r/HumanMicrobiome • u/mintdrops_in • 6h ago
r/HumanMicrobiome • u/fightingforourfuture • Jun 13 '23
[Meta] A farewell from /u/MaximilianKohler. Moving off Reddit. Probably to a hosted forum.
The following post was written by /u/MaximilianKohler.
Previous discussion: https://old.reddit.com/r/HumanMicrobiome/comments/bg11hl/meta_anyone_interested_in_moving_the_wiki_and/
Reddit has only gotten worse since then.
It's a waste of time to put effort into making high quality content on Reddit subs you don't mod yourself, since so much content gets secretly (or otherwise) removed, and if a mod simply disagrees with something you said (anywhere on Reddit, not even just on their sub) they can and do remove years of your content and permanently ban you.
So I gave up on most of Reddit years ago. There were a handful of subs with respectable mod ethos' similar to this sub's. But even they have nearly all gone down the same corrupt path one by one. Reddit is now nothing more than a propaganda front, where individuals and special interest groups manipulate content & discussions in order to further their personal agenda. That, plus the amount of users confidently spreading misinformation on this site, results in me not trusting anything I read here anymore.
And now, it's not even viable to put up important content on subs you mod, since it's all at risk of being secretly & permanently removed by the admins. For example, they secretly and permanently removed this important historical thread, and wouldn't provide any option to restore it. I have no idea (and they wouldn't tell me) how many other threads may have met the same fate.
They’re also seemingly turning admin duties over to a bad AI with only a specious ability to appeal. So accounts are wrongfully getting permanently banned and there’s nothing you can do about it. Reddit doesn’t care and won’t respond. It seems like in the past few years they hit some tipping point and realized “we can do whatever we want”. So they are. Eg: [1][2][3][4][5].
Accounts and subs are all at risk of unpredictable admin decisions. They've been banning communities without warning for a wide variety of reasons. And frequently introducing new controversial “features” that degrade the user experience.
Given Reddit's dedication to making major, unpredictable changes in the pursuit of profit, it's not a safe and reliable place to build communities anymore. They seem to be cracking down hard on dissent and anything that may impact their profit.
You're probably aware of the current 3rd party app and API issues resulting in many subs protesting: https://old.reddit.com/r/explainlikeimfive/comments/147b2qz/eli5_why_are_so_many_subreddits_going_dark/
The Reddit admins have made it clear that this is their website, they'll do whatever they want, and they don't like /u/MaximilianKohler. Possibly due to their focus on monetization, and my history of being a long-time public critic of theirs. I know there are laws in some countries that prohibit what the Reddit admins are doing to me, but I'm not aware of US laws. I'm seeking legal council on it, and if anyone has info on this please share. But it's likely not a good use of time to fight with the Reddit admins. It's been time to leave for a long time.
A few other recent instances of people agreeing that Reddit is not acting in good faith:
- https://old.reddit.com/r/apolloapp/comments/144f6xm/apollo_will_close_down_on_june_30th_reddits/
- https://web.archive.org/web/20230611194622/https://old.reddit.com/r/videos/comments/145vns0/the_future_of_rvideos/
It's not a good idea to leave yourself at the mercy of such people.
The benefits of Reddit?
Furthermore, many people seem to shy away from Reddit in general, and prefer standalone websites.
One would think that a major benefit of a Reddit sub would be the reach to the rest of Reddit. Yet this forum/sub is tiny compared to a variety of other non-Reddit forums, and even other Reddit subs that cover related health topics which are arguably much less important/impactful. Hopefully the new site can expand our reach on the important topics that get covered here.
Reddit has everything needed to be a high quality site, to create and share high quality information, and participate in important endeavors. Yet my experience here over the past decade has largely been the opposite of that. Lack of support & reciprocation, lack of participation in community efforts; hostility; anti-scientific, willfully ignorant attitudes, and worse. I've been so incredibly disappointed by this website and my experiences here. I drastically reduced the amount of effort and advice I give out, due to all of this.
Sites that seem prone to low quality content, and which aren't designed for high quality discussion & information sharing, ended up being vastly more supportive and useful than this site.
Sharing information here seems nearly useless. More often than not it seems to go in one ear and out the other, and people continue to spread the same incorrect or low quality information no matter how many times it's debunked or higher quality information is shared. And that higher quality information is ignored rather than spread.
Reddit has been becoming more and more like Facebook. Both in regards to the design and the low quality content. I think Reddit is dysfunctional because people are dysfunctional. My hope is to be able to address that by improving people's health & function via the gut microbiome.
