I have Marcus Gunn syndrome (affects my right eye), which isn't supposed to have major complications, but for some reason it's causing me to lose the vision in my right eye. I have amblyopia/strabismus, astigmatism (in my right eye only), myopia (about 20/300 without glasses in my good/left eye), visual distortions (in both eyes), and more that I'm probably forgetting because I have too many conditions to keep track of. I think I have some sort of comorbid condition that is causing my vision problems because Marcus Gunn syndrome is not supposed to do all of this, especially with early intervention, which is what I had (I was seeing an ophthalmologist before I turned one).
For over a decade, I was seeing this one ophthalmologist. He wasn't really the best and ended up retiring me from his care, and he later ended up retiring himself. After he retired me from his care, I went to see an optometrist, and after two years of seeing the optometrist he told me that my brain was letting go of my right eye and that I needed to see an ophthalmologist again. He referred me to an ophthalmologist that was supposed to be really good and holistic (in my experience holistic equals one giant red flag) and he just dismissed all of my problems.
I'm just so frustrated, because I'm obviously losing vision in my right eye. Even with glasses, everything is blurry, no matter the distance, when before it was able to be correct corrected to 20/20 with glasses. And without glasses I was able to see with my right eye, I just had to be really really close to whatever I was trying to see (likes inches/centimeters away), but now even with glasses, I can't see anything clearly with my right eye.
When I was younger, I was very proficient at reading. I was above my grade level and could read for hours on end. Now, I'm 18 and have horrible, horrible, reading comprehension. When I look at a page of words, now it looks like the page is moving in the words are swirling, which was never a problem for me when I was younger. This new ophthalmologist I saw told me that I was just "focusing too much on the weird things everybody sees". I don't think when I look at something dark (including words on a page) then look away, there's supposed to be a flashing/strobing light for multiple seconds in the shape of the dark thing I looked at. I also don't think it's normal to see triple vision.
I'm just so frustrated. And isn't with just my eyesight, this is with literally everything. I once went into the doctor after an episode of severe shortness of breath (I was gasping for air, had chest pain when breathing all the way in, and I had to take breaks from breathing because it took too much energy), and she told me that I just wasn't eating/drinking/sleeping enough, and that I was just too stressed and anxious (I've had anxiety since birth, I think I know what anxiety feels like in my body).
I'm just so incredibly tired of doctors not listening to me. I (a broke college student with borderline medically neglectful parents) spend a crap ton of money just to get told that it's "my anxiety" or "it's probably nothing" or "it's all in my head". I'm just so done and don't know what to do. I finally found a good GP but I need specialists that take me seriously but they're so hard to find. When I pay money to go see a professional, I want to be taken seriously. That's my one fucking ask. It's just so fucking exhausting. I will go in with a list of symptoms, a list of conditions I might have (because if I don't go in with a list of conditions, they won't do any investigative work so I have to do the work for them), and/or try to politely fight them when they write me off as it "being nothing", but I never get what I need and it's so infuriating.
Is asking for a professional that will listen to me and take me seriously too much to ask? I feel like it's the bare fucking minimum.
If anyone has an ophthalmologist they see/know of that's in or near Seattle, please let me know. I'm at my wits end and desperately need an ophthalmologist before it's too late and my vision is gone.
Sorry about any mistakes or if my post was unclear. I'm on the verge of tears and I don't have the capacity to read it over a 3rd time.