/itching reduction which is wonderful, though I’ve only used it for a couple days.

I find that it causes more flaking/dryness though, so can anyone tell me how they moisturise/exfoliate when using a steroid?

I have the ordinary natural moisturising factors and the paula’s choice 2% salicylic acid.

Is there a specific order/way I can use these with my cream?

Thanks in advance for any help, psoriasis has a way of making you feel like crap about yourself lmao so any advice is greatly appreciated ❤️

for anyone who has experience taking yesintek and is part of their reimbursement program—how long did it take for you to receive a reimbursement? i sent in my envelope months ago and have yet to receive any word. thanks all!

Hi all!

For context I took my first two doses of tremfya about two years ago but had to stop due to complicated reasons. But I am starting it back up again, and I received my first dose about two weeks ago.

When I received my dose however the nurse was obviously new and said out loud she had never used the injector that I had before. She then injected it and seemed unsure while she was doing so. She said she couldn't see the medication. She then injected me again and i felt a streak of medication drip down my arm. I assume this was because the injector locked.
I asked the nurse if this was okay and she reassured me it was.

I was so anxious over this I had a panic attack in the doctors office bathroom and then pulled myself together and left. Fast forward to today two weeks have gone by and my psoriasis is still pretty prevalent. I know the medication can take weeks to fully go in my system however the first time taking this I remember it working almost immediately.

I'm worried that I didn't get the right amount of initial dosing and the medication will be ineffective now.

A tremfya nurse came to my house to show me how to self inject after this and I told her what happened and she basically said unfortunately since it's hard to find out how much medicine I actually got they will probably just tell me to wait for four weeks for my next dose.

However, I'm just overall worried. Does anyone have any similar experiences or advice?

I don't remember the threads where I saw this but thank you, you saved my hairline.

I struggle with mild scalp psoriasis on my hairline but about two months ago I had the worst flair up I've ever had. My skin was flaking and peeling so bad it took the color out of it. It also started spreading down my forehead, which had never happened before. Well, I saw recommendations for using coal tar shampoo and a hyaluronic acid serum and gave it a shot. I used the walgreens brand for coal tar shampoo, and a random tjmaxx facial serum that wasn't too runny or too thick (i use it for my face too! :D ). I also follow up with a few drops of a light facial oil on my scalp (I have dry skin and afro textured hair, the oil helps me in that regard. Its also another no name tj maxx brand).

After the first week I stopped flaking. I washed my hair about 3-4x the first week, then reduced the frequency to 2x the next week, and now 1x a week. It took about two weeks for the color to start coming back to my skin. Now, not only am I not getting bad flare ups, my scalp actually better than it was before and I'm not losing hair on my hairline.

Not sure if this will help anyone but it sure did help me. Again, thank you to those who suggested it.