So we'll try to reach a different audience.
Where to go?
I've been following /r/RedditAlternatives for many years, but there's yet to be one that seems like a viable option. A hosted forum seems like a big commitment, and forums have taken a big hit on search engines in recent years, but it still seems like the best choice right now. Feel free to share your feedback.
Discord, Facebook, etc. are not valid replacements due to their private nature and inability to be indexed by search engines.
- A short overview of forums: https://old.reddit.com/r/RedditAlternatives/comments/141fys3/just_remember_forums_exist/jn1dq32/
- A site dedicated to them: https://www.theadminzone.com/
XenForo seems to be the best https://www.theadminzone.com/threads/which-forum-software-is-the-best.147142. $60/mo for them to host it, or it could probably be hosted for ~$20-30/mo as long as the traffic is minimal. Given that picking a forum software is a long-term commitment I'm hesitant to cheap out on the lower cost options, but I'll do some more reading on it.
I know you can move forums, but it's not without issues. When Overclock.net moved lots of old links went dead.
For now, I'll be in the new discord server: https://discord.gg/Hnea7fN4vZ
The future of this sub?
Any sub that's not strictly moderated will inevitably contain lots of misinformation, which is something /r/HumanMicrobiome was created to prevent. So the mods will likely have to implement further restrictions.
We may lock comments but still allow submissions. We'll probably disable text-posts, and if you want to make a text-post you can post it on your own blog, or elsewhere, and share the link here.
r/HumanMicrobiome • u/HumanMicrobiomeMod • Jul 24 '23
Mod post New Human Microbiome forum up and running
https://forum.humanmicrobiome.info/
Reddit is no longer a reliable place to create, host, and grow communities, so a new microbiome forum has been set up to be a more reliable location. If you have posted content on Reddit that you feel is worth preserving, it would be a good idea to post it on the new forum.
Reddit has been rapidly and drastically changing their longstanding policies. One of which is making subreddits no longer autonomous. Meaning that communities and users no longer have any assurance that they will be able to independently operate under the Reddit Terms of Service.
They've also allowed trolls and malicious actors to have free rein. And issues with massive bot networks are increasing; making moderation much more difficult, and decreasing the trustworthiness of content. Many important individuals and services are leaving and ending (Eg).
The person who created this sub, and most of the content here, including the wiki, has moved to the new forum. You should be able to get better info & answers there.
You're welcome to post your content there and then link to it here for higher visibility.
Our primary goal will remain as stopping the widespread misinformation on the topic of the microbiome. Since we no longer have someone dedicated to correcting and preventing misinformation, comments and posts here will require preapproval. Some types of content (questions) may be restricted completely since we no longer have reliable people dedicated to providing evidence-based answers.
But you're welcome to ask your questions on the new forum and post the link here.
UPDATE:
r/HumanMicrobiome • u/TheWildYosho • 21h ago
Microbes in 1 Minute - we need you!
Hey everyone! We are Microbes in 1 Minute (M1M). Our goal is to improve scientific communication related to the world of microbes, by producing short-form content related to Microbiology. We are looking for anyone interested in learning about microbes, writing super short scripts, or helping us edit these short videos. We are an international team (currently) composed of PhD students from Harvard and Universidad Autónoma de Madrid, and an undergraduate at University of Southern California (and hopefully you next!). If you’re interested please contact us by filling out this form: https://docs.google.com/forms/d/e/1FAIpQLScbPVGLcO8DuNzC7GBDJHsnAYwqksYnS\\_kXNQ-pz1C7EYNBuA/viewform?usp=header, or attend our biweekly meeting next week (Thursdays at 3pm EST)!
Thank you for your interest,
—The M1M team
r/HumanMicrobiome • u/getdownonfriday • 1d ago
Chronic bad breath disappears completely during viral infections - any ideas why?
r/HumanMicrobiome • u/AutoModerator • 2d ago
The top new and updated threads in the last week on the Human Microbiome Forum
r/HumanMicrobiome • u/amhomoh • 3d ago
Which foods consistently cause digestive discomfort?
Hi everyone,
I’m conducting a short 3-minute anonymous research survey about food, digestion, and everyday eating experiences. I’m trying to better understand which foods people commonly associate with symptoms like bloating, gas, heartburn, stomach discomfort, or other digestive issues.
As a thank you, participants can enter a drawing for a $50 gift card after completing the survey.
Survey: https://forms.gle/SaqyNRE9Mh5PHBy17
I truly appreciate your time and feedback. Thank you!
r/HumanMicrobiome • u/ColdAd4969 • 5d ago
DIY FMT: are capsules enough or are enemas necessary in conjunction?
I'd think capsules are enough since they reach the SI and colon both but what have your experiences been like?
r/HumanMicrobiome • u/AutoModerator • 9d ago
The top new and updated threads in the last week on the Human Microbiome Forum
New Threads
- Ovaries may take on job in immune system after their tenure as reproductive organs (Jun 2026, mice) The post-reproductive ovary shifts from a reproductive to an immune-like organ
- Jona stool testing
Updated Threads
- FMT for treating dysbiosis triggered by probiotics: Experiences? | CDD (Center for Digestive Diseases) and FMT safety discussion
- The false promises of Bryan Johnson and Functional Medicine | The Bryan Johnson "Hit Piece". Surprising revelations in the New York Times put Johnson's integrity into question | Scott Carney
- SMT from China (selective microbiota transplantation)
- DNA stool analysis before and after FMT?
r/HumanMicrobiome • u/Far_Dragonfly_6937 • 10d ago
Experience with a Chronic, Visible, and Physically Active Biofilm – Seeking Advice and Shared Experiences
Hello everyone. I've been dealing with a condition for over a year that has completely changed my life. I have what I believe is a chronic, systemic biofilm, and I'm posting this to see if anyone else has had a similar experience.
My Symptoms
I have a continuous, sticky, and elastic biofilm network that covers my skin. It is not just a localized patch; it forms a web-like structure that extends from my scalp, over my face, down my back, across my torso, and along my limbs. It is bilaterally symmetrical, meaning it affects both sides of my body. My skin feels constantly sticky, and it has a shiny, almost greasy appearance, especially on my face and scalp.
On my scalp, the biofilm has become so thick that it has matted my hair together. The material sticks to the hair shafts, making it impossible to comb or wash out normally. I have lost a significant amount of hair as a result.
I also have chronic sinus infections with thick, sticky mucus that is difficult to clear. The mucus often forms long, elastic strands, and I can feel it draining from my sinuses into my throat. This has been a persistent issue for many years.
Internal Symptoms
I believe the biofilm is also in my sinuses and gut. I have chronic post-nasal drip, and when I swallow the material, it causes severe burping and gas. I have also been diagnosed with Irritable Bowel Syndrome (IBS), which causes bloating, cramping, and alternating constipation and diarrhea. I have lost a significant amount of weight due to malabsorption.
Physical Properties I've Observed
· Viscoelasticity: The material stretches slowly when I pull it but breaks with an audible "snap" when pulled quickly.
· Thixotropy: When I press on it with a paper towel, it liquefies temporarily and is absorbed into the paper.
· Tensile Strength: A thick strand attached to my foot was strong enough to move a heavy object on my bed.
· Electrostatic Adhesion: It crackles with static electricity in my hair and "jumps" onto paper towels, wool, and hair, but doesn't stick well to smooth plastic.
· Thermosensitivity: Mild heat softens it, and I have observed it extinguishing a small flame when it is in a continuous strand.
---
What I Have Tried (So Far)
I have tried many things to get rid of this, with very little lasting success:
· Prescription shampoos: Nizoral (ketoconazole), and various medicated shampoos.
· Topical treatments: Tea tree oil, apple cider vinegar (diluted), coconut oil, almond oil, and other natural oils.
· Over-the-counter products: Salicylic acid soaps, detox shampoos, and various skin cleansers.
· Prescription antibiotics: Including Clavulin, which caused severe vomiting for four days and provided no relief.
· Nasal rinses: Saline rinses, sometimes with added NAC or other agents.
· Oral supplements: NAC (N-acetylcysteine), serrapeptase, and probiotics.
· Physical removal: I regularly use paper towels and compresses to absorb the biofilm after it has been softened.
Despite all of this, the biofilm continues to reform and spread. It seems to have a mechanical component, as the negative pressure from my sinus condition appears to pull the biofilm from my scalp into my sinuses and gut.
---
Why I Am Posting
I have been to several doctors, but no one has been able to diagnose or treat this condition. I have been dismissed as having a psychiatric condition, even though the material is physically visible and exhibits reproducible properties. I have had a CT scan that shows complete frontal sinus hypoplasia (underdeveloped sinuses) and a septal perforation.
What I Am Looking For
· Has anyone else experienced a biofilm that is visible on the skin like this?
· Does anyone have experience with a biofilm that seems to be a continuous network across the body?
· What treatments, supplements, or lifestyle changes have you found effective against systemic biofilms?
· Are there any doctors, clinics, or researchers who specialize in this type of condition?
I am not a scientist, but I have been documenting my case with samples and photos. I am looking for anyone who might have insights or similar experiences.
Thank you for reading.
r/HumanMicrobiome • u/Playful-Code-7463 • 11d ago
Gut Microbiome Test Experiences, What did you do after getting the results?
Has anyone done a gut microbiome test (Viome, Thorne, etc.)?
Looking for real experiences:
• Which test did you choose?
• Were the results useful?
• What was your next step…diet changes, supplements, probiotics, doctor follow-up, etc.?
• Did it actually help?
Drop your stories below; both wins and warnings welcome!
r/HumanMicrobiome • u/Fuzzy_Director_1720 • 14d ago
Undiagnosed for 2 years since Food Poisoning (Left-rib pressure, Calprotectin 250, 0 Bifido/Lacto, Desulfovibrio overgrowth). Need advice!
Hey everyone,
I’ve been battling severe, debilitating GI issues for 2 years now, all triggered by a single, severe episode of food poisoning/gastroenteritis. Since that day, my gut ecosystem has been completely broken.
Currently, I am still without an official diagnosis. Doctors have been completely stumped and just try to throw the generic "IBS" label at me. I'm taking matters into my own hands and need your insights or success stories.
My Symptoms:
- Constant, dull, uncomfortable pressure under my left rib cage. Fasting doesn't relieve it.
- Feeling of fullness after every meal... even just after drinking a larger amount of fluid.
- Silent reflux (mucus in throat)
- The strange thing is, my bowel movements are totally normal - no diarrhea or constipation.
My Test Results So Far (The Data):
- Stool DNA/Microbiome Test: The initial food poisoning completely wiped me out. I have 0% Bifidobacteria and 0% Lactobacillus. On top of that, I have highly elevated levels of Desulfovibrio.
- Calprotectin: 250 (indicates localized low-grade inflammation in the gut, likely driven by the dysbiosis and Desulfovibrio**).**
- Stomach Acid: Highly suspect very low acid (hypochlorhydria based on home testing).
Everything That Has Been Ruled OUT (All Clean/Negative):
- Gastroscopy & Colonoscopy: Both completely clean (no ulcers, no IBD/Crohn's/Colitis, macroscopically normal tissue).
- SIBO Breath Test: Negative.
- H. Pylori: Negative.
- Histamine Intolerance (HIT): Negative.
- Bloodwork: Complete Blood Count (CBC) is perfectly stable. B12 and Ferritin levels are totally fine (no deficiencies). No anemia.
- Abdominal MRI (without contrast): Done last year completely clean. Organs (spleen, pancreas, kidneys) are structurally healthy.
- Abdominal ultrasound - normal.
- Zonulin level - normal.
The Mechanical Twist (Scoliosis):
I also have noticeable scoliosis - my left shoulder is visibly pulled higher than my right. Because my left rib cage is chronically compressed and rotated, I strongly suspect there is massive mechanical tension on my left diaphragm. I believe this structural pressure is compounding my GI issues.
Tested supplements and diets with zero effect:
PPI,Apple cider vinegar,Betain HCL with pepsin,Prokinetics,Ginger,artychoke,Masticha,Different kinds of probiotics,Low food map diet, keto, carnivore, 48h fast,Tudca,Riflaximin
...and honestly, a lot more. It's been two long years and I have tested so many things, but nothing worked. Zero relief. 🤷♂️
My Questions for the Community:
Has anyone with 0% Bifido/Lacto and a Desulfovibrio overgrowth post-food poisoning successfully beaten it? Did high-dose probiotics like VSL#3 / Visbiome do the trick?
How bad was your die-off (Herxheimer reaction) when introducing hundreds of billions of bacteria into a gut with elevated Desulfovibrio**?**
Has anyone experienced left-rib pressure that turned out to be a mix of scoliosis/diaphragm tightness and this specific type of dysbiosis?
**Thank you! I REALLY WANT TO FINALLY FIND THE ANSWER.**🤘
r/HumanMicrobiome • u/GutResearchUoA • 13d ago
People with Chronic Stomach Symptoms Needed for a Short Anonymous Survey [Repost as we need more MALES]
r/HumanMicrobiome • u/natalia_noorish • 14d ago
What supplements for what
I have a graveyard of supplements at this point, plus a list of a hundred more I could still try. It got messy so I tried to sort it into categories, focused on gut stuff
- Antimicrobials
- Berberine
- Allicin
- Neem
- Oregano oil
- Gut lining
- l-glutamine
- Zinc carnosine
- Aloe vera
- Marshmallow root
- DGL licorice
- Motility support
- Ginger extract
- Artichoke extract
- Sometimes 5-HTP slow dose, depending on the case
- Magnesium citrate
- Digestive / chemical support
- Digestive enzymes
- Betaine HCI
- Apple cider vinegar
- Artichoke for bile support
- Ox bile for bile support
- Stool quality
- Psyllium husk
- Magnesium citrate (higher dose)
- PHGG
- Microbiome support
- Prebiotics
- PHGG
- Psyllium husk
- Inulin
- Probiotics
- lacto and bifido blends
- Saccharomyces boulardii (technically a yeast)
- Metabiotics
- Butyrate
- Tributyrin
- Prebiotics
- Metabolic support
- Myo inositol for insulin resistence
- Gut-brain axis
- 5-HTP
- L-theanine
- Magnesium glycinate
- Ashwagandha
- Rhodiola
- Peppermint oil/tea
Anything I’m missing? Not trying to be 100% exhaustive here but recap the main stuff
r/HumanMicrobiome • u/AutoModerator • 16d ago
The top new and updated threads in the last week on the Human Microbiome Forum
r/HumanMicrobiome • u/magnolia_unfurling • 20d ago
Is supplementing Akkermansia muciniphila risky?
r/HumanMicrobiome • u/ExpertAtmosphere2614 • 20d ago
GUT MICROBIOTA / ORTHOREXIA SURVEY FOR PhD RESEARCH
Hello everyone,
I am currently working on a research article as part of my PhD, and I need as many people as possible to complete this Google Forms survey.
The aim of this study is to explore the relationship between knowledge of the gut microbiota and orthorexia nervosa.
The survey is completely anonymous, and I would greatly appreciate your participation. Thank you very much! :)
[https://forms.gle/WJPSfmvcE2TTBGZ36]()
The survey is in spanish by the way. Appreciate your time :')
r/HumanMicrobiome • u/GutResearchUoA • 21d ago
People with Chronic Stomach Symptoms Needed for a Short Anonymous Survey [Research Study]
We are currently seeking people who experience chronic stomach symptoms like nausea, vomiting, belching, or pain to participate in this important research.
Participation is easy and completely anonymous. Simply complete a 15-minute online survey that includes questions about your demographics, symptoms, and mental health. Your valuable input will help researchers better understand and manage chronic gastroduodenal symptoms, including gastroparesis.
Access the survey now at this link: https://auckland.au1.qualtrics.com/jfe/form/SV_5cNZ69rlIXk70PA
Together, we can work towards improving the lives of those suffering from chronic gastroduodenal symptoms. Thank you for your support!
This study has been approved by the Auckland Health Research Ethics Committee on 12/04/2023 for five years. Reference number AH25798.
r/HumanMicrobiome • u/Oxford-find-me • 23d ago
Day in the life of a poo sample
Check out videos from microbiome scientists at the Oxford Centre for Microbiome Studies https://bsky.app/profile/oxmicrobiome.bsky.social
r/HumanMicrobiome • u/AutoModerator • 23d ago
The top new and updated threads in the last week on the Human Microbiome Forum
r/HumanMicrobiome • u/Eva948183 • 25d ago
Small intestinal aspirate
Hey,
I have chronic upper gut bloat and im interested in aspirate since i tried a lot of things and nothing worked. Does anyone know where i could do one?
Im from EU.
r/HumanMicrobiome • u/AutoModerator • Jun 22 '26
The top new and updated threads in the last week on the Human Microbiome Forum
New Threads
- Cockroaches scurry around with thousands of pieces of bacterial genomes. Transferring genes across species doesn’t just happen in microbes. (Jun 2026) Uncovering thousands of endosymbiont DNA transfer events within single cockroach genomes
- Fecal and colonic microbiota differ in composition, function, diagnostic utility and correlation with inflammatory cytokines in ulcerative colitis (Jun 2026, n=28)
- How can I go about finding a top tier donor in New York City ?